Sabrina - posted on 04/02/2011 ( 20 moms have responded )
I need help, hopefully someone has answers unfortunately my son's issue are very long not sure if I can explain it properly and it lets see if it lets me post at least a summary of his problems, if anyone has any information please help. My son is 7 1/2 and in 1st grade he is finishing up. I was at conferences on Thursday and found out his Grade Equivalent is 0.5 which is Kindergarten month 5. He was kicked off an IEP on his 7th birthday in September. Since then we have been everywhere searching for a diagnose but everyone comes up short they say he has something but it is a mystery, He is severely behind on speech he gets speech 4 times a week at school and twice a week in private. He is also getting Occupational Therapy twice a week and is soon starting Physical therapy. He has very low muscle tone. He still has illegible writing, and is falling further behind in school. He has chronic ear infections since he was 2 weeks old. He has three sets of tubes so far and has a PIC line put in to help the infection. He sleeps at least 10 hours a day and still is very tired, The school can't put him on a IEP because he has no "medical diagnose" so instead my child is falling too far behind in school and isn't understanding his assignments. We are searching for answer but keep coming up short. Anyone else have these issues with your child or someone you know? I am a very desperate mother!