Welcome to all the old and all the new ?

Sharlene - posted on 02/10/2012 ( 19 moms have responded )

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Firstly welcome to this group , Im the Moderator for this group and most of you know me and most of you dont ,so tell us abit about yourself and your family ?

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Carol - posted on 07/04/2012

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I am a mother of 3. 14, 13 & 12. My 13 year old has been diagnosed with mild mental retardation. She has an IQ of 67. She can be taught the process of the academics, but can't pull it back out for later use. She can't naturally process next steps of tasks sometimes. Some of her interests in things are those you usually see in a 10-11 year old. My 14 yr old is fine & does all the normal teen things, hair nails hanging out with friends. My 13 year old does not do her own hair. Even when it's in a style that requires morning maintenance, she only does when prompted. She does not polish her own nails, but asks for someone else to do it. Motor functions are shaky with that. Does not realize that hygiene is an issue sometimes. She does interact with friends but for the most part would rather play games on computer or watch TV. Looking for ways to try & help her along I guess you could say. She tries to follow in the older ones steps but only some of the things. Was thinking of doing some therapy as there are also possible absent parent issues. Glad to be in this group.

Freida - posted on 06/21/2012

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That would be awesome. Thank you again. I'll try them later today.

Freida - posted on 06/21/2012

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No not yet.just started searching today. A lot were themed towards specific diagnostic. This was the only one so far that seemed pretty close. This website however, doesn't show up well on my GS2 , so I'll look on the desktop later today.thanks for the help, really I appreciate it.

Sharlene - posted on 06/20/2012

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Hi again, There would be some mums on com have you tried other special needs communities .

Freida - posted on 06/20/2012

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The arch supporters seem to just make her bouncier. She still walks on her toes. My support really comes from my family. Her father's side told me for years I was just expecting too much from her and that's why she seemed so behind. It really didn't become apparent until she entered school.otherwise yeah just my immediate family. I was kinda hoping someone here would have a similar case that we could trade experiences or how to's.

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Melanie - posted on 01/03/2014

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Hi, Im a single mum to 5 children, 10, 9, 4, 3, and bby 9mths. 4 of my children have a form of autism ( Aspergers syndrome) my 4yr old also has GDD. my 3yr old has language delay.I love them all, lifes never boring :)

Maria - posted on 11/19/2012

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Hi...i hav got a 3 yr old with global developmental delay and is blind aswell...he has severe neurological disability. I am working aswell...when i take him out, i feel people feel sorry for me which i dont like...after having a disable child, i have come to know Wt a bundle f joy he is...i always say to my husband dat i dont understand wt kind f magnet he has which attracts me so much towards him dat i find so hard to get away from him...its true its challenging to look after him but i never feel tred, i feel so blessed to have him, feel v special to have a special child...its middle f night n i am awake with him, i hav to go to work in morning bt still dont feel tred...i am just luking at him n thanking god for such a beautiful gift...hope all f us keep up with our passion n strength in luking after these gems!!!

Sharlene - posted on 06/20/2012

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Do you find them helping the arch supporters. That ashame about getting a special aid but I guess thats good in a way. And how have you being coping with all of this. It must be hard do you have help and support or even a support group

Freida - posted on 06/20/2012

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Unfortunately she scored high on certain aspects of the IEP. She goes to a bilingual school where they learn/ work in Spanish and English. She is actually advanced in Spanish. She is also good at comprehension. So because she scored high on those aspects and a few more that I can't remember off the top of my head, she scored a 82. To receive special needs she needed a 79 or lower. However I've worked with her teachers to make sure she gets tutoring.The only thing I feel odd about her "speech" is her ability to explain. She wears normal shoes. We have recently bought her arch supporters because she does have rather flat feet.

Sharlene - posted on 06/20/2012

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Hi fredida, thank you for getting back to me, With her de;lays have they mention a special Ed- class, or a special aid who can sit and help during class time. Well I guess the therapy coming up which will good. With her speech whats that like, do you mind me asking, and does she wear shoes with her standing on her toes.

Sharlene - posted on 06/20/2012

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Hello freida, firstly welocme to this community.Im sharlene mod for this group. Hows your daughter development now and do you find the theraphy helping and is she part of other therapies. I also have 3 children with all different deveoplmental delays and in therapies. I hope to hear back from you.

Freida - posted on 06/20/2012

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Hi, I'm the mother of two girls 8 & 1.After years of debate my at the time 6yr old Nevaeh had an iep done in school which revealed she had a clinically low IQ.The teacher and I decided to keep her in the same grade (1st) to catch up because the iep also stated that she was really young for her age (July 31 bday). For years I was told she was just a slow learner, clumsy and timid. After then going to see a child development specialist, she was diagnosed with mental/physical delay. It didn't really seem like an answer and now she's in pt/ ot, psycho, and speech therapy.she is also in summer school. It just seems like a lot for a diagnostic that doesn't really tell me how to help her or why she is like this. Just hoping to find info and support.

Sharlene - posted on 05/22/2012

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Hi Jan , Your very welcome . I also love com as well Helpping other mums and getting advise myself more the merryer I guess. My youngest child had a gastroparesis for 11 months and he also has Haempillia B , Is the OT and speech hedlpping, My 3rd child is in theraphy as well she has global developmental delay and other medical conition's and my eldest has autism spertrum and low impairment .I would like to hear more about the reaseach you have found on the net. Hope to hear back from you.take care

Liz - posted on 05/21/2012

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Hi Iam a mother of twin boys 3 yr old be 4 in July and I have a 2yr daughter that will be 3 in Sept. One of my twins was born with alot of health issuses and the other has some problems but nothing like his twin just wanting find answers this site helps alot. thanks

Sharlene - posted on 05/06/2012

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Hey Jan, Firstly welcome and Im so sorry to hear about your children , If you ever want to chat message me, Take care.

Jan - posted on 04/24/2012

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I just joined. I have a healthy six yr old and a 20 month old. My baby has a medley of health conditions such as hypotonia gross dev delay GERD constipation gastroparesis etc etc. I have been seeing specialists non stop looking for the 'key's diagnosis. She has been in pt ot and speech therapy since she was six months old. My husband and I live in nc. I'm always online looking for clues and for others who's childs symptoms sound similiar. Hence how I found this site.

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