Baby is Lactose Int and can't have soy...would like to still breastfeed but what can I eat?

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Minnie - posted on 11/16/2009

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If your daughter is truly lactose intolerant, you cannot breastfeed. Human milk has the highest lactose content of any mammal. It's what makes our smart big brains :)

So you see- if you have been breastfeeding all along and your baby is gaining weight then your baby is not lactose intolerant. It's very rare for a child under five to be lactose intolerant.



Lactose intolerance is a naturally occuring condition- something that happens with the majority of the world's population and develops as they age.



Cow's milk allergy is something entirely different. Parts of the cow's milk proteins can go into your milk and your baby can have a reaction to it.



Milk is a nutritional substance for the young of a species. Not necessary for adults. If your baby is sensitive to dairy, cut out dairy. If he or she is sensitive to soy, cut out soy.

Catherine - posted on 10/13/2011

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I would keep breastfeeding and cut dairy and soy out of your diet as much as possible and watch for an improvement. My son is 2 just after christmas and is intolerant of both dairy and soy (and i have been lactose intolerant all my life) and I was advised to keep breastfeeding him as long as possible. I found that lactose free milks were best to use as a substitute as they can be easily used in all the recipes that need milk but it is only useful if it isn't an allergy to the proteins. Most lactose free formulas contain soy so be careful about reading the ingredients if that is the path you choose to go.
I would see a nutritionalist and your paediatrician.

His symptoms were pains in his stomach, runny mucusy stools, crying after feeds, throwing up with in half an hour of feeds and increasingly bad excema. He did gain weight but at a slower rate. Once dairy and soy were out of my diet his symptoms improved a lot.
He can now tolerate both in small amounts in food but is still really limited. He has lactose free milk for his milk drinks and I use it in cooking where milk is needed as it tastes just like normal milk. Soy is much harder to totally remove as it is hidden in small amounts in many foods.

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Catherine - posted on 10/13/2011

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Something else I was told by my paediatrician is that many children that suffer from lactose or soy intolerance are also much more likely to suffer from asthma so paracemol is a better choice for pain relief rather then nurofen as it can cause asthmic symptoms.

Yvette - posted on 09/09/2011

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I'm dairy (not just lactose) and soy intolerant, and still have a very varied diet. If you were big on eating icecream, cheese etc, then its gunna suck. But the thing is, you can make your own cakes, cookies, custard etc using rice milk, oat milk, almond milk, or even goats milk. I make everything from scratch and always find ways to substitute ingredient so that I don't miss out on much. I love my food and I am intolerant to many foods, and so is my breastfed baby.

[deleted account]

I feel your pain!! My little one has a milk protein allergy..it started with mucousy stools and then progressed to blood streaked (very small amounts) mucousy stools. I am on a strict dairy free diet now! My little one has seen a GI specialist and had a sigmoidoscopy to rule out anything else. It is definitely milk protein allergy. I can have soy however..but avoiding diary is REALLY hard.. sometimes it seems like it is in EVERYTHING..but even small amounts of dairy like the small amount in chocolate, or a pastry upsets her. I just avoid ALL dairy. It is difficult but doable!! I avoided soy and diary for some time but added soy back in with no ill effects..dairy still upsets her and I haven't even had a any dairy food..just some chocolate that had a teensy amount of milk upsets her tummy and the blood returns. Both my daughter's GI specialist and pediatrician tell me not to worry too much about it. If she gets a little blood in her stool every once in a while its not a big deal. Otherwise she is healthy, pink and gaining weight VERY well :)

Elanor - posted on 11/26/2009

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Quoting Michelle:

please be aware all the vanilla rice dream drinkers...i started giving this my daughter aged 14 months cuase it had more fat and carbs to the soya but then i found this: "Arsenic exposure from rice milk

19 March 2008


Researchers have found that levels of arsenic in rice milk exceed EU and US drinking water standards.

Andrew Meharg and colleagues at the University of Aberdeen, UK, have shown that people drinking rice milk are exposed to high levels of inorganic arsenic. It is well known that rice can contain high levels of, predominately inorganic, arsenic - a known human carcinogen. However the levels of inorganic arsenic in milk made from rice, a cow milk alternative for vegans and lactose intolerant sufferers, have not previously been of concern.

Meharg's team analysed samples of rice milk to see if inorganic arsenic transfers from the rice into the milk. They tested commercially available and home-made milks, made from globally sourced white and brown rice grains. And they also looked at arsenic levels in soy and oat milk."RSC Publishing
and also in my local newspaper.



 



However we do not know what in Cow's milk either, due to cows grazing on all sorts of land, most of Britain has high levels of Radon gas, cow will be grazing on this and all sorts. Infact every natural thing has elements of all sorts of  things inside.



Our governement has a vested interest in dairy (for somne reason) the farmers are not making money out of it - so someone must - and the government seems set on promoting it.



Milk was pushed during the war when food alternitives of calcium were in short supply and they would fill children up on puddings.



You can Breast feed, just cut out your milk (this is what I have done, my son is waiting to see the speciialist, but we have to wait until January, so I am also keeping a food diary, I think goats milk affect him too, but we have ceoliacs in our family, which is why the food diary).





 

Michelle - posted on 11/25/2009

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HI...my daughter is the same Jennifer...she is lactose and cow's milk protein intolerant. Lactose coming from my mom's side (my mom) and the cows milk protein allergy coming from her daddy's side (aunty). Since she was born she was very mucousy and even when i was pregnant she had whats called 'echogenic bowel' which showed dark spots in her bowels...the conditions arising from this could have been anything from down's syndrome to a milk intolerance. The doc's could not tell until she was born.

As i was saying she was very mucousy and gagging all the time. I was breastfeeding her but couldnt get her to latch on (she also had a rash on her face) properly at times because of stress from the hospital. She had to go to NICU and there they fed her formula without me knowing...which made her puke even more. They told me its just cause shes a newborn. But i knew it was the milk. I self discharged us after 5 days cus of the stress on my baby and myself...there at home i breastfed and she gained weight better than she did in hospital. although she was still puking her milk right back up...i kept takin her bk to doc n they said she just needs saline drops (cause she was always snuffly) but it never worked and after 3 months I went back to a diff doc and said 'look i think shes milk intolerant, can we do something about it?' so instead of giving me advice she gave me a prescription for soya formula...it worked wonders but I wanted to BF. unfortunatley I never got the advice I needed. Because of her milk allergy my daughter has always been underweight (shes perfectly healthy, just skinny).



My advice to you would be to carry on BF and just look at all the ingredients that you use and on tins etc.. I cook food from scratch for my daughter..but you can get foods that you will be able to eat.

my daughter is nearly 2 and hasnt grown out of it and unlikely will. We tried tiny amounts of some dairy but she just puked straight back up. Shes worst on cheese (yet my mom can eat some cheeses).



I hope you carry on BF for the sake of your son...my daughter now drink alpro soya and has thier yoghurts and custard etc... I limit her to 2 portions a day as ive heard of soya products containing high levels of oestrogen ( i actually started to noticew my daughter growing boobs at 7 months old (and she was so skinny everywhere else it didnt make sense).



please be aware all the vanilla rice dream drinkers...i started giving this my daughter aged 14 months cuase it had more fat and carbs to the soya but then i found this: "Arsenic exposure from rice milk



19 March 2008





Researchers have found that levels of arsenic in rice milk exceed EU and US drinking water standards.



Andrew Meharg and colleagues at the University of Aberdeen, UK, have shown that people drinking rice milk are exposed to high levels of inorganic arsenic. It is well known that rice can contain high levels of, predominately inorganic, arsenic - a known human carcinogen. However the levels of inorganic arsenic in milk made from rice, a cow milk alternative for vegans and lactose intolerant sufferers, have not previously been of concern.



Meharg's team analysed samples of rice milk to see if inorganic arsenic transfers from the rice into the milk. They tested commercially available and home-made milks, made from globally sourced white and brown rice grains. And they also looked at arsenic levels in soy and oat milk."RSC Publishing

and also in my local newspaper.

Jill - posted on 11/20/2009

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Quoting Lisa:



Quoting Jill:

DO NOT STOP BREASTFEEDING!!!!! My son is lactose & soy intolerant. We found out at 3 months old. I am still breastfeeding though! I have has to chang my diet. i buy a lot of vegan food because true vegan food does not have milk in it. go online & look for dairy free recipes & DO NOT EAT OUT!!! you never know what they cook with. It was a complete lifestyle change but I believe my baby is worth it! On the other hand....This lady named Lisa Moreau...she's an idiot & doesn't know what she's talking about! My pediatrician told wanted me to continue breastfeeding. Some people need to be educated before they advise people with incorrect info! Do what is best for your baby!!






May I remind you that it is against forum rules to make personal attacks and insults?






I think you need to re-read my orignal post and my several other posts before you jump to conclusions.






We welcome your insight here, however it needs to be provided in a respectful fashion.






I'm sorry if I offended you.  I should have read further!  However, as a medical assistant, I get frustrated with people giving incorrect information to the unknowing.  I apologize.

Minnie - posted on 11/20/2009

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Quoting Jill:

DO NOT STOP BREASTFEEDING!!!!! My son is lactose & soy intolerant. We found out at 3 months old. I am still breastfeeding though! I have has to chang my diet. i buy a lot of vegan food because true vegan food does not have milk in it. go online & look for dairy free recipes & DO NOT EAT OUT!!! you never know what they cook with. It was a complete lifestyle change but I believe my baby is worth it! On the other hand....This lady named Lisa Moreau...she's an idiot & doesn't know what she's talking about! My pediatrician told wanted me to continue breastfeeding. Some people need to be educated before they advise people with incorrect info! Do what is best for your baby!!



May I remind you that it is against forum rules to make personal attacks and insults?



I think you need to re-read my orignal post and my several other posts before you jump to conclusions.



We welcome your insight here, however it needs to be provided in a respectful fashion.

Minnie - posted on 11/20/2009

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Quoting Jill:



Quoting Lisa:

If your daughter is truly lactose intolerant, you cannot breastfeed. Human milk has the highest lactose content of any mammal. It's what makes our smart big brains :)
So you see- if you have been breastfeeding all along and your baby is gaining weight then your baby is not lactose intolerant. It's very rare for a child under five to be lactose intolerant.

Lactose intolerance is a naturally occuring condition- something that happens with the majority of the world's population and develops as they age.

Cow's milk allergy is something entirely different. Parts of the cow's milk proteins can go into your milk and your baby can have a reaction to it.

Milk is a nutritional substance for the young of a species. Not necessary for adults. If your baby is sensitive to dairy, cut out dairy. If he or she is sensitive to soy, cut out soy.






People shouldn't advise other people if they aren't educated to do so!  DO NOT STOP BREASTFEEDING!!!!  There are several things you can continue to have.  Speak with your pediatrician and breastfeeding consultant!  Do what is best for your baby!






I think you misunderstood me.  No where did I tell her to stop breasfeeding- in fact, I would probably be the last person to suggest that!



 



If a child is truly lactose intolerant that child has a condition called galactosemia- in which case the mother can not breastfeed her infant because her infant cannot digest her milk.



But in this mother's case her child is NOT lactose intolerant as evidenced by the child gaining weight and thriving. 

Tanda - posted on 11/19/2009

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Do NOT stop breastfeeding!! I know how daunting it can be to have to find alternatives, but there are a lot out there if you look. I am gluten intolerant and I have a milk allergy (they often go together), which makes difficult, but your situation is much more common than you probably know. Just stick to the diet, your baby will feel better, and you might consider getting your baby tested for other food allergies as well. Good luck:)

Maria - posted on 11/19/2009

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Its hard on your part especially if soy is out of the question. I just found out my son is lactose int. I drink lactaid its lactose free milk. There is rice & goats milk as well. Good luck! you can do it!

Elanor - posted on 11/19/2009

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Re - read Lisa's post! She's not saying give up, she's saying it's very unlikely a lactose intolerence, as human milk has lactose in it too. Infact it is very rare to have a lactose intolerence (or it is so mild that the lactose in breast milk doesn't affect a breastfeeding baby, in which case the cow's milk lactose won';t affect baby either).
What I think Lisa is saying is that it is more likely to be an allergy to cows milk protein, protiens of foods go into the breast milk easily. This being the worst thing the baby could have would be a formula that is made out of cows milk, therefore it would be easier for the mother to give up cows milk, and continue breastfeeding.
For what it's worth, I think the first thing she should do is start block feeding, as it sounds like a fore milk/ hind milk imbalance. The doctor should've mentioned that first, and I think it was pretty unprofessional telling her to stop. What you've got to ask, is does the doctor get any back handers from companies promoting formula?????

Jade - posted on 11/19/2009

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My daughter has cow milk protein allergy but i still breast. I have just adjusted my diet so that I don't eat anything with cow milk in/ Just find an alternative or substitute product. Don't stress as there is so much more to offer these days.

Jill - posted on 11/19/2009

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Quoting Lisa:

If your daughter is truly lactose intolerant, you cannot breastfeed. Human milk has the highest lactose content of any mammal. It's what makes our smart big brains :)
So you see- if you have been breastfeeding all along and your baby is gaining weight then your baby is not lactose intolerant. It's very rare for a child under five to be lactose intolerant.

Lactose intolerance is a naturally occuring condition- something that happens with the majority of the world's population and develops as they age.

Cow's milk allergy is something entirely different. Parts of the cow's milk proteins can go into your milk and your baby can have a reaction to it.

Milk is a nutritional substance for the young of a species. Not necessary for adults. If your baby is sensitive to dairy, cut out dairy. If he or she is sensitive to soy, cut out soy.



People shouldn't advise other people if they aren't educated to do so!  DO NOT STOP BREASTFEEDING!!!!  There are several things you can continue to have.  Speak with your pediatrician and breastfeeding consultant!  Do what is best for your baby!

Jill - posted on 11/19/2009

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DO NOT STOP BREASTFEEDING!!!!! My son is lactose & soy intolerant. We found out at 3 months old. I am still breastfeeding though! I have has to chang my diet. i buy a lot of vegan food because true vegan food does not have milk in it. go online & look for dairy free recipes & DO NOT EAT OUT!!! you never know what they cook with. It was a complete lifestyle change but I believe my baby is worth it! On the other hand....This lady named Lisa Moreau...she's an idiot & doesn't know what she's talking about! My pediatrician told wanted me to continue breastfeeding. Some people need to be educated before they advise people with incorrect info! Do what is best for your baby!!

Elanor - posted on 11/19/2009

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Hi Marabeth
Did you find out that the Gluten caused the blood in poo? We have ceoliacs in our family, my son is currently being tested, I think it's the gluten, but the docs say that it doesn't effect them when breastfed

Clara - posted on 11/18/2009

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It's more likely a dairy allergy than lactose intolerance. (Plus side, as scary as allergy sounds--You can outgrow allergies, usually by age 2-3; you're intolerant for life--I know from experience. I've been LI for 26 years...) If it's milk allergy, the best thing you can do is nurse, as it provides protection for baby's growing gut. Like others have said, probably best to exclusively breastfeed for as long as possible before introducing foods, juices, and rice/nut milks, too.



There is a mom in my local breastfeeding group who has a very allergic kiddo--eggs, milk, gluten, peanuts, and slightly soy. But, he can still have tree nuts and corn (two other possible food allergies). Her little one is almost 2 and along the way she's learned to read labels, pretty much avoiding all processed foods, and cook! New recipes make this not such a daunting task. I've been dairy-free for my daughter for 13 months (she's 15 months now) and it's ok. The hard thing was when she started food, we found out all these other things that have milk in them, including ALL fast food chicken nuggets (I'm a vegetarian, so I didn't think to check ff nuggets--check EVERYTHING!!). There are tons of alternatives, Rice/Almond Dream make good soy/dairy alternatives--ice cream, cheeses, butters, milks. Check around your local Kroger's or Winn Dixie as they sometimes have these alternatives.

Michelle - posted on 11/18/2009

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my daughter can't have dairy i'd never give her soy she also can't have gluten.... most things that you put milk in you can sub rice almond or coconut milk

Korie - posted on 11/18/2009

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My daughter is 5 months and at about 3 months she started to have specks of blood in her stools. Her ped tested her stools for everythingand had me eliminate all dairy. Not because of the lactose but because of the protein found in cows milk. When a baby is sensitive to this they are also usually sensitive to soy.Our daughter is also allergic to gluten for now. While cuttign those things out has been difficult it hasn't been horrible. I can eat any veggie any fruit and I eat alot of corn things like corn tortilla's corn chips etc. If you have a natural grocery they will have a soy free- dairy free butter. I am not a fan of rice or nut milks so I don't even bother. I just had to learn to read labels and make alot of changes. To me breast feeding is worth it. I am not saying that with a judging eye though because I think every family knows what is best for them. If you decide not to your baby will probably have to have a hypo allergenic formula - that is what my pedi said.
Since I have cut these things out her excema, bloody/ mucuesy stools and almost all spitting up have disappeared.

Amy - posted on 11/17/2009

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Another thing: Make sure that you give your baby ONLY breast milk or formula until she is at least 12 months old. No rice milk, coconut milk or almond milk. You, however, can have all of those things, although I've found that the rice and coconut milk (not the thick kind in the can, rather the cartoned version in the milk section) contain the vitamins you need. Please keep up with your daily multi and also pick up a good calcium supplement (powder capsules with magnesium are optimal for absorption of the calcium) from the health food store.

And, lastly: Gummy bears, coconut ice "cream," No Pudge brownie mix (you use applesauce for the mix, per the box's instructions) and Newman's Own Alphabet Cookies have been tremendous in allowing me to continue to eat dessert! (And this is from a confessed chocolate and cheese and yogurt and ice cream lover.)

Amy - posted on 11/17/2009

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Hello! There is so much you can still eat. I went for six months with no dairy and no soy in order to continue to breastfeed my son who had an allergy to both. (I continue to breastfeed at almost 11 months; his soy allergy was false, so I can eat tamari and tempeh and tofu again.)

Consider vegan recipes for baked goods especially, and keep in mind your fresh and dried seasonal vegetables and fruits, beans, lentils, meats, eggs, pasta, rice, quinoa, and Progresso panko bread crumbs. Because I am the cook in our home, my boyfriend has been the unwitting eater of many meals sans soy and dairy, and he hasn't complained once. The best rule of thumb I've found is avoid processed foods. Almost all of them contain a soy or dairy derivative. If you are interested in specific recipes, please let me know and I will be happy to send some to you.

Good luck, and don't give up!

Marabeth - posted on 11/16/2009

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my daughter had a dairy intolerance also. mucousy stools with some blood, fussiness. i cut just dairy out for two months and slowly reintroduced it. i'd have a quarter cup of milk in the am so if she reacted to it it would be during the day. if she reacted i maintained my non-dairy diet for another two weeks to try again. after two more months she had grown out of it. eating dairy free is easier than it sounds once you get past the initial two or so days.. even if you *love* dairy. its way healthier for you as long as your calcium intake is maintained (i take calcium pills on days i don't get enough in my diet).

Jennifer - posted on 11/16/2009

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Thanks for all the responses as they are helping me understand this a bit better. I am such a first time mom stereotype and hate to overreact but want to make sure I am doing what is best for my daughter.

Lisa -
Thanks for the link. I ended up talking to a LLLI rep and it really helped. She is having me just cut out dairy and keep a food diary. She also said I could keep breastfeeding. The doctor said that it will take at least 2 weeks of not eating dairy before my milk will not upset her anymore and that the formula could start to help her digestive now....but the LLLI said I am not doing any major damage if I continue to breastfeed for the next 2 weeks. But she has not had a bowl movement today....is this part of not being able to break down the protein?

Alyssa - posted on 11/16/2009

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My son too has this problem. He is 2 now but we found out at a very early age he had this problem. I know it seems like a pain but you will have to read all of the labels on the food you buy. He was going to the pooping 7-10 times a day and he had mucus and little traces of blood in his stool. It sounds like you baby may have a dairy protein allergy. We had to take my son to a specialist to find that out about him and he couldn't have milk protein, soy protein but could have stuff like soybean oil and soy lecithin. Maybe you should go to a specialist to see if that's even the route you need to take because it is definitely a lifestyle change when they have that kind of allergy! :-( Oh, and if he wants to eat cereal, we put Rice Milk in it instead of any other milk. The doctor said that very few people are allergic to rice and my son has yet to have a problem with that.



I hope this helps you some! :-)



Alyssa M.

www.4theLoveofMyFamily.com

Minnie - posted on 11/16/2009

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Quoting Jennifer:

I have been breastfeeding for the past 10 weeks and she has gained weight. My daughter has mucus and some blood (microscopic) as I never saw any in her bowl movements. My doctor suggested to cut out all dairy and soy for 2 weeks and then return to breastfeeding after the 2 weeks is up. Is cutting out both dairy and soy extreme? Has anyone else heard of this or should I just cut out all dairy? Should I continue to breastfeed or put her on the expensive formula until the 2 weeks is up? First time mom and want to hear what other moms have done...



I eat minimal dairy- a square of cheese at most every few days.  It's easy to get by.



Soy you have to be more diligent with, as it's in most processed foods.  Making most of your food from scratch helps avoid this and as an added bonus gets a lot more healthy foods into your own diet.



I would not stop breastfeeding though.  What is your doctor's reasoning for this?  Why would you have to not breastfeed for two weeks?



Have you considered you may have a foremilk/hindmilk imbalance?  Are you nursing her on one side until sufficiently empty before switching to the other?  If your baby gets too much foremilk she can exhibit signs of lactose intolerance, and if this goes on for some time can cause secondary lactose intolerance, in which the intenstines are damaged (which would cause the occult blood in her stools) until they heal. 



Seek out a LLL leader for mother-to-mother support.



Of interest:



http://www.llli.org/llleaderweb/LV/LVSep...



http://www.llli.org/FAQ/oversupply.html

Jennifer - posted on 11/16/2009

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I have been breastfeeding for the past 10 weeks and she has gained weight. My daughter has mucus and some blood (microscopic) as I never saw any in her bowl movements. My doctor suggested to cut out all dairy and soy for 2 weeks and then return to breastfeeding after the 2 weeks is up. Is cutting out both dairy and soy extreme? Has anyone else heard of this or should I just cut out all dairy? Should I continue to breastfeed or put her on the expensive formula until the 2 weeks is up? First time mom and want to hear what other moms have done...

Elanor - posted on 11/16/2009

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Quoting Lisa:

If your daughter is truly lactose intolerant, you cannot breastfeed. Human milk has the highest lactose content of any mammal. It's what makes our smart big brains :)



Although many baby's do have a reaction to milk protiens from cow's milk, through the mother's breastmilk. My son is, I drink Rice milk in cereal, and have black tea. I use Vitalite margarine, as it is dairy free, and there are lots of Tofu cheeses.



Are your daughter's symptons frothy poos, green stools, colic? If so she may be getting more fore milk (esp. if you have a high supply). You could try block feeding, try 2 feeds per side. With block feeding you can go as high as 12 hours per side (but not recommended to start off, only if it does not get any better).



The fore milk is lower in fat, the fat helps the body asorb the lactose, if baby is having too much fore milk, not enough hind milk then it can cause Lactose Intolerent like symptons. However the baby can continue to gain weight, sometimes putting on quite a lot, or sometimes not ve4ry much.



Good luck, let us know how you get on.





 



Casey - posted on 11/16/2009

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I also meant to say, my son is 13 months now & I am drinking milk & so is he. Keep breastfeeding - it's best for your daughter & you!! You can do it!

Casey - posted on 11/16/2009

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There are books that can help you as well if you look at LLLi (La Leche League International) or even Barnes & Noble. They can help guide you or even look online. My second son had a dairy intolerance so I cut dairy out for a few months & slowly added it back in. Start with cheese and maybe yogurt and last with milk. I didn't drink milk until he was 11 months old. Made a world of difference, though! Happy baby when I wasn't eating dairy! Stick with it, it's not too bad once you get used to it! The hardest part for me was remembering not to eat it - it's in a lot of stuff! I cooked with rice milk & used it on my cereal, etc. Worked fine (don't use with pudding, won't work).
Good luck!

Gwynn - posted on 11/16/2009

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You can eat anything that is dairy free. You should still be able to have soy though. Don't let anyone tell you to stop breastfeeding unless your baby has lost alot of weight and you cant pump any milk. I breasfed 4 children and my girl was allergic to milk, if she had a formula supplement it had to be Nutramagen, which is very expensive. I quit eating any milk products till I quit breastfeeding at 10 months, and she was much better. Good luck

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