Apraxia and potty training

Danit - posted on 03/17/2009 ( 13 moms have responded )

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Hi I am new to this group. My son is almost 3 1/2 and has been diagnosed with sever apraxia. He has been getting theropies for it since he was 18 months old. My big question is does anyone have any suggestions for potty training? His Speach theropist has told us that low tone is part of apraxia and he deffinatly has that. Could this be why he has no interest in potty trainning?



Please help. Should we just wait? Will he ever be ready?



I am just getting very frustrated.



Thank you,

Danit

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Anneliese - posted on 03/24/2009

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Hi Danit



 



Both my two girls suffer from speech apraxia, my first girl Abi, was ok to potty train, but my 2nd who is 3 years and 2 months is very hard to train, xxxx All the best  and dont give up.

Stephanie - posted on 02/26/2017

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Hey Danit, as a Mommy to a potty trained 5 yo with apraxia I cant tell you YES its possible...it will be a very long and hard road though. My son was not interested in potty training at that age either. I say around 4 they are usually showing more interest but you have to be pro active. I bought my son the book Everyone Poops and read it to him all the time. I had to just start sitting him on the pot all the time even if he didnt go. I would sit him after breakfast lunch and dinner and a few times in between. You just have to stick with it and it will work, it sort of has to become a routine. It does take a lot of your time but its worth it. My son is out of pull ups now which im very happy about. With him having apraxia I sometimes still have to remind him to go potty but he does it on his own now and the whole bit. Good luck! Stay persistent!

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Ironic_icons - posted on 09/23/2016

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I'm new here as well becuz I am DESPERATELY searching the internet for HELP! We NEED a MIRACLE! We were just told today that our (40 month old) grandson has 2wks to be fully potty trained or he's getting kicked out of his $4k/semester preschool he started 5 1/2 wks ago! (Yup that $4k is non-refundable!) The poor little guy is youngest in his class & has Apraxia w/sensory integration(processing) disorder & prob dyspraxia, ADHD & other "dys-" issues we wont know about til later. We've tried EVERYTHING! All summer long I used timers, naked days & got a great incentive system going. He was ALMOST there! But once preschool started & his mom found out she's expecting #2, he went BIG TIME regressive! I've read lots of info/blogs/etc...on Apraxia & we know that he can't always help it - he just cant feel it still sometimes. But his teachers think he's just being stubborn & so their understanding/patience/help they PROMISED BEFORE they got their $4k is gone. We need ER potty training ASAP & I just dont know what else we can do to try to help him in the ltd amt of awake time we have him ea day.

Shannon - posted on 02/24/2014

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I have a 3yr 8mo that will not potty train.she is dx with speech apraxia.she can say a lot more now like pee and poo.but doesn't seem to get the concept down to tell me before she goes.and when we go cold turkey and wear big girl panties she can hold it for 6 hrs.and then has an accident.and gthen becomes constipated and then we have a bigger problems.no clue what to do

Tara - posted on 03/18/2013

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Our little guy will be 3 in June and we suspect that he has apraxia of speech based on his symptom, but will have that confirmed next week. When he was 2 and a half, we found that he would sit on his potty every morning and go to the bathroom without any coaxing. At that time we did not get rid of the diapers because the apraxia affected his ability to tell us when he was wet or had an accident. After a couple of months, he did not want to sit on the potty, it was about the time we had our third child. My husband has found that setting up a portable car dvd player so that he can watch a movie has helped get him to the bathroom during the day. He also found that by offering a popsicle or some other kind of candy, this will also help Nicholas go to the potty through out the day. We now have him in underwear, and he still have frequent accidents, but the other day, nicholas came to my husband and said "wet" and pointed to his pants.....my husband thinks that maybe getting rid of the underwear and using jogging pants with an elastic cuff at the bottom of the leg might help, and his leg will get wet, rather than having the training underwear absorb the liquid similar to a diaper....might create more awareness

Joanne - posted on 04/16/2009

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Hi, my daughter is 4 years and 4 months. We have just been successful with toileting, of course there is still accidents. We thought that it was never going to happen, nothing was working so we stopped and let it go. We waited for things to settle in our house as we had just had another baby and we knew that can upset any child. We then started with a sticker sheet in the toilet. One cross every time she when to the toilet after three crosses she got a sticker. But we found this didn't work that well when we went out and she is so smart that she would do three little wee to get her sticker. But this does work with some kids, we changed it up abit and she got a sticker at different times of the day if she hadn't wet herself (e.g if she made it from lunch to after she had eaten her tea). We also found that the pull-ups were holding her back. Accidents happens, pre-schools need to work with you and be part of the process. She still wears one to bed but that another step we're going to tackle at another time.
Hope you can get something out of that.

Teresa - posted on 04/11/2009

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Okay, so I am not the only one who feels the struggle of potty training. My daughter is 3 1/2 and is in a regular preschool. The have been telling me to potty train her for the whole year, and I have been trying. She still wears a diaper at school and pull-ups at home. I am just waiting for school to be over and we are going to go cold turkey. Accidents or no accidents! I hate to push this on her, but she is ready. She checks out every loo on the way from mankind to timbuktoo and will sit there for 10 minutes inspecting the place. So, it is a game for her. And we are not giving in when we put underwear on for good! I am not sure if this is a successful way, but I am trying the next best thing! My best advice is to be sure that the child is truly ready and when they can say, "I need to go potty!" Audrey just recently started to say that, so I take her and make her sit. And she understands what to do. So that was our cue to push ahead on a more comfortable level! Hope this helps!

Suze - posted on 04/03/2009

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My daughter is almost 7(this month) and she has Apraxia of speech as well as low tone and PDD-NOS.  She did not potty train until age 5 &1/2 and although she has multiple problems, I felt the delay in her potty training was due to her speech and not being able to communicate her need to use the rest room/and learning the need to communicate that.  It took an awesome crew at her special needs pre-school to decide with me that it was the priority and we were going to get it done.  she trained in less than a month and it was less than 6 months later that she didn't even wet the bed at night.  Look for signs that are different than 'traditional kids signs for when they need to go.  For instance, my daughter puts her hands on the lower part of her belly when she needs to go and we are not at home where she knows where to go on her own.  It took me a little bit to recognise this was her way of telling me as it looked more like a sign of a belly ache.  Also, the biggest thing is to get your cholds whole team on board as that is the only way a child who can not communicate can get the consistance needed to learn to always go to the bathroom.  My daughter knwe how to use the potty for a couple years before I finally got a group that would consistantly work with her when she was not at home...that made the difference.

Brandy - posted on 03/30/2009

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My DD is 3 yrs, 3 mo and not potty trained. You're not alone. She has severe apraxia and will go on the potty first thing in the morning and then NEVER again until the next morning. She'll sit there for an hour in the morning and won't sit for more than a minute any other time of day. We too are blessed with priority preschool where she doesn't need diapers. The rest of the time, she's stuck with the 2 year olds b/c she isn't potty trained. Bummer. I'm definitely interested if people have advise.

Danit - posted on 03/20/2009

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Thank you,



It is nice to know that I am not alone.  Kim it is nice to know there are other kids out there with the same problems.  He has a week off of school next month so we will see what happens. 



Thanks.

Kim - posted on 03/19/2009

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My son was 3 last month.  He was diagnosed with apraxia when he was 18 months old, but he also has Velo-Cardio-Facial Syndrome (a genetic disorder).  He has no desire to use the potty.  He would sit in a dirty diaper all day if I let him.  He also has very low muscle tone.  I'm not sure if that is his issue with potty training, or if its a sensory issue.  Also, his occupational therapist has said that, as with his speech, there may be an issue with the connection between his brain and body. 



I don't pretend to understand and we definitely have the same frustrations as you do!  My son will sit on the potty for 10 minutes, get up and go in the other room and do his business there!  Thankfully, he goes to a special ed preschool so he doesn't have to be potty-trained.  That has been a blessing to us because he really enjoys going to school and its really great for him. 



I hope this helps!  Sometimes just knowing you're not alone helps.



Good luck and God bless!!!

Kim - posted on 03/19/2009

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My son was 3 last month.  He was diagnosed with apraxia when he was 18 months old, but he also has Velo-Cardio-Facial Syndrome (a genetic disorder).  He has no desire to use the potty.  He would sit in a dirty diaper all day if I let him.  He also has very low muscle tone.  I'm not sure if that is his issue with potty training, or if its a sensory issue.  Also, his occupational therapist has said that, as with his speech, there may be an issue with the connection between his brain and body. 



I don't pretend to understand and we definitely have the same frustrations as you do!  My son will sit on the potty for 10 minutes, get up and go in the other room and do his business there!  Thankfully, he goes to a special ed preschool so he doesn't have to be potty-trained.  That has been a blessing to us because he really enjoys going to school and its really great for him. 



I hope this helps!  Sometimes just knowing you're not alone helps.



Good luck and God bless!!!

Danielle - posted on 03/19/2009

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My son is 2 and a half and has been diagnosed with speech apraxia also. I am not havin trouble potty training him but im putting this down to him havin his older brother jack as influence. Its more trying to understand my son when he is trying to tell me something is where i am having trouble. He is at the age where he is now putting a few words together and this is only making understanding him worse. Its very frustrating. The only advice i would give u is he will do it when he is ready. Boys will be slower to train than girls

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