Sonya - posted on 03/01/2011 ( 10 moms have responded )
My name is Sonya. I live in Ontario. I am happily married and a mother to one child. My son Matthew has Cerebral Palsy as a result of a traumatic delivery, in which his shoulders got stuck and when they finally got him out, they had to do a full resuscitation on him.
We spent his first 5 weeks of life in the hospital, and then the following 4 years in and out of the hospital so much I'd forget what it was like to sleep in my own bed!
Matthew was stable for 7 years and then in 2010, all hell broke loose and Matthew got very ill.
All I have to say is, thank goodness that I have a wonderful husband to support me, because without him I'd be in the hospital!
So, on top of Matthew's CP, we've also got a mic-key and he is completely NPO. Matthew is non-verbal (but very vocal), in a manual wheelchair that we push, has scoliosis, wears AFO's and has a chronically collapsed lung.
His bedroom is basically set up like a hospital room - we've got a tonne of equipment in it - lift system, hospital bed, suction, compressors, O2 & NIBP machine, etc...
Although Matthew can't speak, he is aware and understands what's being spoken to him and he can respond in his own way (when he feels like it). :)
When he was first born, I didn't think I'd be able to do it, but now I realize that all those years of struggle made me a better person. I wouldn't trade him in for anything... except maybe a house on a beach in Hawaii. :) LOL
I look forward to meeting the rest of you, and I hope that you will find this group useful.