Elizabeth - posted on 08/21/2010 ( 2 moms have responded )
My precious angel is almost 5 years old. We have been through more tests than I can count, genetic, neurological, etc. We have been to developmental pediatricians and no one can find a diagnosis for him. All I know is global developmental delay. I first noticed a problem when he would hyper-extend his legs within the first couple of months of his life, which was due to low muscle tone. He was significantly delayed in everything...and still not potty trained. He can follow many directions and understands much of what I say to him. He can follow simple directions. He has some slight sensory integration issues...example-stepping from concrete onto grass. He doesn't mind physical contact...he loves it. He is VERY loving and full of personality. He would hug anyone who came up to him. Other than requiring glasses, he does not have any other medical problems. (He had problems swallowing when he was a baby and we had to thicken his liquids, but he has since grown out of it). They say he does not have autism. He goes to school at a developmental center and receives OT, PT, and Speech. I have a WONDERFUL family and friends, and although they want and try to be very supportive...and are, they don't really understand what I am going through. No one does unless they have been through it. My husband had been in denial and just recently accepted the situation. He tries to be supportive, but he is a man who holds alot in and always tells me my son will be fine. I would love any feedback from anyone...especially someone who may be dealing with similar issues.