Has anyone tried domperidone (Motilium) for chronic low milk?

Alli - posted on 02/26/2011 ( 25 moms have responded )

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I'm waiting on a prescription of Domperidone (brand name Motilium) for chronic low milk. I worked with my lactation consultant for months & she wouldn't have recommended it if we hadn't tried everything else. We were getting to the point of even trying a feeding tube taped to my breast to stimulate production while he still got supplementary formula. I've taken all the herbs, done all the tricks, drank my weight in water, etc.



BUT my question is if anyone has tried it, even if you're an adoptive mother who has tried it to produce milk. Did it work for you?



Also, if you've tried everything & have talked to a lactation consultant with no results, ask about domperidone. First ask about Reglan, but I can't take Reglan because I have a history of seizures & anxiety. It has to be compounded in the US (it doesn't come in pill-form here) or it can be ordered online from Canada with a prescription. Compounding pharmacies can be found across the US & of course you need a prescription. Compounding can be very expensive, so I do suggest ordering outside of the US with a prescription. I do NOT advise anything your state considers illegal, just so you know!

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Naheeda - posted on 03/05/2011

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I can definitely say that Domperidone works wonders. When I had my daughter I had low milk supply. I tried everything: feeding with a tube, nipple shield, herbs (i.e. nursing tea, fenugreek and blessed thistle tablets) but nothing worked. I went to see lacation consultants who couldn't seem to help me. I finally began seeing a pediatrician who runs a breastfeeding clinic. She knows her stuff and specializes in helping moms with breastfeeding. She put me on domperidone (now it has been about seven months and I was able to stop supplementing with formula and now have her fully on breastmilk. I am sure if it was not for the domperidone I would have stopped breastfeeding. I did not have any side effects and at one point I was taking about 12 pills a day. My doctor said that once I had my milk supply up I can reduce the pills. I am now taking now taking any pills and my supply is fine. The only thing to keep in mind is if you are planning to try for another baby you need to be off the domperidone.

Emma - posted on 02/26/2011

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it works great within about 4 days my breast were full for the first time in ages until i found a suitable doase that worked for us there is a dosage regime your dr should be able to tell u about but like i said u dont HAVE to wean off it i still take 1-2 tablets everday and have been for months because as soon as i dont my supply drops n i loose confidence sometimes i think its in my heading (worrying about low supply) but for my own confidence i take a small dose everyday and like i said i have been assured by the Australian Breast Feeding Assoc that this is fine as the medication does not accumulate in the body and is eliminated naturally i didnt find any side effects but i know one of the main ones can be headaches so just watch out for that but yer im so thankful i used it cause i love bf my daughter and couldnt imagine having to give her formula also if my supply drops due to stress or an extra fussy baby for a few days i just take a few extra tablets those days n problem solved goodluck

Sara - posted on 03/05/2011

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I've just started taking at 8 months post-partum. I'm in the US and had to order it outside the US. My milk supply completely tanks when I get my period, so I'm just trying to experiment right now to get the dosage right. I was advised to take 30 mg (3 pills) three times a day. After a few days of that, I was engorged like I haven't been since my milk came in! I worlk full time outside the home, and not being able to pump enough to keep up with my son was really really stressing me out. My freezer stash is almost gone, so I'm very relieved this is working!
Now to adjust the dose to a more comfortable level. :)

Emma - posted on 02/26/2011

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Love it have used since early on due to a very fussy baby n vreast refusal periods etc I still take a small.dose everyday just for confidence.n cause she is still really.fussy so sometimes.i take more if my supply drops I have been assured this.is safe by breast.feeding.association there is.a website by dr jack newman a lactation specialist www.nbci.ca really good info on domperidone use n jusg so u.know this medi ca tion is excreted from the body its levels do not build up or accumulate in the body n can be given to babies for certain medical conditions so u know it is a safe as it can be

Clare - posted on 02/26/2011

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I used it with my first child due to a rocky start to breastfeeding and the stress of it impacted my supply. Worked like a charm and worked very quickly. I did not notice any other side effects, but was not on it for a long time - when we got the hang of things I needed to wean off as I had too much milk. Be careful to wean off of it slowly, one pill at a time.

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Brandy - posted on 06/04/2013

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Sarah Ashley, my question is mainly directed for you so if you could respond as soon as possible, I would appreciate it very much. I read your posting via this thread about Domperidone and your situation is closer to my own situation. You said you started the Domperidone at 8 months post-partum. Prior to you starting the Domperidone, was your milk completely dried up? If so, how long approximately did it take after taking the medication before you noticed ANY milk coming in (I know you said due to the dosing you were mastised after only 3 days). If you weren't completely dried up before taking the medication, did you have a steady, but low, supply for the whole 8 months prior? And if that's the case were you still pumping throughout the 8 months prior to taking the medication? Also, are you supposed to start trying to pump after taking the very first dose of Domperidone even if you don't have ANY MILK whatsoever?

Any advise and or answers to my questions would be appreciated from anyone. Thank you!

Vanj - posted on 07/12/2011

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I have 100+ pills of domperidone 30 mg each, anyone who needs it? I'm giving it away for free. I don't need it anymore and I just don't want it to go to waste. Pls e-mail me directly at vanjbaquiran@aol.com.

Rebecca - posted on 07/09/2011

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I am anemic and had tried the herbal, pumping, excessive water drinking, diet changing to increase my supply. I went on domperidone 14 months ago after heart ache and a baby that could not gain. I now have a healthy breastfed 14 month old beautiful girl. I have looked for answers about coming off the medication ( yes, still on it) and have found unless your supply can stay up on it's own, you should not discontinue. As I am still anemic, I still take the pills. I have lost hair while taking it and can have small dizzy spellls. It is worth it to me, taking the medication saved and enhanced my breastfeeding relationship. Best wishes- feel free to contact me if I can lend an ear.

Vanj - posted on 07/08/2011

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I have 115 tablets of 30 mg each of Domperidone purchased here in California compounding pharmacy. Anyone interested pls pm as I do not need them anymore and I don't want it to go to waste.

Jody - posted on 03/05/2011

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Hi there,
Yes I used Domperidone for a while. If your at your wits end and have tried everything else then yes I would recommend using this. I didn't need to take the full dose, as just half of what was perscribed, was enough to get my milk up. I was advised to take it as and when, not like an antibiotic taking it regularly. I had no side effects whatsoever. I did however miss a night feed whilst on this and got mastitus so try not to miss feeds or go too long between feeds if your breasts are filling up quite a bit!
There is a lot of controversy about Domperidone but personally I don't see the harm in trying it and if it works for you, great and at the end of the day, breastfeeding your baby is better than giving up and putting baby on the bottle because your struggling with your supply. Like you my lactation consultant tried and tried for months with me with lots of advice, expressing and expressing, frequently putting baby on breast, skin contact etc. etc. and eventually she advised Domperidone and told me to research it. My baby was so frustrated at the breast after the first couple of let downs, it was a nightmare. It worked for me.
Good luck, I hope things improve.

Helen - posted on 03/05/2011

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I used it to get my milk supply in. I had an emergency caesarian at 37 weeks. My milk supply was very limited so I used it for 3 weeks until my milk supply came in. I just stopped taking it. Hope it works for you.

Diana - posted on 03/05/2011

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I took it when I relactated to feed my son. I can't say if it worked or not because my supply was increasing each day already due to a regular pumping schedule, but I suspect it did help as well. I don't recall the dose but I do remember that I took eight tablets a day. When I later went off of it, I reduced by one pill a day for a week or two at a time. My decision to stop was not because of any side effects; I just found it inconvenient to continue taking, and I suspected I would produce enough milk without it, which turned out to be true.

Hope it goes well for you too.

Rebecca - posted on 03/05/2011

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I live in Canada and was given it due to remaining placenta and anemia, My milk supply has vastly increased. You have to pump, and often. I have been on it for 8 months, my daughter is 1o months. My reactions have been minimal- some hair loss and small bout of dizziness. It has been a miracle for us- I am not sure I could have BF any further. I tried herbs and the natural approach too. I also went to a lactation consultant.Fabulous results and still going strong on 3o mg a day. If you have questions, I am happy to answer them for you.

Melanie - posted on 03/02/2011

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Yes, and I LOVE IT!!! It works great! I had problems when my daughter was only a couple months old, my milk supply dropped so low that I had just about nothing and she was losing weight rather than gaining. I had been on Reglan but I could only take that for the maximum of 3 months, and the side effects were drowziness, that is one of the worst side effects!
I am still on Domperidone and I get it from a Compounding pharmacy, I have no problem getting it, It only costs $39 for 60 tablets. Hope everything goes well :)

Emma - posted on 02/28/2011

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what about maxalon (metoclopramide) thats has the exact same effect as motilium and is also a medication used to treat nausea and vomiting but has the side effect of causeing breast milk can u get that. the only difference i know is that i think it more of it passes into the breast milk than motilium but as far a research shows (and i am aware of) it does not cause any problems in the majority of babies. maybe u could access that easier????

Clare - posted on 02/28/2011

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I was told to wean slowly to keep my supply on an even keel, not going from one extreme to another and let myself regulate the supply while cutting down on the drug. So I just took away one pill at a time for several days. It really was a blessing and helped me get over a rough patch. My son was 11 pounds at birth and HUNGRY!!

Emma - posted on 02/28/2011

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REALLY??? OMG i can get a script from the doctor for 100 tablets with 5 repeat scripts as a pack is usually only 25 (its an authority script which means the government subsidises the cost through medicare dont know if you know what thats is but its but it means we get cheap to free health care and medication) and it only cost about $20 for 100 tablets from the pharmacy. i definitly think the formula companies might have something to do with that. i cant believe u cant buy it i dont know what i would do without it i would be devasted if i couldnt breast feed just because i couldnt access a pill that is proven to work

Alli - posted on 02/28/2011

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I tried motherlove & I actually did a post on how it worked --which wasn't well-- http://babyfooddiaries.blogspot.com I do know that it's just a happy accident that domperidone works for lactation as well. It's the same with Reglan, but I can't take Reglan with my history of seizures & anxiety. Domperidone has a lot less side-effects & I wish it were in pill-form in the US but our FDA is against it. Honestly, I sometimes wonder if the formula companies are lobbying against it, but that's the crazy, conspiracy-theorist side of me coming out :P I just think it's ridiculous that so many other medications are out on the market with far more PROVEN risks.

Danielle - posted on 02/28/2011

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I also had problems with milk supply, with my second child. After trying various herbs and other techniques, my peditrician recommended Domperidone, which I ordered through an online pharmacy. I have to tell you that I was a bit anxious about having to order a drug this way. However, I used it for 4 months, and was able to breastfeed my daughter until she was 1 without formula. I never would have been able to do that without the medication, as I was having supply issues related to work stress. It worked very well for me when nothing else did.

Alli - posted on 02/27/2011

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Yes I mean fenugreek, blessed thistle, nettle, goat's rue & fennel. Spent about $250 on all different kinds.

Amanda - posted on 02/27/2011

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The point to trying to wean off it (or at least reducing the dosage to being the lowest possible that gets results) is that it's not actually meant for producing breastmilk. It's used to treat sever nausea and vomitting as well as other gastro issues. The reason it increases your milk production is that it inhibits dopamine production (too much dopamine inhibits prolactin which is the chemical that causes lactation). When I was on it I took 1 pill 4 times/day and managed to reduce it to 1 pill 3 times/day without problems but I couldn't completely eliminate it until I was done breastfeeding. I've heard of some women becoming ill when taking it and I've heard of some babies getting upset tummies from it passing into the milk (usually only happens when taking alot of pills in a day). On another note, have you tried goat's rue? It's an irish plant that has been shown to drastically increase milk production even in adoptive mothers. I'm not sure if you can get it in health food stores but it's in the motherlove line of products (may have to order online).

Alli - posted on 02/26/2011

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I've been to the jack Newman site but didn't see any "real mom" responses about whether it worked or not. I really hope it does! Also, why do you have to wean off? Do you get indigestion or something? I really don't know. Never taken it. Thank you guys so much! Not a lot of reviews online :-/

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