Vyvanse....will my son ever want to eat again?

Karen - posted on 01/12/2009 ( 47 moms have responded )

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My son was recently placed on vyvanse...this was also his first medication for ADD...he does not test to be ADHD....he begs to stay on this medication because he can finally focus....he notices a difference not just us.....he is in 3rd grade and finally is starting to get school work.....he lost 15 lbs on this and is already skinny...does the good out weigh the wt loss...he also seems to get very sad at night which bothers me alot...im having trouble accepting that 8 yr olds should be so depressed....any help out there?

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Wendy - posted on 05/03/2009

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my son has been on meds also since he was in 2 grade i also was very concerned when he wasnt eating either. there was a time where all he seemed to be was skin and bones. he stayed at a weight of 69 lbs for almost 3 yrs. he is now 11 and is fianally over 90 lbs. i still have trouble also with dealing with why my son is so unhappy. makes me think i have done something wrong. but i have learned that through therapy and working with my son that in the long run medication is just exactly what he needed. hang in there and know that you are doing what is best for your child and dont let anyone think that just because you put your child on meds does not make you a bad mom not taking care of your sons problems and letting him grow up with all this sadness and possiably anger would be doing him a greater misjudgstice . he will over come the part of not being hungry. if it helps him focus then its doing exactly what its supposed to do.

Krista - posted on 12/10/2013

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This is actually a reply to Lisa who posted in the comment section in November of 2013:
Lisa, if you had a child with ADD (as I do) or ADHD you would not be posting your ridiculous rant because you would realize how much these children suffer before we put them on medication. We, as mothers, do not come to this decision lightly, we typically try just about everything else we can first before resulting to medication. Since medication is the only thing that truly helps our children focus, we have to consider that the benefits of the medications far outweigh the side effects. By reading the posts on this forum you are only hearing about the side effects, not the triumphs.
When my daughter first went on medication, she came home from school the first day with a huge smile on her face and said, "Mom, it's a miracle, I was able to focus all day.". Her smile told me everything I needed to know. I hadn't seen her happy or excited about school in years.
So please, do not lecture anyone about things you have not experienced.
The moms on this forum are looking for positive help from people who UNDERSTAND WHAT THEY ARE GOING THROUGH, not negative lectures from someone who has no idea what it is like to have a child with this condition.

Tina - posted on 04/26/2009

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I have a 7 yr old girl that has been on meds since she was 4. She started on Focalin. We have tried Concerta as well as Vyvanse. She withered down to nothing on the Vyvanse. The Dr said that is was ok. She was right where she needed to be for a 7 yr old girl. I called it quits when I could see her spine poking out of her little body. She also was VERY emotional and wicked to her lil sister in the evening when the meds were wearing off. Also a normal side affect with Vyvanse. So we went back to the Focalin XR, which ironically, is what she started on in the beginning. She now takes 25 mg of the xr in the morning, and a 10mg standard dose at 3pm to get us through homework time. Only on school days. She is doing well in school and got the student of the month award and the most improved award this past 9 weeks. Also, she is gained all her weight back (and then some :O) ) If you don't want to entertain the idea of switching your son's med, I will share the dr's advice when my girl got so thin. She didn't eat during the day, then just before bed, she was starving. Dr. said feed her filling foods. Boiled eggs, pb toast, apples, bananas. She wanted to eat a whole days worth of food in 1 hr. Dr. said feed her, it was fine. You could try that. Dr also said, the wt loss would even out, I just couldn't watch her lose anymore lbs. and she was so upset... so we switched, which was the right move for us. You just have to keep trying until you find the right one. Do some research. Good luck. Sorry so long...

Jessica - posted on 11/27/2012

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People have given you good advice answering this... definitely give your son a large high calorie, high protein breakfast! (or whatever he'll eat before you give him the medicine). And as soon as he gets hungry after school or when you pick him up from after-school care, give him a snack - beef jerky, fiber one bar, or something. That should help with the sadness/ moodiness. Our son used to be very emotional in the afternoon/late night. We reduced his medicine and he's better. I think sometimes if the dosage is too high, then when they come off the medicine it's worse. Try reducing his dosage if you can. We found that our son acted better with less medicine, it was just as effective for his behavior at school.



15 lb loss it a lot!! I think you might want to give him a break from the meds so he can gain some weight back..??.



best of luck

Tonya - posted on 04/25/2009

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my son goes through that everytime it gets hot out so we just buy the Walmart brand for Pediasure and it really helps plus he likes it better than the real Pediasure
Afte just 2 full drinks, one with each meal, he seems to regain his appetite but at the very least they are getting the nutrition they need.
My son is also in the 90% for height and 15% for weight. Hope that helps!

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Carson - posted on 02/21/2014

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To Tyler Truss and Lisa Fryman (and all other curious readers):

Before I begin, I have debated on the national circuit. I went undefeated in my division, had a record breaking first (and last due to graduation) year, and was invited to many invitational tournaments at top tier institutions, such as Princeton, Harvard, Stanford, and Emory. I say this to hopefully draw your attention to this long post. Feel free to copy and paste it as you please to help educate other “Tylers” and “Lisas” out there. My evidence will be backed up by reliable sources.

Moving on, I wish I could say that I've never seen a person as unintelligent and open to propaganda as the two of you. Unfortunately, there are many on your level.

The only thing "sad and pathetic," Tyler, is your and Lisa's lack of analytical abilities. Did you even research ADHD before you posted? Seems like Lisa did. Let's click on her link. Done. Oh goodness…

1. This is not a scientific study, but rather PBS, the Public Broadcasting System, interviewing five medical professionals.
2. Three of the five medical professionals in YOUR link believe that ADHD is a real disorder, the same one you implied to have read when you bashed others for not researching. Let's look at a quote from your link:
"There is no controversy among practicing scientists who have devoted their careers to this disorder. No scientific meetings mention any controversies about the disorder, about its validity as a disorder, about the usefulness of using stimulant medications like Ritalin for it. There simply is no controversy. The science speaks for itself. And the science is overwhelming that the answer to these questions is in the affirmative: it's a real disorder; it's valid; and it can be managed, in many cases, by using stimulant medication in combination with other treatments."

3. The medical professionals who think ADHD is fictional are unreliable.

Peter Breggin is just a controversial figure who is regularly at odds with the vast majority mental health professionals. The National Alliance on Mental Illness filed a suit against him with the medical board of his state. They do not make any money off of stimulants by the way, Lisa. Mental health professionals say that “Breggin reinforces the myth that mental illness is not real, that you wouldn't be ill if you'd pull yourself up by the bootstraps...his views stop people from getting treatment. They could cost a life.”

Your other source has not practiced since 1993. In addition, he has been a member of the church of Scientology since before 1963. Is it just a coincidence that the religion does not believe in the use of mind-altering drugs at all? Decide for yourself but it sounds like his appeals are based on religious nonsense and pseudoscience rather than actual scientific study.

That’s embarrassing, Lisa.
_______________________________________________________________

Let’s look at some reliable sources. There is no controversy. ADHD is a real disorder. Don’t believe me? Take it from The Surgeon General, the National Institute of Mental Health (NIMH), The CDC, the U.S Department of Education Research, the American Academy of Pediatrics, and the American Academy of Child & Adolescent Psychiatry.

Here is a link. http://www.adhdawarenessmonth.org/adhd-f...
Ignore the “pro-adhd” motive. Motive does not take away from the validity of an argument. Read it and look at the sources. There have been over 10,000 studies on this topic. They point to the same conclusion. ADHD is a real mental disorder.

I don’t think you should be a parent Tyler. Maybe your children will possess reasoning abilities superior to yours.

Confused Mom - posted on 02/09/2014

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My 9 year old daughter has been on most of the ADD/ADHD medications and is currently on 30 mg of Vyvanse. This does decrease her appetite, as did all the other medications but the doctors aren't worried because she is a little overweight. I've never had the "too skinny" problem but a her best friend is on the same dosage and medication and is severely underweight. I know her parents tried an appetite enhancer medicine (don't know the name) and she had a severe adverse reaction of anxiety and pretty much flipped out and had to leave school.

Other parents supplement their child's food with protein drinks like Ensure and vitamins and supplements that they aren't getting through the ingestion of actual food.

As far as feeling "sad" at night, that's his form of a "crash" in my opinion. My daughters crash consists of meltdowns, pure nastiness, irritability etc. One doctor suggested she was possibly "depressed" after spending 5 minutes with her and me informing him of her anger issues when she crashes and I quickly declined his offer for an anti depressant. From personal experience, I have been on anti depressants for 16 years and I feel like I've lost 16 years of my life. My memory during that time does not exist. I was unable to express any sort of emotion, unable to cry, unable to feel. I slowly stopped the anti depressants over 3 years ago and I can feel, cry, express emotions, like "normal" people do. You also have to consider the most serious side effect of antidepressants in children is thoughts of suicide and increased depression. That was my major concern when he suggested the anti depressant. When your son is feeling sad at night, maybe do something with him that he enjoys, or talk of a fun experience in the past.

Oh, just saw judgmental Tyler's comment. He/she must live in some sort of fantasy world, where everything is peachy keen and their children are perfect. There is something called "brain chemistry" and "family inheritance" along with "circumstances" which cause ADD/ADHD. Clearly you're experiencing some sort of issues either with yourself or your children for you to come to a page which addresses these issues. I feel sorry for your children if they have or will develop any sort of chemical issue as it will not be approached accordingly and they will most likely grow up unable to thrive in society and resenting you for telling them "it's all in your head, son". Grow up. And to assume that us parents are lazy is rubbish. Children with ADD/ADHD require MORE attention. I not only speak for myself but for the majority that we are HANDS ON and raising our children to the best of our ability. Ignoring the issue would be the ONLY cause of concern. Shame on you Tyler.

Krista - posted on 01/02/2014

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Tyler,
Please do not disrespect the millions of people who have been diagnosed with this by a medical professional. You have demonstrated by your post that you are completely ignorant about ADD/ADHD. You also know nothing about any of the families who have posted comments or questions on here so do not presume to know how any of us interact with our children.
I would like to know why you are even on this site if you do not believe that ADD/ADHD is real. Please leave this site to the parents who are looking for encouragement, support, and answers. Your negative attitude is not welcome here..

Tyler - posted on 12/21/2013

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Anyone who is putting an 8 year old on prescription amphetamines for a FICTIONAL disease (ADD/ADHD), does not deserve to be a parent.

Get off your lazy butts and play with your kids and find out what really interests them. It is not abnormal for children to not want to be at school and sit around doing math problems at the age of 8.

Are you people really buying into this nonsense of ADD/ADHD. Sad and pathetic.

Lisa - posted on 11/22/2013

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Do any of you mothers really read what you are saying and really understand what you are watching in your child's behavior? After reading this thread I found it absurd that you mothers have to come on the internet to ask if it's okay that your 10 year or younger child has lost their appetite, lost a bunch of weight, and may be dealing with depression. Are you kidding me? If you took a step back you'd realize that in most all of your cases you are causing this by putting your children on this medicine.

No it's not healthy and no it isn't necessary either. Believe it or not, when you are a toddler and an elementary school student it isn't some sort of disorder or disease when you don't want to sit and do math problems but rather socialize with friends or talk about playing outside of video games. ADD and ADHD are diseases that have become disgusting scapegoats for parents who are delusional and believe something is genuinely wrong with their young child who can't sit still during class. When you were young, I'm sure you couldn't, it's called being a kid. Pills are an easy way out for both parents and teachers alike in this new generation. Do your research, there are many alternatives to helping your child's focus, just because your kid doesn't pay attention like some other kids in class doesn't mean something is wrong, perhaps instead of spelling and math your child might be interested in art or music or something else. Not everyone is an academic and no 2 kids are the same.

Why in the world would you want to put your young child in a position where they should be relying on stimulants on an every day basis to complete their daily tasks? If you saw your young son or daughter crying because someone took their crayons, are you going to give them prozac so they aren't so sad? In this day and age people are becoming less and less patient with fixing their problems as well as their kid's problems, they instantly look to pills and pharmaceuticals to fix everything. Do your research, there are alternatives to ADD/ADHD medicine to help your child focus. Of course your child's teacher is going to promote the pills, it makes their job a whole lot easier as well as yours. The doctor and the physician a like will support it because it gets them more money, getting a script for ADD/ADHD medication is in and out faster than McDonalds.

Quit feeding your children dangerous amphetamines, it's unfair. Chemical imbalances in the brain are the last thing a child needs when they are growing and learning. ADD/ADHD are fictitious diseases and have been a disgusting trend in the past decade especially. Mothers, quit being so dumb; do yourself a favor and educate yourself on the topic before you go fill your child's script next time around.

In direct response to the question: stop giving your kid Vyvanse, when your in 3rd grade I'd say it's more important to eat and be happy and explore your interests rather than be a superb student. Perhaps see if there are aids at his school who can help him out or maybe his teacher. He may seem sad at night because all day long his brain flooded with Dopamine and Serotonin, chemicals that Vyvanse increases in the brain which induce feelings of happiness and euphoria as well as focus. Whens the meds wear off, your son may feel that lack of chemicals and thus it makes him sad. "he begs to stay on this medication"-->there is nothing healthy about a 3rd grader begging for pills, be smart.

If my loosely structured rant seemed like nonsense, do your own research.

http://www.pbs.org/wgbh/pages/frontline/...

Google: ADD Alternative Treatments

Jessica - posted on 09/29/2013

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We decreases the vyvanse dosage for my daughter and gave her a booster dose after lunch. After a year her appetite is no longer a problem and we've been able to get rid of the booster and increase her vyvanse.

Cheryl - posted on 05/13/2009

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I have seen the depression in my son, but he has not lost any weight, he has gained. Just keep reporting concerns with the doctor and they should adjust meds accordingly. I am going to ask about the depression when i take my son back to see doctor next week.

Heather - posted on 05/02/2009

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If I were you I would put him on another medicine. all those things are not good. talk to your doctor.

Lacy - posted on 04/24/2009

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My son did slowly get a appetite back after almost a year on vyvanse, i also made sure he had a fulfilling breakfast with it in the morning. we recently dropped vyvanse after two years on it because he started having "motor tics", he started contorting his face and eyes and we did not like it, other than that vyvanse was great for us.

Stephanie - posted on 04/23/2009

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I have this very question. My son is 8, he is not on Vyvanse but is on Adderall. He looses weight and doesn't want to eat one day but is starved the next. SInce this is his first medication, as long as he's taken it for a month I would try an alternative medicine. Ask the dr. about trying something new. My son has been on Adderall for a year now and he's loosing and gaining, over - all he's only lost like 6 pounds. I thought he lost more because every time he goes to the dr. it seems he's loosing but they did the math and overall with all the looses and gains he hasn't lost as much as I thought. I thought he was too skinny but they atribute that to his height growth. As for eating I allow my son to snack in secret because I can not allow my healthy normal weighted child to eat as much junk. I will allow him to come into my bedroom when he's hungry and it's between meals and eat a tastee cake or some junk to help him put on weight. He knows that this does not mean he can pig out just that he needs a little extra help. I allow him to eat when hungry, not just when he needs or wants junk. As far as the depression unfortunetly sometimes depression is associated with ADD. My son was put on a night pill strytara and prozac. Not a high dose I think it's like 5 miligrams of Prozac and 25 of the strytera and it has not only helped his depression but the OCD that is also sometimes associated with ADD. It also helped his weight gain. It seems when he's less stressed and worried about doing good in school, he eats more and eats better and sleeps so sometimes more medicine is the answer. Every case is different but you may need to talk to you dr. about your concerns and make them listen. Trial and error is the only way to go. I hate doing it and it breaks my heart. My son is different and he knows it and accepts it. I talk to him openly and honestly about his disability and let him help in the choices after I explain to him what the dr and I want to do. He knows why he takes his medicine and he does so willingly. He knows he has to fight harder to focus and do good. I hope this helps. Explain to him you want to try him on a new medicine that does the same thing and that you want to see if it helps him without him loosing so much weight. He wants to stay on it because he notices the difference so if you switch him, he should be able to tell you if it works the same.

Ann - posted on 04/18/2009

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My son is almost 9. On Vyvance for 2 school years, took him off last summer so he would gain some weight.Was a premmie born at 27 weeks and is small anyway. He gained 6 pounds. I get him a chocolate shake at least once a week to maintain his weight. Do any of your kids act , well OCD? Room has to be clean before he goes to bed, has to finish one paper at school before going on to

the next.

Rabecca - posted on 04/16/2009

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my son just stared Vyvance1.5 month a ago he's lost 17 pounds but tro tell you the truth he was needing lose about 20 pounds i was getting worried about his weight but now i am worried he is going to lose to much but after speaking with his doctor he just told me if he loses about 5 more pounds i should start giving him pedia sure and things that have lots of protien

Jennifer - posted on 04/11/2009

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Once they get used to the meds their appetite will pick up and they will alos eat like there is no tomorrow whenthe meds wear off. My son is 22 and has been on meds for 17 years and is not naorexic or grow stunted in any way.



 

Janice - posted on 04/01/2009

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he will eat again I started to give my son a night time snack just as the vyvance wares off. something nutritious, not heavy and a good breakfast when he takes his meds seem to help my son he has been on it for over a year now. I think that the pluses way out weigh the drawbacks. hang in there .

Kevyn - posted on 03/25/2009

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the makers of Vyvanse (Shire Pharmaceuticals) are in the final stages of FDA approval for another non-stimulant treatment for ADHD called Intuniv. My step son took 3 different types of stimulant meds before being switched to Strattera. It has been a 'wonder' drug in comparison.

Shannon - posted on 03/22/2009

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http://www.vyvansesideeffects.com/





Checkout this web site. I dont believe any child or adult for that matter should be on medication that is compaired to Cocaine. And this medication can cause your child to have suasidal thoughts.I put my child on ritolin when he was 7 and he was a diffrent child ....quit and depressed and he didnt even want to play anymore. I would say Save your childs brain from this horrable medication homeschool him so he gets a great education and YOU can be incharge of his education. Teachers now and in the past cant handle children that learn diffrently so they say they have adhd and all kinds of stuff.





Check out this movie ...Generation RX......did you know that almost ALL of the school shooting kids were on medication that causes suasidal thoughts and rage.



By the way I took my son off the medication after about a week and now he is 18 and I am so glas I did not keep him on that stuff because he is healthy and NOT a zombie!!!Good luck

Cherelle - posted on 03/22/2009

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Ensure is what the drink shakes are called. I had to put my 5 yr old daughter on them. She had lost 3 lbs in a month. She is very active with baton and riding her bike. So her dr. just said to add a shake to her daily food intake. We will see if the shakes help her. I will keep you posted :)

Cheryl - posted on 03/22/2009

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Is he also going for counseling? Do you know why he is so sad? Could that be a side effect of the medication? I guess kids can be depressed at eight but I have not heard of many that are so at that young of an age. As far as the weight loss how about giving him one of those supplement drinks each day. Right now the name of them escapes me but they are like vitamin milkshakes in a can. They are healthy. I know this is totally different but my late husband lost alot of weight as part of his emphysema and we had to get him to drink those to keep his strength and weight up as much as possible.

Jeni - posted on 03/21/2009

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my son was on conserta and lost alot of weight he had no energy and was very withdrawn and not sleeping well, they changed his medication from 12 hour release to an eight hour release called EQUASYM XL and hes put all his weight back on,hes sleeping better and hes like a different child. i dont no if this will help bit i thought id mention it as its helped us, takecare x jeni x

Jill - posted on 03/17/2009

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My son just went on the same medicine...30 mg. he too is in the third grade, just turned 9 this month and IMMEDIATELY saw improved focus...he has ADD too, not ADHD. His grades IMMEDIATELY have improved...but just like you said...appetite went way south. He used to eat EVERYTHING but in those first three-four weeks he has skipped meals and isn't even interested sometimes in junk type foods. Also hard time going to sleep. In this week, the end of week four, the sleeping is improving and he stopped skipping meals. He still isn't eating anything like before but is improving. We had a little more wiggle room in his eating because he really could have stood to lose a few pounds. He understands that he needs to eat BEFORE he takes the medicine in the morning. I always have him eat a bowl of cereal and then put his medicine in a small cup of yogert (like three tablespoons). I just started that after the pediatrician suggested it during week three. I think it is making a big difference. My peditriciam says that often the child will get past these symptoms in the second month.

Dianna - posted on 03/13/2009

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Vyanse has the extra amino acid attached which is metabolized by the liver to help it last longer but I think the side effect is appeitie change. It did a number on my son and I felt so bad because it took me a couple months to notice. His growth curved even changes but I switched him as soon as I realized and with in 3 months he put on 7 pounds. You posted this in January so I hope he is doing better!

Trenda - posted on 03/02/2009

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My son is on Vyvanse and Adderall in the afternoon to give it a boost. On top of that he has a growth hormone diffidence so I know all about the weight loss and lack of appetite. It does get better I promise and if it helps him and HE realizes it, don't take that away. I can only imagine how our kids feel inside. As for the depression, just let him know that you love him and that he can talk to you about ANYTHING and most of all that NOTHING is worth losing your life over (this is of course when he gets older and hears the word "suicide") You wouldn't be a good mom if you just ignored everything and was not the least bit concerned.

Cherelle - posted on 02/23/2009

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My 5 yr old daughter was just placed on Vyvanse for a trial run. I see more attentiveness in her it is wonderful. Like most of you she has the loss of appetite and the school is getting angery becuase she won't est or hardly eats lunch. She eats a good breakfast and has a snack afterscvhool and tehn has a good dinner . I am not worried, so I am wondering why they are. She was just weighted at the Dr.'s office and she is where she normally is.

As for depression...I don't knw if I see that but i do know when she is comming down off her meds. SHe gets fussy and grouchy. Sometimes she cries or she will just yell when you talk to her but other tahn that I have seen wonderful improvements.

[deleted account]

Weight loss is a side effect.  When my son was put on it I informed the school of this side effect.  They monitor is lunch intake and let me know how much he ate.  He is also on the smaller side.  He wasn't eating much.  I sent him with 2 snakcs instead of one.  One was healthy and one was high calorie junk food.  His teacher allowed him to take an afternoon break in the hallway to eat it.  I noticed that he would chow down the junk food.  I think it was not because he was hungry, but because he was able to do something that the other kids weren't allowed to do or have. 



How many MG's is he on?  It might be too much.  Try opening the capsule and giving him half.  I also noticed that when I split the doasge that he ate more as well.



Why do you think he is depressed?  COuld it be that the Vyvanse is working and he isn't quite as hyper? I noticed that my son was more quiet and laid back on the med.  Not that he was sad.  If you son is saying he is sad, take him off that med asap! 



This med is a wonder drun IMO.  My son did a 180 in just days of being on it.



I do not give it to him when he isn't in school.  I don't have an issue dealing with him on weekends or school breaks.  Try that too is you are not already.  Since this drug is metabolized differently than other stimulants it is safer to not give on weekends.  It isn't a drug that a child can become dependant on.

Angee - posted on 02/02/2009

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My 11 year old daughter is on Concerta for ADHD.  She rarely eats while taking her meds.  It really worries me, but I try to just give her healthy snacks.  I am not sure how your son's medication works, but we try to skip the meds on the weekends and school breaks so she will eat better.

[deleted account]

i would ask the doc about other options, it think they would all admit meds are very trial and error and each kid reacts a little different



my 6th grader has  tried many things with mixed results



in 1st- 3rd grade  he was super skinny - we often fed him Ensure because he had no appetite- i think he was on concerta back then



i don't remember exactly when we switched to Adderral or when we added in Abilfy at



but on this combo he has ballooned to about 130 lbs. - he is less than 5 ft tall with no muscle tone- he is quite chubby BUT his behavior is much better



we tried Vyvanse when it first came out but Vyvanse nauseated my son so much that we went back "the chubby drugs" and are trying to get him to be more active and eat healthier



good luck to you



 



 

Tina - posted on 01/27/2009

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My son, who is now 13, has been on medication since he was 8 for ADHD. I just switched him to this medication a month ago because his other medication, Daytrana stopped working. My son is also underweight and has been since being diagnosed. His neurologist recommends Boost twice a day until he started to maintain weight - he's now down to one Boost a day.



My son had a bad experience with Adderall with psychosis (depression that lead to thoughts of suicide) at age 10. I don't mean to scare you but PLEASE pay close attention to his moods especially if he starts withdrawing all the time. If this happens, talk to his neurologist. If he's being treated by a pediatrician, I recommend finding a GOOD neurologist.



The best advice I can give you on that is try to get him to talk about his feelings. Ask him if he's having problems with teachers making him feel bad. Children with ADD or ADHD have issues with low self-esteem and the LAST thing they need is for teachers to come down hard on him or expect more from him that what he can possibly give (currently going through this with one of my son's teachers). My son has been on a 504 plan which gives him special accomodations for his homework and tests. He may just be feeling overwhelmed.



I hope this helps!

Stacy - posted on 01/27/2009

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My son has tried almost all of the meds. He had the most weight loss with adderall. Vyvanse seems to cause less weight loss and less depression for him but I think the kids react differently to the meds. I agree it is trial error.

Michelle - posted on 01/26/2009

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I am having some of the same problems. My daughter is 10 and been on Vyvanse for over a year. She has always been a small girl but at 10 she is only 40 pounds. The meds do help her as far a s concentration but not all the time. There are days that we struggle. She is on the side that has tantrums, and they can be bad. I would like her to try other meds but she just can not swallow any pills. We are mixing the Vyvanse in OJ in the morning to get her to take it. Has anyone had better luck? This is a really hard battle. It is nice to know that there are parents out there that are like us.

Cheryl - posted on 01/26/2009

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I have a seven year old son who is diagonosed with ADHD and I am having the same problem, he is on ritalyn and he has improved so well in school but he was very skinny to begin with and now i am even more concerned

Lorelei - posted on 01/25/2009

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Hi Karen. My son was never on Vyvanse but when he was on Concerta he had the same problem with his weight. We would give him an Ensure/Boost shake in the morning with icecream along with his breakfast before we gave him his med's. We would do the same at night before bed, once his med's had worn off for the day. He didn't gain weight but he at least was losing anymore with the extra calories we were providing. Good luck. I remember the stress of seeing my son so thin and wondering if it was worth it. Definitely get a professional opinion about the depression. Maybe there is a different medication that would work for him without the same side effects. :)

Debby - posted on 01/25/2009

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I totally know what you're going through! My 7yr old son has been diagnosed with ADHD and cannot concentrate without medications. He is also very skinny, is a horrible eater and his mood swings recently became horrible! He is on Adderal and takes that during the day to help with concentration. We recently started him on Clonidine before bed, and he is like a brand new kid! He is happy again, smiles all the time, and this medication does not affect eating habits. I'm so happy to have my son back. I first learned of this medication in a book on ADHD, and then contacted my pediatrician who contacted a few psychiatrists prior to prescribing this... I hope this information helps.

Karen - posted on 01/24/2009

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My daughter is 8 also and has been on vyvanse for approx 6 months. She lost weight at 1st but has leveled out. She only weighs 49 lbs. I continually make her eat meals and small healthy snacks. The emotional roller coaster is better and not as often. The focusing and staying on task are both better. My ADHD kid's personality is more emotional though. Hang in there!

Karen - posted on 01/20/2009

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Thank you guys for all your thoughts...you have really just confirmed what i already know...i was a teacher and am now a nurse so i have experience with both sides...but sometimes that just makes me fight for both sides....i had great reservations about meds in the first place and am struggling with that...however the 180 change in my son has made me realize they are not bad things....i have been thinking of starting the ensure or boost at breakfast..and now will for sure do that...he does eat at supper....i've just tried to tell him that some people who are over weight should not eat unless they are hungry but skinny people need to eat at the right time even if they don't feel starved....we have made a little pact over eating and this has helped alot in the last week....hs is in swimming and that started the same time the meds did...so think that may be playing a part with the added activity...it ends in february so maybe he will pack on the weight...thanks again so much everyone....

Sandra - posted on 01/19/2009

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My son takes this medication too. He is 11 and has been on it for a year now. He wouldn't eat at all at first and lost around 12 lbs, and also was very skinny to begin with. But I just kept offering him foods I knew he liked and he learned to make himself eat. Then there was the issue with not being able to get to sleep at night. So we had gotten the Tylenol P.M. which is non-addictive, and helps if given an hour before. I am sure he will eat again. Just don't give up. I love Vyvanse. He is so much more attentive now, and cares so much more about school and his grades. So I believe that the good does out weigh the bad. And the depression I can't comment on. We do not have that issue. Maybe it is something you should talk to your Dr. about.  I hope this helps some.

Vikki - posted on 01/19/2009

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My son is on Vyvanse too, and he goes in spurts of eating, but he also has Bipolar so one med makes him crave carbs on one decreases appetite....  (and then he eats so fast he pukes!) or not wanting to eat at all.  I give him the Ensure with his breakfast and then his Vyvanse, so I know he has food at least at breakfast.  At school, his teacher has been good about letting me send snacks so if he doesn't eat lunch he has the option to have a snack.  My doctor reccomended that he sit at the table for 15 minutes and then if he doesn't eat, give him another supplement, but not to just rely on the ensure.    Good luck. 

Heather - posted on 01/16/2009

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My son, 9 years old now, had to be on 2 different medications (Concerta and Vyvanse) and 3 different doses before we got the one that worked well for him.  Initially the problem was the same as your son's, he lost weight and then for over 2 1/2 years he did not gain any weight.  This can and should be a concern for you.  He too did not want us to take away the medicine, he sat in class and cried when we were changing it because he knew he had such a hard time without it.  Once you find the right fit for his health and for his ADD  you will both feel better.  I agree with the other moms, see a psychiatrist who specializes in this area.  They are much more knowledgeable about the medicines and the side effects.

Colleen - posted on 01/16/2009

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My boys have been on Vyvanse for almost a year;. Their appetitie did decrease a little but they only lost like 1 or 2 pounds. Now, they eat a huge breakfast, very little lunch and a normal dinner. They have been maintining the same weight for almost the full year. They do not duffer any depression like symptoms at night. I would definirely check with your doctor about that. I know that kids react to medicines differently and maybe Vyvanse isn't the right choice for your son.

Deecii - posted on 01/15/2009

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My 13 year old has very little appetite until which time the meds seem to start wearing off. He eats a decent breakfast prior to taking them even though the directions say to take up to 45 min. before eating. He wouldn't eat if I did that. He eats very well at dinner and on the weekends. He is on Ritalyn. We are about to have a mental health professional assess the current doseage as I am not sure it is right for him and I have been told that mental health providers are really more expertised then pediatricians.

Christina - posted on 01/15/2009

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my son is in the 95th % for height and the 5th % for weight- you can't get much skinnier than that!- and his psychiatrist has seen some good results prescribing Periactin along with the Vyvanse... it's an anti-hystemine that in small doses has shown to increase appetite.  We called it his "hunger medicine".



we also had him drinking ensure shakes between meals at school for the added calories, but we recently made the biggest breakthrough of all: most of his lack of appetite wasn't even because of the Vyvanse (or any other meds we tried) and it was more than just a genetic predisposition to super-skinniness: he has food allergies that caused him to not want to eat!  Since cutting out fresh fruit (of all things!) and any cross-contaminants from nuts/peanuts, his appetite has picked up and his weight is slowly coming up, even though he's still on Vyvanse.



As for the depression issue... Stacy Jones was 100% accurate in stating that you need a professional to handle that one.  Our pediatrician won't prescribe stimulants, and neither will our GP.  Going to the psychiatrist's office may seem a bother, but being there every month gives my son and I both the opportunity to bring up any emotional issue or physical issue that could be a result of the medication or that another medication could handle better.  My niece cried herself to sleep every night on one med and was absolutely the picture of peace on another.



Good luck!

Stacy - posted on 01/15/2009

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Most stimulant medications cause some appetite loss.  However, this should decrease over time.  Be sure he eats before you give it to him in the morning.  Also, if he feels it helps him so much, then perhaps he would realize he should not lose any more weight and must eat at least a certain amount to remain on it.  As for the depression, if it doesn't get better soon or just to give yourself peace of mind, call his doctor to seek his/her advice.  As both a mom of an ADD daughter and a Therapist, I recommend that you get these kinds of meds from a psychiatrist and not a pediatrician or family practitioner.  I want a specialist in this area if I'm going togive my child such serious meds.  They will also be able to best advise you on the depression symptoms.  Lastly, if you have to switch meds, reassure your son that if Vyvanse helped him, some of the others likely will too and maybe without  the side effects.  It's a little bit (or a lot) of trial and error and we have to be patient sometimes. 

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