are any mothers dealing with a child who may have a rare genetic syndrome

User - posted on 10/23/2009 ( 4 moms have responded )

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My daughter is 6 weeks old and we have been going through test after test. When she was born she had tremors, and since then they have been testing her for so many things. They now have discovered she has a small head and may be missing her corpus callosum, If you have dealt with something like this how did you cope with everything, all i can think about is what if...

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User - posted on 10/25/2009

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Quoting rosy:

Can I ask? Are her tremors in her hands and legs?


They are only in her arms. but her arms and legs are always so tense the doctor said she has to much tone. They haven't diagnosed her with anything yet.

Stephanie - posted on 10/23/2009

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I work with children with genetic disorders and its not what if, its enjoying every moment, unfortunitly things happen out of our control its nothing you did, she is beautiful and perfect in every way no matter what

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