Who all is doing the gluten free/caesin free diet?

Joann - posted on 03/04/2011 ( 8 moms have responded )

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We've started this. His Dr. said that a diet will not help any, that it's all in the brain. But, from what i've read online, it could help.

So, anyone else do this? Have you noticed a difference?

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Stacy - posted on 03/06/2011

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Just a tip - my DS won't drink ANY milk replacements (rice, almond, coconut). Calcium fortified orange juice has just as much calcium as a glass of milk and he'll drink that all day long.

Linda - posted on 03/06/2011

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We did this with our son last summer (has sensory processing disorder). First two weeks he was a different kid. After that it is like his body adjusted and he was back to his old ways. Wish it would have been better, but did not work for him. He is on meds now (Concerta) and doing wonderfully. Good luck and I hope it works for you.

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Joann - posted on 03/07/2011

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I wish our son drank rice or soy milk. He won't drink either.. i'll have to stick with OJ then..
We did try doing the half/half with rice and regular and he woke up the next morning saying that his belly hurt.. maybe it was the regular milk?? not sure. But, we're sticking with this diet.

Carlene - posted on 03/07/2011

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My son would get really moody on almond milk. he does really well on soy milk and the gluten free (for the most part) he's not as effected i don't think. i do notice when he gets more gluten he seems more lethargic, less in tune. I'm writing down all the things he does on and off the gluten free diet. i won't go back to milk with him though, he's done with that. soy milk does his body better than cow's milk..

Joann - posted on 03/05/2011

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Thank you ladies for your support. We have done mainy gluten right now. Working on cutting out caesin, he used to drink a lot of milk, so now we have him on rice milk and he won't even drink that. It's been about a week on it and right now, i've noticed no change.. i'll keep it up and see if he progresses any. :-)

Stacy - posted on 03/05/2011

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This is a very touchy subject. Most doctors think it's bunk and quote studies that it has a less than 20% success rate. But ask ANY mom whose kid is in that 20% - and they will definitely tell you it's worth it!

What I would do - commit to 6 weeks. Go all out, be strict about it, no cheating. If you don't see any results - then go back to your normal diet. 6 weeks isn't that much.

We actually started with the Feingold diet first (no artificial colors, flavors, preservatives) and saw the most changes with that. No more tantrums, no more hyperactivity. When we went GFCFSF (if you remove casein, it's best to remove soy as well - they act the same in the body), DS is no longer oppositional, almost NO stimming (verbal stimming is completely gone), he stays dry overnight now. He's a different kid. Brand new kid? No. But I'm no longer counting the hours on the clock until he's in bed. He's a pleasure to be around now.

If you think about it - it makes sense. Our bodies are very responsive to what we put in them - look at alcohol! Why couldn't things like dyes and gluten be processed differently is someone is missing a critical enzyme?

Carlene - posted on 03/04/2011

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TOTALLY WORTH THE MONEY!!!!! for us at least. we took the casein away from him in June of last year before the diagnosis, it helped majorly with chronic constipation... major plus!! we took most of the gluten away in October bc we are just plain too broke to take it completely away. he can still have hot dogs, and we still let him have his cheezy puffs... and he is able to have a little casein once in a while. but in the past week since i have been major strictness on the gluten and dairy intake, he had 34 words fall out of his mouth using them correctly... even "damn" (whoops, my fault). Mr. Monkey regresses less, he don't have near as many out bursts, his stomach is nice and flat (compared to his typical bloated Ethiopian belly, sorry for the reference). Be prepared for the "wth" looks that ppl give you about it. and my son's autism dr said not to use soy because it has side effects on it's own, but wic pays for soy so soy it is... it may just be one or the other that gives him the most issues. don't take it away all at once... i almost lost a tooth bc of that:/ just keep working at it sweetie, you can do it. it'll be harder then H... but totally worth it. and when you get those fantastic results you're working towards, you can tell his dr, "guess what, i was right, you may wanna tell your buddies"

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