Anyone have these same educational issues with your child?

Sabrina - posted on 04/02/2011 ( 20 moms have responded )

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I need help, hopefully someone has answers unfortunately my son's issue are very long not sure if I can explain it properly and it lets see if it lets me post at least a summary of his problems, if anyone has any information please help. My son is 7 1/2 and in 1st grade he is finishing up. I was at conferences on Thursday and found out his Grade Equivalent is 0.5 which is Kindergarten month 5. He was kicked off an IEP on his 7th birthday in September. Since then we have been everywhere searching for a diagnose but everyone comes up short they say he has something but it is a mystery, He is severely behind on speech he gets speech 4 times a week at school and twice a week in private. He is also getting Occupational Therapy twice a week and is soon starting Physical therapy. He has very low muscle tone. He still has illegible writing, and is falling further behind in school. He has chronic ear infections since he was 2 weeks old. He has three sets of tubes so far and has a PIC line put in to help the infection. He sleeps at least 10 hours a day and still is very tired, The school can't put him on a IEP because he has no "medical diagnose" so instead my child is falling too far behind in school and isn't understanding his assignments. We are searching for answer but keep coming up short. Anyone else have these issues with your child or someone you know? I am a very desperate mother!

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Iman - posted on 09/16/2012

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My child. Is aslow learning child and he is no w. in grade 11 donor loss hope and use flash cards it will h ell a lot and believe e. in the

Iman - posted on 09/16/2012

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My child. Is aslow learning child and he is no w. in grade 11 donor loss hope and use flash cards it will h ell a lot and believe e. in the

Iman - posted on 09/16/2012

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I need help my son is a slow learning child .he is now in grade 11. I am suffering while teaching him because he is also a displacing child .can any one help me with an advise.

Kristen - posted on 11/10/2011

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Check out mel levine's book " A Mind at a Time"., look for nonprofits and support groups, and keep a journal of his hardships, statements, and other small behaviors that may seem isolated, but taken together, may suggest a direction for strategic remediation, if not a diagnosis

Angie - posted on 11/04/2011

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My son is 7 and in first grade and he is in IEP for speech. I hope you find out what's going on.

Bridgette - posted on 10/31/2011

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Tell the child to line up things in a row all the time anything to get the a diagnosis. Why do they recommend OT? diagnose on that?

Mary - posted on 10/25/2011

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I just had my son's conferences last night. He has issues with reading and speech. we have had him tested for his speech, but he doesnt score low enough for the state to put him in a speech class. One of the things his teacher told his dad and i to do, is to read to him, practice sight words, buy flash cards, and work with him for an hour to 2 hours a night. i hope this helps some.

Beatriz - posted on 10/18/2011

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My children are too little to understand your situation completly, but is there any way you can just stop for a while and focus all your efforts in finding a diagnosis for him. set a time frame, no school, no work. it will apy back in time and both of you deserve it. My kindest regards.

Melanie - posted on 10/13/2011

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Kennedy Krieger is a great referral. Also, have you had him checked for mitochondrial disease as the root cause of his hypotonia? It's not that well known, but the symptoms you list sounds like some of the mito kids we know locally. Finally, what state are you in? Different states have different rules and supports, but in Georgia where I live, we have parent advocates trained to help you deal with the schools. What you're dealing with isn't right...if your son's not able to perform at grade level academically, it's the school's responsibility to meet him where he is and educate him to his potential - that's the IEP. The medical issues are dealt with in a Section 504 plan - he can have either or both, depending on his unique situation. Good luck, and keep fighting. The other folks who referenced WrightsLaw were definitely on target.

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I do beleive you need medical professionals looking further into this. Get second opinions from other Pediatricians if your son's Pediatrician is stumped. Get referalls to specialists (pediatric specialists) and see if your son might have something that can be identified genetically. There has to be an answer. It's just that you might be looking for answers from the wrong professionals. I wish you the very very best!

Rowena - posted on 10/04/2011

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Hi Sabrina,
I hear your plight, whilst I cannot say that I am in the same boat.
I googled some of the symptoms that you describe above in a desperate need of wanting to help you any way that I could. I found this site called Intergrated Learning Therapy (http://www.ilt.co.za) and maybe it can offer some guidance with your son.

All the best, you are in our prayers

Rowena

Robyn - posted on 09/30/2011

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The school district can test your child and they can that he needs an IEP. A medical doctor does not have to give a diagnosis in order for your child to receive an IEP. My daughter was given an IEP by the school district every time she was tested. That is why the school district employs individuals to give tests.

Lily - posted on 09/24/2011

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Just spend time one on one with him, talking and listening. If he watches TV or does computer games it's good to slow down on those and just spend time with him, reading to him, talking about the stories you read to him, and affection. He needs affection and lots of encouragement. You may consider Home schooling him for awhile. Do things with hands, like clay figures, sand play, pledo, duplo, lego games all very good. he needs lots of encouragement. He may carry a label at school already that's why I recommended home school for awhile.

Jeannie - posted on 09/19/2011

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yes i have 4 children all have learning disabilities have u ever heard of kennedy krieger insitute i took my one child there she had 2 sets of tubes so far and speech problems she was dianosed with adhd and odd my son has adha bipolar and autism speech mild hearing lost he had poor muscle tone in his hand and that was called hipertonia my youngest has speech and poor muscle tone he was dianosed with Cerebal palsey if u do not think the doctoer is helping take him to another doctor take him to a child audilogist they can do a mri of his brain this is how my son was dianosed with CP that can affect the learning my other son they say he all these things wrong so i took him to a child phycolagist u may need to try that and they wanted me to take him for ganetic testing for something called nonanns disease but start with the brain call a audiologist they should help u

Robertagirl - posted on 09/13/2011

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Got to free website :Wrightslaw" it will help book From Anger to Advocay, step by step to understand special education law, everyone has a right to an appropriate education, ask why my child is not learning? Call md and tell them; write a letter to the superintendant of school and or to the department of education, i had to tell them I would go to the press, tv. keep notes of everyone names and times you talked to them, someone will listen you may have to tell your story everyday to anyone who will listen. It took me years to get my son help and I still think he needs morel do not give up keep working at finding what helps. call your senator, your mayor anyone they are all paid to work for us the people who pay their salaries they need to be held accountable and do the right thing. Wrightslaw will help go to the library and get the books or ask the library where you can get this info,

Kathy - posted on 04/13/2011

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Another note. Find out what private schools specialize in special learners. Contact them and find out who they recommend as advocates. The advocates that are successful with placing kids privately at public expense really know their stuff.

Kathy - posted on 04/13/2011

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Great website for IEP and school law info is wrightslaw.org In your state there is also a local organization that helps parents advocate for their children. My son is having similar issues as yours. Don't feel alone. But I had to hire an advocate to deal with a school district insistent on violating my son's right to an education. Our organization here in Arizona is Raising Special Kids. We also have the Center for Disability Law. I believe Wrightslaw has a list of places you can find help. I have been reading his book From Emotions to Advocacy. Lots of fantastic easy to understand info for how to get started with your school and how to keep good records. We also just started with the Anat Baniel Method which has helped my son with all the tension associated with the low tone issues. Hand writing has improved but we are teaching him to type and I am looking into getting him an Ipad. There are so many useful apps for kids with motor difficulties that limit the ways they can provide feedback on there learning. Regardless of whether you have diagnosis they can not deny him a Free and Appropriate Education (FAPE). Find help right away because I believe your school is dead wrong.

Tina - posted on 04/12/2011

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My grandson is 6 and in kindergarten. I wish I knew how to help you with this issue. I cannot imagine what would happen to RyLee is he didn't have his IEP. His only diagnosis is global developmental delays. He tries really hard at school, but he is behind the others in his class. He is very tiny and has low muscle tone. He gets, speech, PT, OT, and readin help. When he starte in Sept. I couldn't imagine him reading, but he is. I do worry about 1st grade because I know it will get harder and harder for him. I do have one suggestion, fight the Commitee for Special Ed at your school and call your son's doctor and explain your situation. Stand up and fight Mom...I don't know you, but I know you can do it.

Stacey - posted on 04/10/2011

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If the school board won't do anything, go to the state. There are state advocates for the kids and the school district has to help.

Laura - posted on 04/07/2011

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Contact the board of education in your state. Tell them what's going on with your son and how you haven't been able to get a diagnosis since the docotr's are stumped. Tell them your concerns with his school and how they took him off the IEP even though he clearly needs services. If they don't offer to help and resolve it in a very short time, then you will have to take legal action against the school district.

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