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THE STRESS AND STRAINS OF CARING FOR MY DAUGHTER.

KAROL - posted on 09/15/2009 ( 1 mom has responded )

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HI, IM KAROL AND MY 19 YEAR OLD DAUGHTER IS DYING FROM POLYCYSTIC KIDNEY DIEASE. SHE ALSO HAS TUBEROUS SCLERSIOS, WHICH HAS CAUSED HER MANY OTHER HEALTH AND MENTAL CHALLENGES. LIVING DAY TO DAY KNOWING AND WAITING IS IN ITS SELF ENOUGH TO MAKE ME CRAZY, BUT SHE IS THE ONE WHO KEEPS ME GROUNDED. MANY FEELINGS AND EMOTIONS COME ALONG WITH THIS AND THEY ARE ALL NORMAL. I GUESS I AM JUST TRYIN TO FIND SOMEBODY WHO CAN RELATE TO MY SITUATION........PLEASE.

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Kathie - posted on 11/26/2009

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Hi karol, I'm hearing you. My daughter Miranda is 10 years old and her brain is shrinking by the day. So I guess I am also riding the rollercoaster. Not really knowing what tomorrow will bring or how I will be feeling. I am here if you need to chat. hang in there and cherish everyday.

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