Amy - posted on 02/10/2010 ( 21 moms have responded )
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Does anybody have a child that cannot cry tears? My 16 month old never cried tears until she went on the ketogenic diet then suddenly she cried twice since then nothing. She cries and bawls but no tears come out. She has global delay and myoclonic seizures. I did read a bit about autism cry without tears laugh without mirth but when she laughs it is the best sound in the world all giggly and girly.
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Amy - posted on 11/21/2012
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I ordered them online. I live in Canada. I hear that in the states you can get them over the counter. no prescription is needed
Gemma - posted on 11/20/2012
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Are you still using the B12 patch? Where do you get them from, please? Does your doctor have to presribe them? Thanks
Amy - posted on 11/14/2012
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no diagnosis. The closest I could find doing my own trial and error was the vitamin b12 patch. (It worked for both my child and another who never cried tears)
Louise - posted on 11/14/2012
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Hi Amy, did you ever get a diagnosis on this? My son does not cry tears either.
Amy - posted on 09/18/2012
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How old is your little one Gemma?
Gemma - posted on 09/17/2012
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That's v interesting about the folate I will look it up. Re diet, we have seen some improvements with an anti-inflammatory diet (other symptoms), so it is well worth looking into. I would suggest The Gut & Psychology Diet as a first read (i have read a lot now!) as it is written for normal people to understand how diet can make a massive difference to all sorts of problems. It might not have every answer, but it can help point you in the right direction.
Don't worry about being in the middle of nowhere - you can still make a difference.
Re tests - I am not sure on these, but am currently researching!
Amy - posted on 09/17/2012
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no her b12 was normal BUT her folate was through the roof. 5000. I pointed this out saying a high folate level can mask a vitamin b12 deficiency but they just told me it wasn't the case. No she was never treated or tested for parasites. how is this done? I have thought about trying to get her stomach health up (she has always had diarreah her whole life) but the most i have done is feed her yogurts with probiotics. I plan on figuring out how to do that next. Something to do with her intrinsic factor and being able to transport. What I need is a medical doctor with an interest in hollistic health.
Good luck where I live in the middle of nowhere. :(
Gemma - posted on 09/17/2012
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OOoh v interesting about the b12 - did she have low levels then? Has she ever been tested or treated for parasites? I have read that they can deplete you of b12. BTW do you know what the test for b12 levels was. My DS has allacrima hence my interest. x
Amy - posted on 09/17/2012
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no, I will research histamine levels. She sleeps well and yawns. She is 4 now and still lacks tears. Interestingly I tried vitamin b12 sublingual drops and patches and she poured tears for 2 days. I mentioned this to another mom and her son poured tears too! I brought this info to docs and while they did finally test her level their final answer was we've never heard of this. Final answer. GRRRR! Right now we have her in a study at Harvard/boston Children's for whole genome sequencing so hopefully they will find something. PS as to earlier post she was tested for autism and as she spent the whole hour trying to kiss the tester they said she 100 per cent is not autistic. Her lack of eye contact is from having delayed visual maturation. And as another update she is Walking! what a sweet girl I have ;)
Gemma - posted on 09/13/2012
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Have you thought about histamine levels in the brain as a cause? What about other symptoms like lack of yawns, unable to settle to sleep, only sleeping very lightly - does she have any of these?
Lisa - posted on 06/29/2010
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Good luck! Keep a positive attitude!
Amy - posted on 06/28/2010
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I took her to see the mental health specialist three months ago and she is on the waiting list to test her for autism. My thoughts are that is what they think. She certainly displays some autistic tendencies. Her eye contact is poor but her emotional is up to par. She loves kisses and wants to be held quite a bit. Here we only have four spots for this entire end of Nova Scotia so our chances of getting an autism team is very low. :(
Sarah - posted on 06/25/2010
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Amy, I will say that she can definately be tested for autism now. As with most things, early intervention is key! She is not too young to be tested and not too young to be diagnosed either. For months my son's doctors told us that his odd behavior was only as a result of his being a premie, having had surgery, trying to catch up with peers, developmental delay, etc. At some point, sometimes you have to remind the doctors to quit making excuses for your child and test them!!
Amy - posted on 06/25/2010
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I have, Ava doesn't seem to have any other autonomic problems so that was ruled out for now. I booked an appointment to have a hystamine test done. If it flares she doesn't have it if it doesn't she does. Simple.
Lisa - posted on 06/24/2010
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have you ever heard of Familial Dysautonomia?
Julie - posted on 04/04/2010
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Cherish, just wanted to say that my son's thumbs don't bend either, you physically cannot bend them beyond a certain point, our doctors say they have never seen it before either! Just thought I would mention it, so we both know our children aren't the only ones in the world as our doctors would lead us to believe! Amy, sorry to have taken over your post, I just read Cherish's comment and felt I had to say!
Amy - posted on 04/02/2010
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She never had tears although she saw two opthamologists and they said her ducts were not blocked but also were not dry. At 16 months when we first started the ketogenic diet she cried tears (one) for the first time ever. Then not again till 18 months (once) and now four times in March. So they are not blocked but I am sure there is a connection that will help to diagnose her. It would narrow the list dramatically if only the docs would believe it was a symptom.
Amy - posted on 02/12/2010
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I know, and I will keep trying. They are starting to look at me like a thorn in their side but I plan to be my daughters voice no matter how annoying I am. I am also trying to get her tested for autism so that she can start services related to that but her neuro said that although if Ava wasn't delayed that she would be extremely worried about her autistic behaviour she isn't now because of her delay. I think i'm just going to ask my family doc for a referral. But Ava is only 17-months and i'm not sure if they even do this.
Does your daughters joint problems cause her trouble using her hands? I know this sounds weird but you might want to ask a dentist/orthodontist next time you are in. They are always xraying peoples hand joints to see how long of a growing period is left.
Amy
Cherish - posted on 02/12/2010
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My children are always a-typical with things.
I hate telling the Dr what I think is wrong and they act like I am crazy,but eventually they figure something out,then they say "oh that's interesting,usually kids with.... don't have.... but I guess yours do"....lol
Medicine is a practice and Dr's are always learning.They do not know everything.
My daughter has some weird congenital thing where her thumbs and big toes do not bend at all.
We took her to a hand and foot surgeon that specialize in rare things at Childrens hospital.
They have NO idea what is causing it,they say "we have never seen this before".Her joint space is open,but are rigid,we tried serial casting but that was not helpful.
Anyway...
If you KNOW something is not right,you are mom and moms know.
Amy - posted on 02/11/2010
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Thank you, I have been trying to tell my neurologist that she has alacrima (it would help to narrow down the search) but she says that because Ava's eyes are moist that she doesn't. She has cried about four tears twice two months ago. I don't know why or what was different. The opthamologist says that she does not have blocked tear ducts or alacrima and not to worry about it because her eyes are moist. I even called again to explain more but they don't seem to be worrying. I am thinking more diagnostic because they don't bother her. It doesn't seem that common. Your emedicine definition says it could be complete lack to hyposecretion. So I will be armed with this next time I see the neuro. Thank you.
Cherish - posted on 02/10/2010
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Does she have a blocked tear duct?
Has she ever had tears?
If not then maybe she has:
Alacrima refers to a wide spectrum of lacrimal secretory disorders that are mostly congenital in origin. Symptoms of these disorders can range from a complete absence of tears to hyposecretion of tears; symptoms of rarer disorders include a selective absence of tearing in response to emotional stimulation but a normal secretory response to mechanical stimulation.
http://emedicine.medscape.com/article/12...
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