Jenny - posted on 12/14/2009 ( 3 moms have responded )
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My 8 month old was full term baby, but went to the NICU for having trouble breathing. He is now at a 5.5 month development for gross motor skills. They were late in diagnosing that he had a milk protein allergy, so he is very small and trying to catch up on his eatting. Any recommendations on what I should do now, or do I just wait and see if he catches up. Could there be more going on? He is suppose to be starting pt soon.
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Jenny - posted on 12/28/2009
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We went to see an OT and she recommended that we go see a craniofacial surgeon. He has had a flat head on one side in the back, but the doctor told me it would round out. Well, it turns out he has Craniosynostosis, premature closure of the brain. This can cause motor delays. He might have to have surgury to open the skull. We are going to see a neurosurgeon in January. LISTEN TO YOUR GUT, I couldn't agree more. Had I waited until he was 2, it would have been a lot worse. Pediatricians sometimes just rush you in and rush you out. They don't take time to actually listen to your concerns. I fear skull surgery for my baby, but I just want him to get better.
Stephany - posted on 12/27/2009
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My daughter is 2 years old, but also had gross motor delays (some fine motor delays, but no as many). She was always VERY small for her age, only rolled over a handful of times, never crawled, and walked at 19 months. I was really concerned her whole life and kept telling her ped. that something was wrong. He assured me there was nothing abnormal about it, but I pushed on. I ended up switching pediatricians when she was 1, and her new ped. heard a heart murmur. By that time we were involved in PT through the Child Development Center. We met with a pediatric cardiologist and she was diagnosed with Atrial Septal Defect. We are now involved with a genetics counselor with the possibility of Noonan's Syndrome or Q-22 Chromosome Deletion Syndrome. Overall - she's catching up, but still a bit behind in where she's supposed to be. My overall advice for you is to TRUST YOUR INSTINCT! I think about how many times I just listened to a DR, and should have gone with my mom-gut! There could be something esle wrong, or he could just be slow. Talk with your ped about your concerns and see what he/she has to say....
Kelley - posted on 12/25/2009
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Hi Jenny. I think at this early stage it is too hard to know if there is underlying problems. Alot of children just develope at a slower rate. My son does have a chromosome abnormality and is developementally delayed. However he is reaching all of his mile stones just about 1 year later than most. My boy has been going to pt since an early age and it is good for them. the physio therapist will also know from their past experience if there may be a problem or not. Try not to worry right now and just concentrate on getting your child to progress thru his developement. Kelley
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