Dermoid eye cyst

Amy - posted on 05/18/2010 ( 17 moms have responded )

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My daughter was born with a dermoid cyst on her left eye with no explanation or cause for it.



I suffered Hypertension & Edima during my Pregnancy & she was born 10 days after her due date.



At first I wanted to have the cyst removed so she wouldn't be bullied at school but the Dr's have told me the scar can be as severe as the cyst itself.



Has anyone had a dermoid eye cyst removed?

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Megan - posted on 02/02/2011

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Hello Ladies,

I'm a 28 year old woman who has a dermoid cyst on her left eye. I've had it since birth. I have astigmatism because of it, but I've never worn glasses since I have 20/20 in my right eye. My left eye is 50/20. As a child, my parents inquired about getting it removed but doctors said it might come back or that the scar might be just as bad as the original dermoid. As a child, I was teased because of it. However, I feel like children get teased for lots of things. I actually wasn't that bothered by it as a child at all really. It gave me character. As an adult though, the dermoid tends to get very dry and that can be painful. Also, sometimes hairs grow out of it. I've started thinking about getting it removed again because of this. I've had 5 eye doctors in my life, and only one of them has said I should have it removed. The rest say that my eye otherwise is healthy and to leave it alone. For the most part, it doesn't bother me...just every once in awhile. A lot of people don't notice it when they look at me at first. They have to look a bit closer to see it. I am not a mother either, I just registered on this site because I wanted to comment on this post. However, I think this is a great resource for mothers.

Moira - posted on 05/11/2013

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II am a 67 year old mother and have a Limbold Dermoid Cyst on my left eye I have never had any trouble with it my mother was told when I was a baby to go away and forget about it and that is what she did. I was asked questions as I grew up but just said it was a birth mark but was never bullied at school. I do now in later life yearly see a consultant but I think that is just more for their benefit as they take lots of photos but have never had treatment. In fact it s only this year that I have found out the name for it I just call it my cyst. Hope this helps someone.

Amanda - posted on 03/06/2012

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Im in new zealand and my girl has just turned one, she has an appointment in 2 weeks then we will be given a date to have hers removed, its on her top eyelid on her left eye and gets really bad, sometimes half her eye is closed. We have always been told it has to be removed. Hers also goes purplish at times

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Flournys - posted on 11/20/2013

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My daughter was born with a limbal dermoid on her left eye. She had surgery to remove the dermoid, after her surgery her vision DRASTICALLY IMPROVED, although she still does need to wear glasses. I understand vision improvement is very unusual and is not to be expected after dermoid surgery. She is very fortunate for that. She was 8 months old when she had the surgery, she is 9 years old now.
The Dr. just cut the dermoid back to the iris, I was surprised that there was color in the dermoid (however the Dr. was not at all surprised to see color of the iris in the dermoid). She still has the dermoid under her iris. No regrowth or anything like that after 9 years. You really can't even see it unless you are really looking for it.

Laura - posted on 10/10/2013

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My 22 year old son was born with a dermoid cyst on his eye. We were also recommened early on not to remove. It has never been a problem until recently. He was away at college and called to say his tumor looked like it had a white head on it, and it felt like something was in his eye. Our concern was the tumor was infected due to the rapid onset of the problem. Once he was able to see an eye Dr. we were told it was plaque build up. The Dr. numbed his eye and scrapped off the plaque. Dr. also said if the problem comes back, we may want to remove the tumor. This was a few weeks ago and so far all is well.

Theresa - posted on 10/03/2013

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Hi, I went to my eye dr this morning for a regular exam. I just turned 59, and he called it by name for the very first time in my life. Limbal dermoid cyst. I have had it all my life, it has never interfered with vision, etc. I'm usually unaware of it until someone says, oooooh, what's wrong with your eye? I usually say I was born with it and that's it. It sits in my left eye's cornea. Research says it occurs during fetal development in the first trimester. As I have gotten older, over 35, it slowly became smaller. I believe one day it will disappear and I will still be me. So, do your research and don't fuss. Because chances are, your child will think there really is something wrong.

Sydney - posted on 04/28/2013

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Hi my name is Sydney, I am 16 years old and I was born with a cyst on my eyeball. It was on the outer side of the color part. When I was about 18 months old I had gotten it removed surgically cause my parents didnt want people making fun of me. As of right now my eye sight isn't bad at all, I am far sighted in one eye and near sided in the other though. I believe its because of the cyst but I'm not sure. The cyst hasn't grown at all, I mean there's a slight bump but its not something that's a big deal. I would honesty recommend you getting the cyst of now, my baby cousin Hannah she also has a cyst on her eye and she is currently 2 years old. I feel the younger you are the better, cause when your older like I am now and your in highschool. You will have alot of kids make fun of you for it, my eye color is cut off a little bit so some people do notice some dont. Get it off now while you can.

Kellymarie - posted on 11/20/2012

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Hi guys I'm new to this site I have a 16 mth old boy and when he was born I noticed a white spot on his eye. The doctor told me to wait till he was at least 1 as he was too young I did that and was finally referred to hospital. Today I was told it was a limbal dermoid and that his vision wasn't as good as they hoped and that they could operate but it could cause scarring which may be worse then the cyst. Would just like some advice on how your children are getting on

Denise - posted on 08/01/2012

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Hi, my daughter is 6 and has one on her right iris at the bottom so sometimes you see it, sometimes you dont....my heart bleeds when people mention it but she is fine. we are from N Ireland but living in Spain. When she was little they monitored it and her sight was fine...it doesnt seem to have grown. It was suggested that it be removed but our optician said leave well alone!!

I hope by the time she is 18 that surgery will have advanced and it can be removed,

Louise - posted on 05/02/2012

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Hi all, how pleased I am to have found you on this website. My son is 4 years old (almost 5 and is in reception) and was born with a Limbal Dermoid Cyst on his left eye ball, which covers part of his iris. We have never made an issue of it and my son has never asked about although he does have regular eye check ups. I didn't think he even knew about it until recently as I was waiting for the day when he asked about it rather than mention it and make an issue out of it. We were sitting the other night and he said 'why do people ask why part of my eye is out' and I asked who had asked him and he said everyone from football and school. My heart sank when I heard this as this was the first time the subject had ever been brought up. I asked him what he told them and he said 'I just say that's just the way it is and everyone's different'. I asked him how he felt when he was asked this and he just shrugged. He then said I'm the only one in our family with a 'nipped' eye (not sure why he called it this) and I'm the only one with a 'nipped' eye in my class. I tried to explain it was called a cyst, but he didn't understand so I'm not really sure how to explain it in simple terms that he'll understand. I don't know if this is bothering him at the moment, but may well do eventually. I'm also worried about bullying as the other children are obviously picking up on this. He is quite quiet so that worries me too.

Any advice will be greatly appreciated ... Louise x

Apparently dermoid cysts are created through an extra cell being produced, which attaches itself somewhere on the body. I'm not sure how accurate this is, but an optician gave my husband this information.

Rashida - posted on 01/26/2012

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My baby has a dermoid cyst located on her head near her soft spot in the front of her head and she will have to have it removed

Amy - posted on 02/03/2011

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Thanks for posting about your Dermoid Eye Cyst Megan, I'm glad its not affected your life too much (thats very reassuring). I hope if you do decide to make any changes everything goes well for you and you could maybe let us all know. Thanks a lot xx :)

Amy - posted on 07/18/2010

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Yes Kayla does wear an eye patch for about half an hour a day but its a real effort to keep it on as she hates it.

I'm glad you found it helpful x

Crystal - posted on 07/17/2010

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Thank you! That makes me feel better about their decision to just watch it for a while. Has your daughter been prescribed glasses or to wear a patch? The last doctor I saw prescribed a patch for Haden's good eye. He only has to wear it 15 minutes a day, just to make sure he is working the one with the dermoid eye cyst.

Thanks again!

Crystal

Amy - posted on 07/17/2010

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Hi Crystal,



Thanks for writing. My daughter is 13 months old and her dermoid eye cyst hasn't changed so far in shape etc. She's also developed astigmatism in her eye and the eye doesn't open as much as the other. I have spoken to a specialist doctor in doncaster and sheffield UK and they have both agreed to leave the cyst alone and monitor its progress. One thing I will say is; astigmatism is very common - I myself have it in both eyes and I see fine. It means that the eye is squashed like a rugby ball rather than a football and I wouldn't let it factor into your decision too much. I'm prescribed glasses for Tv and PC -- it isn't that bad really.



I've managed to talk to a few people now about dermoid eye cysts and everybody's story differs.



One young girl I spoke to (13 years old) had her dermoid eye cyst removed at the age of 11 due to it becoming infected but she is very happy with the result as it has only left a small scar. But she also told me she was bullied badly (which upset me ALOT) because kids thought she had tumour on her eye.



Another woman has a daughter of 7 months who has a dermoid cyst in her left eye and a smaller one in her right too (but the right isn't visible) she also has astigmatism. This lady was told initially it would be removed but now drs are watching its progress over the next months/years. But this woman did tell me that a woman she met at the hospital with the same cyst has now got a hearing aid as it CAN be associated (not guaranteed). Both her daughter and mine have had an ultrasound with nothing conclusive back.



I know this is a lot to take in and I really don't want you to worry. I think the best thing to do would be to listen to the Dr's and follow their advice -- If they are giving you different advice call them up on it. Ask Why. One thing I have considered is asking my Dr to refer me to Great Ormand St Hospital as I know another woman is taking her daughter there with the same issues.



If you have any further Questions I will try my best to answer and we can compare notes.



I hope to keep intouch.



Amy xx :)

Crystal - posted on 07/17/2010

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Hi Amy..

My son was born with a Limbal Dermoid Cyst on his left eye as well. I had no complications with my pregnancy and he was born on time. We are in the same boat as you right now. I've taken him to see 4 specialists and get varying answers from each.
Is it giving her a significant astigmatism or any other problem in her eye?
This is what I've been told..My son is only 6 months old but his astigmatism has grown quite a bit in that eye since he was 3 months old. (We take him every 3 months to his Pediatric Opthamologist to keep a check on it.) When I took him last time and they figured out that the astigmatism was getting worse, he referred me to an eye surgeon (cornea specialist.) He recommended surgery and said he could take it off with no problem, and if I didn't it would cause further eye damage later on..So, we scheduled the surgery and then when I got to thinking about it, it was going to be done in an outpatient surgicenter and my son would only be 6 1/2 months old at the time of surgery..I wasn't comfortable with that since he is so young so went for a few more opinions..They ALL said NOT to do it as an outpatient procedure outside of the hospital.. So I canceled the surgery and went to another city to get another opinion from a guy who has removed several of these..He said that my son is borderline for needing the surgery so he will check him again in 3 months and if the astigmatism is any worse, he will operate.
About the scar, the doctors have said it will still appear white, just not raised or as "thick" of a white spot, so if it were me and Haden wasn't having any eye problems, I'd probably opt out of the surgery and not risk the vision problems that the surgery can cause. The last specialist I saw said that the scar can contract and cause an astigmatism. Who knows! Have you gotten a second opinion? What all have you been told?? I want all of the info possible before making a decision like this. How old is your daughter? Good luck with your decision..Hope to hear from you soon! :)
Crystal

Amy - posted on 02/03/2011

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Thanks for posting about your Dermoid Eye Cyst Megan, I'm glad its not affected your life too much (thats very reassuring). I hope if you do decide to make any changes everything goes well for you and you could maybe let us all know. Thanks a lot xx :)

Crystal - posted on 07/17/2010

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Thank you! That makes me feel better about their decision to just watch it for a while. Has your daughter been prescribed glasses or to wear a patch? The last doctor I saw prescribed a patch for Haden's good eye. He only has to wear it 15 minutes a day, just to make sure he is working the one with the dermoid eye cyst.

Thanks again!

Crystal

Amy - posted on 07/17/2010

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Hi Crystal,



Thanks for writing. My daughter is 13 months old and her dermoid eye cyst hasn't changed so far in shape etc. She's also developed astigmatism in her eye and the eye doesn't open as much as the other. I have spoken to a specialist doctor in doncaster and sheffield UK and they have both agreed to leave the cyst alone and monitor its progress. One thing I will say is; astigmatism is very common - I myself have it in both eyes and I see fine. It means that the eye is squashed like a rugby ball rather than a football and I wouldn't let it factor into your decision too much. I'm prescribed glasses for Tv and PC -- it isn't that bad really.



I've managed to talk to a few people now about dermoid eye cysts and everybody's story differs.



One young girl I spoke to (13 years old) had her dermoid eye cyst removed at the age of 11 due to it becoming infected but she is very happy with the result as it has only left a small scar. But she also told me she was bullied badly (which upset me ALOT) because kids thought she had tumour on her eye.



Another woman has a daughter of 7 months who has a dermoid cyst in her left eye and a smaller one in her right too (but the right isn't visible) she also has astigmatism. This lady was told initially it would be removed but now drs are watching its progress over the next months/years. But this woman did tell me that a woman she met at the hospital with the same cyst has now got a hearing aid as it CAN be associated (not guaranteed). Both her daughter and mine have had an ultrasound with nothing conclusive back.



I know this is a lot to take in and I really don't want you to worry. I think the best thing to do would be to listen to the Dr's and follow their advice -- If they are giving you different advice call them up on it. Ask Why. One thing I have considered is asking my Dr to refer me to Great Ormand St Hospital as I know another woman is taking her daughter there with the same issues.



If you have any further Questions I will try my best to answer and we can compare notes.



I hope to keep intouch.



Amy xx :)

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