Emily - posted on 04/13/2009 ( 8 moms have responded )
i have 2 children (and 1 on the way!) my eldest bethan is nearly 7 and is well and healthy but my youngest freya has had problems since birth. it took until she was nearly 8 months old until my health visitor accepted that she had problems we were reffered to a peadiatrition urgently. freya had all the normal tests mri scans, emg, blood tests. but all came back normal. freya is classed as having global developmantal delay, hypotonia, plagiocephely, microcephaly, pectus evactium and epilepsy aswell as major feeding issues and regular chest complaints ranging from chest infections to pnemonia. she is currently not walking or talking and understands very little if anything she is still on mashed up food as she chokes on anything else. i have times of finding it hard not knowing what the future holds for freya but we take each day as it comes and are so thankfull for every day and every new thing freya acheives however small. its great to know there are other people out there facing similar things.