Questions to ask dr's?

Heather - posted on 01/27/2010 ( 7 moms have responded )

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Does anyone have questions that I should ask at my daughter's dr appointment? My daughter is 3 with a gross motor delay. We do not have a daignosis and her muscles have low tone and are slow to build. We are going to the childrens developmental clinic and just wanted any advice on questions or test I should ask about.

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Jessica - posted on 03/07/2010

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If your daughter is already in the early intervention program it can be very helpful for the Dr if you bring her most recent evaluations and goals. Also, in the past I have asked some of my son's therapists to write a letter to the Dr with any of the concerns they have or things they may have noticed. My son still has no diagnosis (he has a bunch of symptoms) that explain his delays and lack of progress, but his Dr is getting close. Good luck!

Stacey - posted on 02/21/2010

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Also ask if there are any support groups around for you to join. Yes talking on here helps, but it's always nice to have an actual person to talk to. There are a few in my area and I am thinking of joining one. My son is 5 1/2 and has low muscle tone. He is in kindergarten and the children are accepting of him. Some of the parents aren't. Also ask if there is anything else you can be doing for her. I ask my sons therapists all the time what I can do. The one thing they say to do is make sure that your child's doctor knows everything that you do about her therapy and if she is seeing any special doctors. Always keep the doctors informed.

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Definitely ask for therapy evaluations....PT and OT may both be helpful. Your daughter will need to build up her core/proximal muscles in order to gain both gross and fine motor skills. My son is almost 5 and has been in therapies since 21 months for global developmental delay including low muscle tone. He is doing fantastic! Take advantage of any therapies that she qualifies for and any programs available to help you with the costs. Good luck!

Holly - posted on 01/27/2010

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Many many questions..make sure you do research now to save you time later...My son is delayed severely in the gross motor skills...He actually just went throught his first of two surgerys to correct his ankle joints...we were hoping that these would be his last and would fix the problem but when the dr got in there she found out he will need more later in his life. anyway,,,I will tell you more about my situation later...as far as yours goes (btw my son also has low muscle tone)





You need to find out where exactly is the focus of the delays...for example in our situation it was in his legs mostly...ask for x-rays of her hips...they can be misaligned...kneecaps and not quite be big enough..or like in Adam's case there is a space in the ankle joint that was not quite right. If this is the case ask for a Podiatrist they are about the only ones that will be aggressive enough to give you real solutions.



Always go for PT. Ask for and Orthropetic (did not spell that correctly) and again ask them for through x-rays. Ask for blood tests...there are some generitic disorders that cause a delay in muscle growth and/or can eat away good muscles. please let me know what you find out ...

Heather - posted on 01/27/2010

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Thank you Erica, my daughter is in our Early intervention program. That is where she receives free pt. We love the program.

Erica - posted on 01/27/2010

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I don't know your situation, but my son is 2 and has delays in every area they can test for. Our pediatrician recommended him for a state program for children around your daughter's age. In Missouri, it's called First Steps Program. This program will provide physical therapy and anything else needed for little to know cost.

Erica - posted on 01/27/2010

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I don't know your situation, but my son is 2 and has delays in every area they can test for. Our pediatrician recommended him for a state program for children around your daughter's age. In Missouri, it's called First Steps Program. This program will provide physical therapy and anything else needed for little to know cost.

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