Jaime - posted on 10/30/2010 ( 38 moms have responded )
I just thought I would post this here as it's very uncommon. The story is too long, but in a nutshell, my 10.5 month old beautiful baby boy had a high temperature for 5 - 6 days, then other symptoms came out like cracked bleeding ulcerated purple lips, rash, swollen hands and feet and his feet went very very pink and red conjunctivitis eyes without any discharge.
He was diagnosed last Wednesday night, October 27th. He was given a gammaglobulin blood treatment through IV for about 12 hours ... costing around $10 000 just for the blood treatment. Luckily I live in lucky Australia, where we have a free public health system ... I thank God that I live in such a wonderful country.
He is doing ok, the treatment brought the fever right down to normal. We are home now and he is happy most of the time. He has times where he is getting aches and pains in his joints, but he is on Aspirin for 3 months now, so hopefully that is helping with his pain.
He has to have an Echocardiogram next Friday and another 6 weeks after, to see if there is any damage to his heart and arteries.
It's has been a really tough time and this is a disease that I'd never even heard of before, probably because it's so uncommon. You always think that things like this would never happen to you, but it can.
I have written a lengthy note about the whole thing, from start to finish, so if anyone would like to read Tyrese's story, email me and I will email it to you.
If your baby has a fever that wont go away for 5 days and blood tests are showing that there is nothing wrong, only maybe an infection, please get your doctor to look into Kawasaki Disease :(
Thanks for reading ... Jaime