bad behaviour alongside apaxia...help!

Joanne - posted on 08/19/2009 ( 26 moms have responded )

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My 3 year old son has just been diagnosed with apraxia and is due to start speech therapy next week. I am having alot of trouble with his behavior in general. I have done some research and found out that ADHD is also common amonst children who have apraxia. Does anyone have any children with similar problems? I am feeling very worried about how it will all affect him as he grows up.

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Kathy - posted on 08/08/2011

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My son was horrible!! When we would send him to his room for his atrocious behavior, he would scream nonstop and urinate on the floor!! I didn't know what to do with him. No discipline worked. Finally I took him to a neuro-developmental pediatrician who diagnosed him with ADHD. I didn't believe it at first, as he didn't seem that hyper, but the dr said that sometimes it shows as aggression with boys. In time, I could see it, and they gave him a low dose of focalin, which helps him to focus. His behavior is not perfect, but he is more like a normal little boy now.

He is now almost 6, and his behavior has improved significantly. I had the same worries, so be patient, it will get better.

Caryn - posted on 08/04/2011

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I'm so glad to have Circle of Moms to turn to. I have had bad behavior from my 4 year old this week. He is becoming more defiant, aggressive and has recently (yesterday) started biting again. He doesn't have speech therapy or school this Summer due to the recent budget cuts and a change in our insurance. I try to keep him engaged but I think he craves more of that structure. I have attempted the time out and other techniques to control his behavior. They do not work with him. Maybe it is my delivery? He reacts by laughing and upping the ante. Nice, huh? My family and other parents with so-called "typical developing" children do not understand. I get stared at like I'm a lunatic when my child is having a fit. My husband grows impatient with me because I get so frustrated when all of my crazy experiments these so-called expert child discipline techniques do not work. I quit my job a year ago to focus on being a stay at home mom. I can't give up but sometimes I feel like a failure. Thanks for the support.

Donna - posted on 04/03/2012

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I am just "educating" myself on CAS. I have custody of my 4 1/2 yo grandson and I am trying to figure it ALL out! It's a job in itself. I have taken him to a developmental pediatrician, a neurologist for and MRI of the brain, EEG and genetic blood work, all came back "normal". I will see the neurologist on the 5th of April and get his "diagnosis and will let you know if he has ADHA. I believe he does. While looking for answers I came across this page. I think it might help you.....http://kidstalkback.tripod.com/kidstalkb... My email is dward126@yahoo.com. Let me know how it goes with your son and I am always here to talk to! I am working on a website to raise awareness of CAS. Once I get it up I will be happy to share it with you and would love any help or info you could add!

Bless you!

Donna

Danielle - posted on 10/18/2011

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Hi Joanne. I think people like to put a label on everything. ADHD can be a common factor in Apraxia but sometimes its just total frustration on the childs part. He knows what he wants to say but is finding it hard to get it across. Dont no about you but i think id be throwing some major tantrums also lol. My son Alex was diagnosed with apraxia when he was around the same age and i was on this asking for advice also. He is 5 now and its a lot easier. I can understand him more the bad behaviour is a thing of the past and he is such a happier and more confident child. I found even at 3 he was consious of the way he spoke or didnt speak. So I would give him at least another 2 years. I know its hard at the moment but it does get a little easier the older they get because it will also come with age. Hope this gives u a little bit of hope and good luck xxx

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Jenni - posted on 06/06/2014

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My 4 year old also has profound speech apraxia and ADHD. His behavior is also very challenging but I think that you all are taking a very selfish stand point on how it feels. Instead of focusing on how it makes you feel, take a step back a realize how frustrating it is not to completely process things 100%. You are getting pieces of things fly into your brain every split second and because of the complexity of the disorder you not able to sort and analyze the weight of importance. Its like doing a puzzle with puzzle pieces to OTHER puzzles. You put a little bit together but the rogue piece has thrown off everything and you feel like you are getting nowhere. Then add in the fact that there are only a few people who understand what you say if you decide to even make the effort to convey it in conversation.

Things are hard on us moms...but we have it easy compared to the kids. The best thing you can do is offer as much support as you possibly can. And come to a realization that your child is under construction. Stop saying things like "act like a NORMAL __-yearl old." What is normal? Your child is normal, stop TREATING them like they are not. Stop looking for it to be easy for you. To be perfectly honest....its not going to be.

Kimberly - posted on 10/17/2011

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Have you tried Nutriiveda?



Check out the Cherab Foundation website for apraxia and late talkers.

Julia - posted on 08/08/2011

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Okay, I am not too sure is Apraxia the same as Dyspraxia? I have googled it and it seems to be the same/similar. I have a 10 year old son who was diagnosed with it here in the UK about 5 years ago. He has struggled since about the age of 4 with his behaviour and we have seen numerous psychologists and counsellors and speech and language therapists over the years. However, (and I say this with my fingers crossed!) His behaviour over the past 6-8 months or so has been amazing - he is like a different child. Dont get me wrong, he still has a bad day every now and again, but he is much more reasonable and even tempered. What I have found out works for him is:-
1. Lots of physical activity (football, rugby, etc)
2. Loads of praise when he does something well
3. Seeing the counsellor once a week
4. Perhaps most importantly for him, being able to get away from me for a while! I know that sounds a bit weird, but being able to take himself off for a bikeride on his own, going to friends houses to play, anything where he can have a bit of independance has really helped him.

It does get better, hang in there!

Kathy - posted on 08/04/2011

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My son's behavior was out of control, so I took him to a neuro-developmental pediatrician, who diagnosed him with ADHD. At first I disagreed, as at times he can sit and watch a movie, etc. But the dr said that sometimes boys show their initial symptoms through aggressiveness. She prescribed 5mg of Focalin per day, which helps him to focus in school. His behavior is far from perfect, but at least it is in the normal realm, and he is not over-medicated either.

And btw...I do not always give him this medication. When he is home in the summer, he skips it frequently. Although I can see the difference, he is getting much better. It does get better, so be optimistic.

Anza - posted on 08/04/2011

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I know exactly how you feel. I use to feel like a failure as well until I realized that it has nothing to do with my parenting. And you know what - your friends and family with 'typical developing' children will NEVER understand. It is normal. Just remember that there are other moms like you who understands - like me! You are not alone.

Anza - posted on 07/20/2011

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Hi Joanne
My son is almost 5 years old and he has apraxia and ADHD. It is good that you're starting with speech therapy. There will be a lot of homework that you can do with him as well that you'll receive fromt he speech therapist. Please also consider Occupational Therapy. This was somthing that I did not know and no-one told me about it. OT is also important for apraxia and it can make a huge differance. It's almost making a bigger difference than the speech therapy. And obviously love your son. For now this is all you can do and you'll see that it will help a lot. Oh another thing to help with his apraxia. Push him to speak and expect him to speak. He will only give you what you expect from him. Don't respond to his gestures. If you can see what he wants, give him the sentence and ask him to say it back to you. Do this with everything. My son finally got space in a school where they teach deaf children to speak. They also take children with apraxia as their method works for these children as well. I don't know where you live and if you have a school like this in your country, but in South Africa we only have one of these schools and it is extremely difficult to get space. My son is saying 6 and 7-word sentences spontaniously at the moment. This is after 6 months of OT. He could only say 3 word sentences spontaniously in the beginning of the year. So if you work on the apraxia, it will get better (slowly, but surely). ADHD is something that will not go away, but there are ways that you can make it work for your child. My husband is also ADHD and has been taking ritilin which helped him so much that he's a computer programmer now. We recently started our son on ritilin and it's also making a huge difference. 3 years is too young to start medication though. The ritilin helps my son sit still and concentrate so now he can finally listen and learn. This is his first fair chance in life. So Joanne, hang in there. Love your son as much as possible as that is the MOST important thing. Pray for guidance and trust and know that your child will be ok. Good luck with your journey!

Kathy - posted on 04/09/2011

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My son is about to turn 4 and has apraxia too. His behavior gets notably worse when he is frustrated about not being understood. Sometimes it is helpful to say things "I know you are trying to say something, but I don't understand. I will try to understand if you try to say it again." I have also heard that apraxia often comes with a diagnosis of other neurological or neuro-developmental disorders so it can be difficult sort out.

Melissa - posted on 03/28/2011

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Hi I have a 4 year old that has Apraxia. He is in speech 4xs a week between pre school and out side help. He has behaviours that are very hard to deal with somtimes, I dont feel like its ADHD I feel alot of it is frustration!!! OK think of it this way , Put duct tape over your mouth and then be asked to say something ... now your getting questions and you no the answer but though you know the answers it comes out in sounds people look at you and wonder what your saying and you cant . This goes on for days weeks months years you cant speak nothing but a sound like ah ahahahah mmmmmuouououo oommm Dont you think you would scream take a fit throw somthing ? It takes time and now that he is going to theopy you will start to see the magic. It wont be over night it will take at lease a couple months for him to adjust to an OT but if he or she is good at what she does then she will be pataint . SIGN LAGUAGE is a big help!!!!!!!! He is a remarkable boy my son loves to tinker fix things and figure out how things work. I had a battle with his school thinking he had ADHD they wanted me to start him on meds I said no thanks and took him to a specialist and ran more test on him I will get the results soon I hope but she did say right now she really dont see ADHD most of it is sensory and frustration especailly when new things are presented to him. I hope this was helpful

Kathie - posted on 03/15/2011

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I get so confused sometimes. My so has been diagnosed with apraxia, he is 8 (9 in May). My son has been in speech since he was 4. He was diagnosed with what they call ADHD with Distraction. He is not always hyper and speaks well enough that others understand him. He was diagnosed with a lateral lisp before apraxia. He fits so much of the definition, especially the frustration. He has seen a therapist for 2 years and its not perfect,but it really helps. He changed insurance and we had to hold off on the therapist for 1 1/2 mon. and I notice the difference. His behavior has sufferred. He is really shy and doesn't join in a lot at school but is the perfect student. I think he tries so hard to be good at school that when he gets home, we have 1-3 melt downs. I just get so tired sometimes and think I can't do it anymore, then I think about how he is feeling. He is back in therapy and we are working hard. Get your son to a therapist that he feels comfortable with. You will be amazed how they can help. I wish I would have started him sooner. I try not to get upset in front of him because it just makes it worse. I wait til I have my alone time after all the kids are in bed and sometimes a good cry helps. I have come to the conclusion that a good cry really helps sometimes.

Kathie - posted on 03/15/2011

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I get so confused sometimes. My so has been diagnosed with apraxia, he is 8 (9 in May). My son has been in speech since he was 4. He was diagnosed with what they call ADHD with Distraction. He is not always hyper and speaks well enough that others understand him. He was diagnosed with a lateral lisp before apraxia. He fits so much of the definition, especially the frustration. He has seen a therapist for 2 years and its not perfect,but it really helps. He changed insurance and we had to hold off on the therapist for 1 1/2 mon. and I notice the difference. His behavior has sufferred. He is really shy and doesn't join in a lot at school but is the perfect student. I think he tries so hard to be good at school that when he gets home, we have 1-3 melt downs. I just get so tired sometimes and think I can't do it anymore, then I think about how he is feeling. He is back in therapy and we are working hard. Get your son to a therapist that he feels comfortable with. You will be amazed how they can help. I wish I would have started him sooner. I try not to get upset in front of him because it just makes it worse. I wait til I have my alone time after all the kids are in bed and sometimes a good cry helps. I have come to the conclusion that a good cry really helps sometimes.

Rice21 - posted on 08/27/2010

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My son was diagnosed with a severe form of CAS two years ago. He is almost 6 now and we’ve been struggling with his behavioral problems ever since he was 3 ½ to four years of age. He has been in an intensive speech program with 3 speech therapists’ for 4 years. At the time of his diagnosis, my father bought him a dynavox to help curb his frustration, but he doesn’t want to use it anymore.
While at school, he doesn’t follow directions and has violent outbursts when he doesn’t get his way. His behavioral problems are now getting in the way of his speech sessions and the therapists’ cannot proceed with him while he is acting out.
His neuropsychologist stated he is showing some symptoms of ADHD and recommended us to take him to an occupational therapist to assist with behavioral issues and get him into a parent child interaction therapy program.
As a mother, it is very frustrating to see your child going through a rough time in their life. We still need more testing done on Evan to see if he actually has ADHD and a sensory integration disorder. I’ve learned to be very patient with the process and to take baby steps towards Evan’s goals. I know one day Evan will get better with his behavioral issues as long as he is still making progress with his speech. His progress with CAS is very slow but at least he is making progress. Time will tell.

Kathy - posted on 08/25/2010

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My son (just turned 5 today) was diagnosed a few years ago with apraxia of speech. He only said a few words, Mama, Papa, and No, until he was 4. Now he says plenty, but we can't understand much of what he says. He is extremely shy and quiet around strangers but he has the most horrible behavior problems at home and around people he knows. As long as he is getting his own way, he is a wonderful, sweet and loving little boy. But sometimes he is mean, for example, he kicks my dog, and I send him to his room. He screams at me and throws things.

He has been in a special pre-K for 2 years, and is just starting Kindergarten. I am very worried about what will happen to him, as he is shy and stubborn, and does not seem to want to learn. He is showing signs of having an attention deficit disorder.

I was wondering if anyone else has experienced these problems with their child. It is so frustrating, I am afraid that he is going to be labeled as special education when he is really an intelligent boy.

Kathy - posted on 05/28/2010

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3 is too young to worry about adhd. Behavior issues and developmental delays go hand in hand with apraxia due to the ability not to be able to express his self. My son was recently diagnosed with having retained infant reflexes (resulting in some develpmental delays with his coordination). 10 % of the adult population also has these and the common thread is that these people are most commonly diagnosed with add/adhd. The retained reflexes make it physically stressfull for him to sit in a chair comfortablely for an period of time and concentrate on things. Have him checked to see if he has a retained atnr or stnr reflex.

[deleted account]

I know that I'm not a "mom" but thought that maybe I could help. I do have a son that has both motor apraxia and speech apraxia. He currently is 3 years old and we had bad behavioral problems with him as well. As some people have stated, this is due to frustration of not being able to communicate. One thing that has greatly improved the problems, is that we started teaching our son sign language, along with speech therapy. He has learned about 40 - 50 signs in about 3 months time. Keep in mind that it's not always about them saying exactly what they mean at all times, just that someone can understand them. This has greatly helped us and just wanted to let everyone know about this, as hopefully it could help other parents.

Jackie - posted on 02/06/2010

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My daughter is now 10 and has grown out of much of the behaviors. She gets therapy 5 time a week and is speaking very well these days. Hang in there. It gets better.

Danielle - posted on 01/01/2010

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Hi Joanne
I live in Ireland and also have a 31/2 half year old boy with apraxia. The system is the same as u no over here and im reading about all the american guys on here and they get so much help. Like u my Alex gets 30mins once a week with a speech therapist and i get so worried about it. Its just a joke the lack of care we get in our countries. This page is great though because there isnt much known about apraxia over here and its prob the same in England. The only info i get is by the internet and its all american sites which is no good to us!!

User - posted on 11/18/2009

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I wouldn't even think about ADHD yet! It is sooo common to have behavior problems with CAS. I know that my son seems very frustrated that he can't communicate so he does things like throw fits and hit. We've found that our OT has some really good calming exercises and we also use a weighted vest for when he gets really frustrated. Definitely something to talk to your therapist about.

Gianna - posted on 11/07/2009

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Kids with any speech delay or disorder are at risk to have behavior problems. This is due to frustration from not being able to communicate their thoughts or needs. This could also, as you said, be from another disorder. For instance, my son has apraxia but is also on the autism spectrum. Behavior issues could arise from either disorder. :(

The behavior doesn't have to last. Keep searching for ways your son will respond, different kinds of therapies and strategies. For my son, the PECS system, baby signs and playing with him more has really made his behavior problem simmer down. A lot of times, he just wanted attention.

Joanne - posted on 09/13/2009

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Thank you for getting back to me, im guessing you live in America? Things seem to be slightly different over here in England. I had to wait 6 months for Joseph to start his speech therepy, and at the moment he is receiving 30 mins a week, which really is'nt much use! Im not convinced its just apraxia that he has, but i've just got a referral to a pediatrician, so i might start to get some answers. Does your son have any sensory issues? mine does not like anything remotely warm going near his mouth?

Connie - posted on 09/12/2009

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im not sure about the adhd but the behavior comes along with apraxia i have 3 1/2 yr old son with this every day is a battle. they are just so fustrated from not being able to express themselves they dont know what else to do. im sorry to say but this will affect him for a very long time. in time you will learn how do deal with this well you have to bc you have to help him deal with it let him know everything will be ok and the therapist is gonna help us talk.the more therapy you get the better the results. my son has therapy 5xs a week 2 days is pre-k at lsu for language disorders 3days at a pre-k public school two of those day's are half day's to go to a private speech therapist that's me doing all that and makeing almost my forty hrs at work. it get's really hard but you gotta ask for help from family it's ok to do that i've learned that. and pray it does help both of you. i havr learned alot and have so much to say so if you would like to chat just snd a message back. thank's connie

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