My son was recently diagnosed with Sensory Integration Disorder...help...

Tanya - posted on 10/13/2009 ( 14 moms have responded )

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My name is Tanya. I joined Circle of Moms just for this reason! My son, Ethan, was just diagnosed with Sensory Integration Disorder. I don't really understand it...I feel as though we were just thrown into this with little information. We have done a ton of research and I am still kinda lost. I think it would be better to talk to Mom's with children that have the same disorder. Ethan is also about to be tested for autism...any suggestions?? He throws 10-15 temper tantrums a day...sometimes over nothing...I don't know how to deal with it. Any help is welcome!!!

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Lisa - posted on 11/21/2011

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Hello my name is Lisa! I also joined this group for support. My daughter has sensory disorder and struggles with the feelings of things. Mostly different types of materials, which makes every point in life lately so difficult!!! :( I've done research and she's started therapy in which she does good there, but when we're home to practice the same steps she does willingly there she just doesn't want to cooperate. I'm very worried and stressed over this and don't know what else to do!!! Any advise or just someone to talk to is greatly appreciated!!!

Sheryl - posted on 01/20/2010

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oh jenny another thing about the sippy cup i make sure all alike in my house! i get the one that don't have any design on it. different colors but the same type. in my house it helps on the break downs! hope that helps some!

Sheryl - posted on 01/20/2010

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HI, jenny i seen your other question. what i do for my son is i give him a choice when that happens. but only between two. i make sure all the other sippy in my house are put and he can't see them. that may help! if you would like a list of tips i can get you one and email you one! not problem for trying to help that what we are all here for. i mean i just ask for ideas my son doc. wanting to get my son also tested for autism. cause i don't want my son just writen off as a child with autism. but i hope that helps some. good luck!

Carrie - posted on 01/20/2010

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Hello everyone! Both of my kids are SPD. (FUN!) My son, Aidan, (almost 8) is sensory defensive and my daughter, Ryleigh (almost 6) is sensory seeking. You can imagine the situations this creates. Luckily, I am able to stay home with them and try and tailor their routines to their needs. I cannot stress how much having a Sensory Diet helps! In the year since our OT helped us set one up, Aidan has started to be able to touch more textures, although not much has helped his picky eating. It has helped him to be able to use his "exercises" to calm down and avoid some of the tantrums. Ryleigh is still learning how to get her input from appropriate places but the diet has started to help with her too. Anyone can email me or contact me here if you would to talk more!

Jenny - posted on 01/18/2010

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Thanks so much Sheryl! I will definetly get an ark grabber. We are on the waiting list for the OT. Let me ask you one more question. She has a break down everytime I give her a sippy cup. It is never the right one. She will just throw it at me. Any ideas on how to prevent this from happening? Thanks again.

Sheryl - posted on 01/18/2010

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i seen that you said your son has nothing to calm him down. for my son hugs work but tight hugs! he always comes to me for them. oh and for jenny tinnin. what we use with my son it adult chew thing. it called ark grabber. that way it wont mess up his teeth and it well be able to take all the chewing. i also seen that you said that throws long tantrums at night. what i do with my son is do is let him jump and then we give him a bath right be for bed time. does your daughter see a thapist? they may be able to help you even more with tips. my son gave me a list of stuff i can do with him.we get help through early intervetion. every county should have one. one book that help me find way to help my son was the out of synce child. it has tips in it. if you would like anymore info i may be able to help. hope that helps!

Jenny - posted on 01/17/2010

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My daughter just turned 2 and has sensory processing disorder. She is a sensory seeker. I need help with how to handle the tantrums that are normally over nothing. She is very oral, so we got her an electric tooth brush. She spends hours brushing her teeth and playing in the water in the sink. She throws hour long tantrums at night, and only takes a nap if we ride in the car. She bites anything and everyone. If she doesn't have her pacifier, she will bite her hand. She jumps off of anything and she is fast, so you have to watch her 24/7. She also loves to spin in circles. I would love any advise!

Heather - posted on 01/11/2010

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Quoting Tanya:

My son was recently diagnosed with Sensory Integration Disorder...help...

My name is Tanya. I joined Circle of Moms just for this reason! My son, Ethan, was just diagnosed with Sensory Integration Disorder. I don't really understand it...I feel as though we were just thrown into this with little information. We have done a ton of research and I am still kinda lost. I think it would be better to talk to Mom's with children that have the same disorder. Ethan is also about to be tested for autism...any suggestions?? He throws 10-15 temper tantrums a day...sometimes over nothing...I don't know how to deal with it. Any help is welcome!!!



Hello My Son has Autism and major Sensory Issues, If you need any questions asked please do so. I found that his sensory only get better with help from the school and  him doing what he needs to help understand what his body needs to feed on.... Ask me any questions I might be able to help or at least direct you in the right direction.



 

Sheryl - posted on 01/09/2010

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hi my son was just not to long ago told he had that too. but they called it sensory processing disorder. there's a book has helped me understand what it is a little bet more. its called the out of sync child. it helps with recognizing and coping with sensory issue's! my son see occupational and speech therpaist. it through a program called early Intervention. they have been work with my son know for about a month or two. i see a big change in my son. plus, they gave me and my husbend a list of stuff we can do with him to help him. if you would like more info on tips. just email me and i well be more than welling to help out with some info. don't worry when i first found out i felt so guilty about it. cause i'm with him 24/7 and i carried him. i think it may have happend cause during my son birth my heart rate was dropping and so he lost air flow. but it well be ok just try to reach out for support from others like. i talk to my husbend and family about it. i still feel guilty but i try not too. i try to focus on helping him first. me focusing on helping him is taking some of my guilt away. you well get through. good luck!

Geraldine - posted on 01/04/2010

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hi there, my son Ethan has just turned 4, and i took him in August 2009 to a Paediatric Neurologist to have him checked out. Thank goodness he is not autistic, but he has allot of trends that goes hand in hand with autism. He is impossible with his older brother of 6, and putting him to bed is Crazy!! he fights all the time, and is so indecisive, then i must stay with him and then i must not. Being overly tired does not help and crying and fighting for 2 hours every night, even in the early morning hours is getting very exhausting. He has been with me at home for the past year, and is going to school in Jan 2010 - i am having sleepless nights, because i dont know how he will be, his social skills are also not where it should be. He has low muscle tone, and is about 6 months behind from his peers. We do weekly O.T and Speech. I trust things will improve soon.

Jennifer - posted on 11/06/2009

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Hi Tanya, my son has it too,. he is doing great now.. he will be 4 in March. He is in a special ed preschool with wonderful teachers and OT therapists that understand his challenges.. it can be over whelming.. but they adjust.. a lot of us had this as children.. it just wasn't given this name.. "Learning Disability" is as far as the label went.. now there is so much more understanding on the subject and so much more help... A GREAT Book "Sensory Processing Disorder...the Answers." get it today.. it is great.. it explains it all in laymens terms.. Let me know how you make out ... temper comes from frustration as well as them being so sensitive to so many things.. Keep the faith.. they do improve.. you are lucky they figured out what his issues are so you can get proper help. Contact me anytime if you have any questions.. best of luck. Jenn

Robin - posted on 10/30/2009

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Hi Tanya, I'm a dental hygienist with multiple young patients with sensory issues. Also, my two year old specifically has oral sensory issues and a speech delay. We've gone through tantrums as well. We also have a speech language pathologist and an occupational therapist. Many of the tantrums at my house were out of frustration due to not being able to communicate. He also will only eat 5-6 foods, no kidding. Most of my experience is oral/speech related but let me know if I can help. Hang in there. It's a lot to digest. Robin

Tanya - posted on 10/21/2009

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Thank you for your help Meredith! Ethan is 15 months old...he throws fits like crazy!! 10-15 a day...sometimes more...it is comforting to know that someone else has this same disorder. He has an occupational therapist that comes in once a week, and being that it just started, we haven't seen any improvement. It is sometimes frustrating...we haven't gotten to the point of x-rays yet, but I fear that we are close!! I am having problems with punishment because he seriously doesn't care what you take away! And when he is throwing a fit, nothing calms him! We are working on that with his therapist though! If ew find anything that works well, I'll let you know! The only toys he seems to like are hard and loud. Is that the same with your daughter?

Meredith - posted on 10/17/2009

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Hi Tanya! My daughter has this too! When she was an infant she never cared for soft, cuddly things, but it wasnt until she was a year old that I started to realize there was something wrong. She would hurt herself (seriously, we have to get x-rays done) and have NO idea that she was hurt or bleeding. She is 6 now and has learned to notice when she is hurt, but we still have to be careful that she isnt washing her hands with scalding hot water or wearing a t-shirt outside when its snowing and stuff like that. Good luck with punishment- a smack on the bum sure doesnt work for punishment with these kiddos! Haha. How old is your son? I get my daughter HARD toys, and she knows that she will loose her favorite toys & other priviledges if she doesnt behave. The doctors told us that in normal people our nerves 'talk' to each other to tell our brains when we are hurt, but my daughters nerves only talk to each other a small percentage of the time (meaning on occasion she does feel pain). She doesnt have severe sensory integration disorder (she has moderate, and there is mild as well)- if her arm was cut off or something she would know. Anyway, I'm here to talk if you want! Good luck!

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