All Communities > Children with Developmental Delays > Any moms with children with Hydrocephalus?

Any moms with children with Hydrocephalus?

Sharlene - posted on 05/11/2012 ( 2 moms have responded )

3,896

239

Hello you wonderful moms I have a daughter with Hydrocephalus, and global devolpment delays and feeding problems brain damage.Just wondering if there's other moms in this community has children with Hydrocep[halus.If so come and chat if not still dropin and say hello.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms

2 Comments

View replies by

Sharlene - posted on 05/17/2012

3,896

239

Hey Jessica, Im your MOD for your community, Chole doesn't need shunting as yet but saw the Nuro team 2 weeks ago and from the visit before this one which is 3 monthly visits her head has not grown or her brain, So were organising nurology test to see why.The Hydrocephalus is okay fingers crossed she alspo has brain damage and global delays in different are's also in a feeding clinic and early intervention. Im from Sydney Aust, but thank you for that info.Hope to see you around xxx take care

Jessica - posted on 05/16/2012

47

86

Jakey had Hydrocephalus when he was born, and it somehow began to correct itself, so I really never got into the DEEP research, but i know it can be a very scary diagnosis.... where do you live? If anywhere near Johns Hopkins University in Baltimore, MD....GET IN THERE...they're AMAZING!!! Has there been any mention of a shunt to drain the fluid? Thoughts are w/ you..... keep strong! :) xoxo

Want to find out the opinions of this community?

Add Poll