Katie - posted on 10/26/2011 ( 4 moms have responded )
I am feeling very overwhelmed, stuck, confused, sad, angry...you name it I'm feeling it lately...
My son is about to be 23 months old on November 7. He's a wonderful kid, usually easy going and happy most of the time. He has no words yet though. He makes sounds mostly with his mouth closed. He does babble a little bit such as "nanana" or "bababa" but they don't seem to mean anything in particular. He also does not follow any directions, and from what I can tell only can recognize a few words of what we say such as breakfast/lunch/dinner, bath time, moon, airplane, and bubbles. He had his hearing checked and everything came back fine. He is in speech but so far nothing has improved. He also doesn't play with his toys correctly or meaningfully. He is doing better at mimicking us such as when we show him to feed his teddy bear or put a phone to his ear, etc. but I don't think he really "gets" it. He loves to play with cars both to watch the spinning wheels but he also is driving them around more and more. He has been tested for autism and that came back negative, but they said he is functioning at about an 8 month old level. It is so frustrating because no one can tell me why. He had a seizure last Feb. at 14 months of age. He did not have a fever at the time but he did have the flu and hadn't eaten for a few days. He has a neurologist and has had several EEGs done. Most were normal and a couple had some abnormalities but the neurologist said there weren't enough to call it something. We are currently seeing a geneticist but nothing has come back from there yet either.
I just feel so sad for him. I want him to be able to be normal someday but I feel so lost and helpless not knowing what it is or what I can do to help him. I think about his future a lot and wonder what it will be like for him. It rips me apart. I also am scared to have any more kids because who knows if that child will have similar struggles. I haven't been able to find anyone who can relate to me and I haven't found anyone who can give me any sort of answers.
If anyone can offer any sort of advice or support it would be GREATLY appreciated. Sorry if the post seems scattered...that's just how I feel about all this....
Thanks for reading!