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Any blogging moms with rare chromosome children?

Suzanne - posted on 12/29/2009 ( 1 mom has responded )

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I have a blog about my life with a special needs child... I was just wondering if any other mom's have a child with a rare chromosome disorder? would love to hear from you..

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Sue - posted on 12/29/2009

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27

I don't have a daughter with a rare chromosome disorder, but she did have dilated cardiomyopathy and she had to have a heart transplant in July. We are dealing with a lot of medications, many doctors visits and a suppressed immune system. What is your blog url? I have one at http://asecondheart.blogspot.com/



Looking forward to hearing about you and your child!

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