There is something wrong with my son but NO ONE wants to help!

Heather - posted on 03/12/2010 ( 19 moms have responded )

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I have a three year old son who is developmentally delayed in speech and cognitive development. He has 40% intelligible speech (according to them). Just recently he has started having horrible rage fits when I tell him no. He has knocked over the playpen (with my 17 month old in it!!), he has knocked over a short bookcase and his chest of plastic drawers in the boys' room (it holds and sorts their toys). He has started biting himself to the point of bleeding. He only sleeps about 6 hrs a night but not straight through. He hasnt' gained any weight in the last year cause he nitpicks at his food even if it is something he likes. The other night I told him that he couldn't have any yougurt cause it was late at night and he took the fork and placed it above his head like he was going to stab me! His doctor keeps referring me to a behavioral health clinic here in town but they are booked solid until mid may. He doesn't qualify for a psychiatric hospitalization cause he's so young. I'm losing sleep (and my mind) over what to do. Any suggestions?

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19 Comments

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Ashley - posted on 01/28/2011

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Have you seen just a regular pediatric dr? With children that can't speak well (my son is 2%). when they don't feel well they tend to act out A LOT. My son has tantrums (he's not autistic) to the point of ER visits (bangs head, bites himself, throws things). Because he can't speak and him possibly having a genetic disorder he acts aggressively. When he makes motions of violence towards you, you need to disapline him because we didn't with my two year old and that ended up to him pulling my hair and kicking. Also with the eating before bed, if he's hungry I would give it to him anyways (as long has its healthy). He won't sleep if he's hungry. Hope it gets better

Jennifer - posted on 01/25/2011

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I think that you should take him to se a neurologist. Perhaps he needs CT Scan of his brain to see if he has any defects. They could also give him medication to calm him down which would help you tremendously. Perhaps some ativan, or Clonindine. He's not too young for that. I hope I was some help to you.

Amie - posted on 01/20/2011

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Hi Heather,



Where do you live? There is a great website: www.wrightslaw.com

They have a yellow pages for kids with disabilities and you can get resources specific to your state. It is a great resource. If you by any chance live in Michigan, Ohio, or California; I work for a company that provides therapy services as well as special education services and compliance for schools, called Total Education Solutions. If you have any specific questions or there is a resouce that you need help locating. Please let me know.

Good Luck to you.

Kind Regards,

Amie

Tracy - posted on 11/10/2010

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K, Im just going to say that it might help to find a way to help him communicate. I have a son with Autism but I don't think it's my place to say what your son might have or not have, but I will say giving him another form of a voice helps alot. It will also help with speech. With our son we used both sign language and PECS, we always talked while signing and using pecs with him but it helped him be able to tell us what going on in his head when he cant find his words. You can find information about PECS thru there website www.pecs.com and what we did for sign language, if you allow your kid to watch tv, Id say check out Signing Time..I couldnt believe how fast my son picked signing up,and its actually a great time to play and sing with eachother.It helped out alot.
About schedule,a sleep schedule to get him to sleep only helps if he'll stays sleep! My son would at one point would only sleep for 3 hour than be up all day, NO naps. We changed his diet, got him tested for allergies,etc...I will say he still gets up but its not as much and he does sleep alot longer... I hope you do find something that works..
I have to point this out, What's the point of punishment if you don't give an opportunity to correct his behavior!! What then are you teaching, discipline is about correcting behavior and showing that they did something wrong and how to change it..NOT you did that wrong so you must be punished...Dont get me wrong some of that behavior needs to be discipline, but to me I think it should be based on what happen, harming others should be punished BUT other wrong behavior that he can self correct should be decided at that time...Telling the kid to put a fork down or be punish without telling him why? Is he really learning anything? Im not trying to pick a fight, I just dont see the logic in that, and maybe you can explain it so I could.

Michelle - posted on 10/21/2010

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Melatonin is a completely safe natural herb to help your child sleep. I give it to my 2 and 4 year olds. A solid night's sleep is the foundation to a good day.

Now the child needs a schedule. A set plan with everything from educational instruction to bathroom breaks. You have to write it all out on a big board so he knows what is coming.

Narrate your day. Talk about what you are doing, what he is doing, what is occurring during play. "I am putting the red block on the blue block!" This will help with verbal skills.

You need an established punishment. Time out chair in a corner, be consistent. Don't threaten to do it and then don't. Don't give the child no opportunity to correct his behavior. I would say "DS, you must put that fork down now or go sit on time out", give about 3-5 seconds and then put him right in time out.

Honestly a lot of this sounds like frustration from the language issue and a lack of discipline.

Sharon - posted on 10/19/2010

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I agree with finding a neurologist and start from there. They can help with medications if needed and other resources. A lot of these post have a lot of helpful ideas and for me it is nice to know that my son is not the only one out there that does this stuff. Have you joined the Autism society on the circle of moms website? Even if you do not have this diagnosis there could be some helpful stuff for you there. Good luck and remember to take care of yourself too

Sharon

Gillian - posted on 06/01/2010

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My 6 year old was diagnosed with Childhood Apraxia of Speech at the age of 3. He had very few words and most were not intelligible. He would get extremely frustrated when we didn't understand him.The frustration is much less as his speech has improved. What about a speech therapist? Don't know if they will then be able to help you with a ped neurolgist?

Martha - posted on 05/28/2010

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my 3 year old is the same watch out for excessive sugar in diet even yogurts are full off it try soy alternatives

Pinar - posted on 05/27/2010

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Heather one of the reasons he is so irritable could be because he cannot express himself. My daughter (she is almost 3 with speech delays) is also very frustrated and irritable and it has become less and less now that she can say more words. Whenever we said no, she would throw herself on the floor and start yelling, hitting whatever is in her way. She even roughs up her big brother (5 years old!). The advice I got from the neuropsychiatrist we went to was for us to let her do whatever she wants (unless it will cause harm to herself or somebody else) and dont bring her to the point of frustration. Hope this helps

Jessica - posted on 05/25/2010

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What state and county do you live in? I am in SC with early intervention here and there may be free public resources that your tax dollars pay for and that he is entitled to receive.

Jennifer - posted on 05/25/2010

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Not sure where you are from but here in RI we do have a hospital that would have a program called Pedi Partial, look at your area hospitals to see if they have something similar. I know when my son was smaller and had these outbursts, most of the time he actually had an ear infection but acted out because they cannot express their feeling. Just something to maybe have the doctor check. My son had no other typical symptoms.

Shermia - posted on 05/15/2010

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Honestly, he kind of just seems like a normal 3 year old. Tantrums cause he can't have his way...although I don't know your son, so I can't make that call. I will say that my son IS autistic, and I've known that since he was 4mths old and...noone believed me. It was slightly discouraging and upsetting to say the least, but I knew there was something different about him, and because I had looked up autistic behavior before I knew what it was exactly that had taken my son. I'm not saying that your son is, but it is a possibility to look into. There is always someone there to help you, if you need, message me, I will more than love to help you find someone. And, I totally understand you, but don't ever give up on your child, and don't listen to such discouraging people either.

Becky - posted on 04/09/2010

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It does sound like signs of an Autism Spectrum Disorder. Your son's primary care doctor should be able to get you a referral to a specialist, and if you go through your doc you should be able to get in to see someone a lot faster. At age 3 your son should also qualify for early essential education through your school system (in most areas), so you should contact your school district to schedule an interview and evaluation. They have helped our son tremendously with his speech and social skills (he is PDD-NOS on the Autism Spectrum - at age 3 he had less than 10 words). It may also be helpful for you to check out the Autism Speaks website (http://www.autismspeaks.org/) for tips and links to other resources that are available. With early intervention there is SO much that can be done to help your son to feel less frustrated, and to help your whole family understand his needs and signals better! If you have more questions please feel free to ask! You're not alone!!!

Regenia - posted on 04/07/2010

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You might want to check out the book Positive Strategies for Students with Behavior Problems by Daniel Crimmins, etc.

Shannon - posted on 04/07/2010

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maybe you could ask your dr. for a refural, noah is like that, when i tell him no, or i do not jump fast enough, he will throw things at me screem in my face call me names. but he was just dignosed with ocd, anger issues, angzity, and bipolor his dad had that and posible defience disorder and maybe add. it took a while he had very bad speech he was in regualr school in the iep program but it was just to frustrating for him this year he is now in a bocess class with only 10 kids he needs alot of structure i have 2 more at home abby 15 and his twin jaime and he does get phycical with them, but now we have his school and a great counciler the food thing could be a control issue he mat feel he has no control so being picky is what he can control noah also has alot of learning issues to so he get frustrated, there is help you just need to ask and keep pushing because once he gets into school they do not really do anything and you tend to loose them

Stephanie - posted on 04/06/2010

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Going to a pediatric neurologist is a good idea. If the only appointment they can give you is a long way out maybe go onto a cancellation list. We did that for my daughter for her neurologist and she was seen within the month instead of 5 months.

Cherish - posted on 03/20/2010

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Hi,

My youngest son has less than 5% intelligible speech(he will be 8 in June).

Do you use other forms of communicating w/him?

I can send you some PEC files to print..

My son at 3 would bite himself hard(but he soon outgrew that and started biting other people...lol)

My son did not chew food until he was 4yrs old and did not gain weight really until he was 6 or so.

He is now on Risperdone which helps a lot w/ the sleeping.

Have your tried Melatonin,it is a natural supplement,we get liquid and put it in his bottle,that also helps with the sleeping.

My son still gets VERY angry,bangs his head,pinches,kicks etc...

In he in speech therapy?

Have you got a eval for part C(I think) services through your CCB?

There are more links here...

http://www.facebook.com/?sk=messages&tid...!/group.php?v=wall&gid=327303257469

Sheryl - posted on 03/16/2010

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sound like his fust. with the talk and other things. i would try taking him to early intervention. they help with kids with speech delays and sound like he could maybe have something going on with sensory or even autsic. know i am not for sure but i would start pushing. i don't think he needs a behavioral clinic. one qust. when you the the punshment what do you do? do you spank or time out. cause one thing i do is put my son in time out where there is no one else and a quit room. but if i where i would try early intervention. every county has one. hope that help some. and good luck!

Rhonda - posted on 03/16/2010

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Yes! Find a good Neurologist! A good Pediatric Neurologist will have diagnostic tools available to rule out certain developmental disorders. It sounds as if your son has an Autistic Spectrum Disorder. My son is Autistic and I recognize the behaviors you're seeing! As far as the eating thing goes, offer him things like yogurt and other healthy options at night. He may ask for snacks at bedtime and as long as they're healthy snacks it's ok! 2 & 3 year olds tend to graze sometimes rather than sit and eat a meal anyway, because that's where they are developmentally! I also understand the losing your mind and sleep thing, but finding a good neurologist and getting a diagnosis is your first step. Don't worry! Things will get better! My son is 11 and has made an amazing amount of progress! Your son will as well! Just keep pushing until you get the answers you need, and remember that you're his advocate so you don't have to settle for anything you don't feel is in your son's best interest! I hope this helps! God bless you and your family!