Christiane - posted on 12/30/2010 ( 9 moms have responded )
Feb 2009, my son Matthew was born blue and not breathing well. The doctor said he was fine. We argued with the staff. My son after 2 hours went into cardiac arrest and could not be resusitated. His autopsy showed he was perfectly healthy and shouldn't have died. 7 months later, our son Simon died at 18 weeks gestation.
This son at 23 weeks ustrasound has been diagnosed with TGA- type D. They told me he will require surgery shortly after birth. I have to travel 3 hours every few weeks to the Children's hospital in Vancouver for the echo's and prenatals. I am told I will have to move down there for 2-3 months surrounding his birth and surgery. That will have to be done soon and I will have to figure out how to move with my 6 surviving homeschooled children and maintain 2 households.
After our two years of trauma and heartache at our losses, I must admit I am really scared. Everyone tells us not to worry that our baby is getting the best care and will come home, but struggle to believe that when our perfectly healthy baby before has died.
Anyone who has had to go through this. How do you get through the baby's surgery without going insane? How does the baby usually do after surgery. What am I to expect? How long until I can hold my child after surgery? I worry about attachment. I am so nervous. I guess I just need to hear from someone who has already lived through this.