Aas just wondering if anyone else has a child with asthma...

[deleted account] ( 32 moms have responded )

and how u cope with hospital admissions. just want 2 know im not the only 1 with this problem as its heart breaking seeing my littl girl not being able 2 breath properly.

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Christina - posted on 04/24/2010

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please dont feel that breastfeeding longer would have prevented asthma. it doesnt and no dr should have told you it could have been prevnted!

I have 4 kids all with a version of asthma one severe but controlled now the other 3 mainly when sick or seasonal allergy. ALL Breastfed!!!
my severe astham child is now 10 and even with over 9 years manageing her asthma it is still something i worry about daily with her.

She was the child age 1year to 6 years that spent EVERY holiday and birthday in the hospital. She had RSV and FLU, phnominia ( i should know how to spell it now but i dont) you name it atleast twice a year. We had her all all kinds of meds and neb treatments and oddly enough when we moved to a new state she improved. improved to the point she has had NO admissions for 4 years now, a few times i was crying on the phone with the ped asking for her to be admitted but he talked me into thinking about her and just keeping up home care. (my daughters request is to not be admitted into the hospital unless its last resort she is really sick of them)

she still gets sick but i know now to not wait for her to be gasping for air at the start of coughing or even needing an inhaler more then twice in a day its time to start predisone and call the drs. and yes i did say start the pred. then call the dr :)

My daughter was one of those kids that had a portable nebulizer with her at all times and used it along with alot of benadryl.
Of course we try to avoid sick people and allergy triggers BUT we are letting her be a child and with proper meds and preventive steps it can be controlled for my daughter now.

ya know i read all the above comments and thought i wouldnt do the "story of my daugther" LOL guess its something we all do need to share to give hope and help others understand you are not alone with the daily battles of asthma.

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Candace - posted on 01/23/2012

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It's hard my two year old seems to have many trips to the children's hospital cuz of his asthma at least every couple of months and In between that time we have many attacks at home! Just the other day he had three attacks with in a four hour period! His doctor tells us now not to go to te ER unless it's 4 times in a 4 hr period other wise we would be there a lot!

Kate - posted on 01/21/2012

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it really is so hard when your bubba has athsma and i really feel for you as well as all the other mums who have posted!



my son has aspergers and HATES to be touched, he also has athsma. it is so awful having to watch (and help) a bevy of nurses/ docs hold him down to administer nebulisers, steroids and such.



we try n keep him away from cat hair, cigarette smoke (though people can be so rude in this respect - lighting up right next to us) but he usually ends up in hospital when he gets a cold or flu.



the good news is - he is now four and it is not as bad as when he was younger.



Take care! you are, most definately not alone!

Sara - posted on 11/28/2010

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My daughter has had multiple hostpital admissions and they never got easier, watching her oxygen levels sink and her breathing getting harder even while on oxygen. Those are the thing that keep me up at night but we have found that keeping a bag packed with activites for her ( and me) supportive friends and fabulous nurses who will hold your hand while you cry in a corner really help. Now that we have her asthma under control we havn't had a hospital admission in over a year yippee!

Amanda - posted on 08/03/2010

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Its hard to watch our babies have problems breathing, during certain activies run them down, hospital visits late at night are rough... My son at brith came out with a breathing problem, at 3 still has a issue its not as bad now but last year before his dr ran allergry test i didnt know what his issue was other then he had asthma, but little did I know his Milk and foods and just about everything around the house and in was causing him to be worse. after i found out everything i did had to be be done different the way i cooked what i fed him, how i did laundry and many allergy shots and a bunch of meds. now its alot easier to deal with and the common cold is better to handle. but its painful to see them struggle to take a breathe and...One thing I notice when i was running him the ER on a cold night his breathing would get better, the Dr said it helps open the air way, steaming bathrooms too. If your child coughs alot at night then dust mites could be a issue or atleast it was with my child. I removed all the carpet from him room a nd curtains too. no stuff animals in bed and washed his bedding with HOT water atleast once a week. certain times of year when allergies are high bedroom windows stay shut, out door clothes are changed once in doors to limit draging all the allergies being brought in. as a stay at home mom I feel i work harder then if I was actually at work. you will hear this many more times stay calm keep on top of meds never skip a day just cause your child appears to be fine.

[deleted account]

You are not the only one. My daughter was diagnosed with asthma when she was 15 mo. old. It is very heart breaking!

Tanya - posted on 07/03/2010

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my little boy is 9 months and has been struggling with bronchiolitis for amonth now. They say it may not become childhood asthma but then again it could. He's been on a nebulizer machine as well as having his asthma spacer but it breaks my heart every time we use it. He doesn't understand why we're doing it... I don't have any advice or helpful hints.... just a whole lot of empathy! It's definitely not easy! All the best!

Shanna - posted on 06/01/2010

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Anita, get educated. ask your pediatrician about classes that teach you about asthma in young children or go to the book store or library and start reading. The best thing you can do for your child is to learn what the disease is and what can trigger it. I have three girls, all with asthma. My oldest gave me the worst scares as a baby but has outgrown it. She rarely has issues. My youngest still has issues and needs to be reminded to take her meds. I've had it all my life and with a great doctor have it under control. Education is the name of the game with this disease. Good Luck !!

[deleted account]

My daughter was just diagnosed with Asthma yesterday! She just turned one years old and was put on an inhaler with an arrow chamber. She has been wheezing for quite awhile and always seemed to have a cough even when she didn't have a cold. We are totally new to this!

[deleted account]

My 12 year old has had asthma since he was 2. Way too many hospital admissions to count over the years but I can tell you one thing...even as they get older it still hurts to see them hooked up to oxygen and lying in that bed. My son has been on every medication available and for a long time I thought we'd never get it under control. I personally do not think anyone *outgrows* asthma...but I do believe it can be controlled, like my son's is now thanks to new medication. It's rough but after a while, it just becomes part of life...you live with the daily meds, the hospitalizations, the er trips, the calls from school...all of this is just normal to me. My son has been tested for everything and it all came back negative so we've figured out that weather (the actual changing of) is his trigger as well as having what should be a normal cold for most other children. We just watch him, make sure he takes his medication and allow him to lead a normal life!

Angel - posted on 04/23/2010

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My son's first hospital stay he was 1 yr 8 months old. He had trouble breathing for a few days and it got really bad at night. So I took him in and he had to stay. His oxygen was down to 89, which is quite low for someone so small. I felt horrible for not recognizing the sigs earlier, as I also have asthma. He has only been back to the hospital a handful of times, and not overnight again so far. We got referred to a pediatric doctor who specializes in asthma. He is now on Qvar 2 times a day, and Ventolin when needed. It is working out SO well for us.



I have asthma and have all my life. My asthma doctor said if you breastfeed it reduces the risk of asthma to your children! I did not know this. Its sad to think I could have prevented his asthma. Mind you I did breastfeed, but only for 4 months. Then he got bronchitus and refused to breastfeed anymore. If only I had been more persistant! I know with this one (that is due any day now) I am going to try and breastfeed for as long as possible!

Lian - posted on 04/16/2010

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My daughter was first hospitalized and diagnosed with asthma when she was four months old... both her father and I have asthma as well so it isn't that difficult to keep it under control since I know what to steer clear of... but I agree that it is heart breaking just listening to her wheeze in her sleep. Shes fourteen months now and still gets nebulizer treatments daily to keep her asthma in check.

Amanda - posted on 03/17/2010

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my daughter was diagnosed with asthma when she was 4 yrs. old but then only reluctantly..we kept thinking she was sick..she's almost 9 yrs.old now and hasn't been to the hospital since she was 6.Her asthma was out of control until we found that controlling her allergies were the key.Now....no allergy symptoms means no asthma symptoms! daily inhalers and singulair tablets are just a part of life

Tara - posted on 03/15/2010

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my son is 6 now he goes to the hospital and stays in the hospital by him salf due to i have got another son and a new born and my hubby works 247 so ya he does this all the time

Ashleigh - posted on 02/17/2010

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I have a 2 year old that was diagnosed with asthma on his 1st birthday. He had pneumonia and couldnt' catch his breath at all. Its real tough to deal with, but if you were fortunate like we were we had fantastic nurses that would come sit with your child just so you could take a shower and have that moment to yourlself. You have to take time for yourself I know its hard but if you don't get a break you will be more irritable than ever. I remember when I was a child in the hospital.. (i was there often because I have asthma as well) I would be upset when my mom would leave the room. But so excited when she would return. I now understand why she had to walk around by herself. I wish you well and bless you!

Chelsie - posted on 02/05/2010

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I hear you. Both my boys drew the short straw and have asthma. My eldest is 3 and has been admitted twice although we seem to be able to manage it now and my youngest is now 13 months and he has also been admitted twice. It took us forever to have the youngest diagnosed as asthmatic and it was horrible to watch . The real problem is I am asthmatic myself and although mine is now controlled, I remember exactly what it feels like when you are having an attack. It absolutely crushes me to watch my boys struggle for breath, although they both seem to remain happy and talkative (another trait they get from me). The one thing I have learnt is to watch for the first signs of an attack onset (colds, coughs etc) and try and get on top of it then and there. If we haven't managed to and end up in hospital, being prepared is the next best step. Make sure you have eveything from changes of clothes, snacks, drinks. magazines etc and desperately try and get the child to have a rest as it is so draining on them. Other than that there is nothing that can make you feel better other than having faith in the hospital that you have gone to and trust that they will do everything to make your child as comfortable as possible. Thinking of you and sending you strength and stamina if and when it happens again.

[deleted account]

Hi! I am an asthmatic and was diagnosed at the age of 3. I was on holiday in the Isle of Wight with my parents when through laughing lots, which was a good thing, they heard me start to wheeze. I dont remember much about it thank goodness, but they took me to the Doctors and ever since I have been on steroid inhalers. It was horrible when I discovered that my first born had it too. He had got a cold and I heard him start to wheeze and heard an asthmatic cough. Sure enough, he had asthma. The medication he is on is much better than mine was and they even say now that they think he is growing out of it!
I was a poorly child going in and out of hospital on the nebulizers. I dont know how my Mum did it, because when my lad was little, he was in and out too. We had two serious episodes where he was so ill that I could have called out an ambulance as we were made to wait in the waiting room of a surgery. I would rather have taken it from him than him suffer like this. All I can say is that it is heart wrenching and that my Mum would get me something special for whenI had to go in hospital. My memories now are of those things and not my struggling for breath. My Mum hid her upset very well but I think that while I was in bed and well enough to sit in the day room, she would take herself off and have a little cry.
I really hope that they get your daughters asthma under control and that she can start leading a normal life and that your viists to hospital become less and less frequent.
Sending you lots of love.
Emmax

Sheryl - posted on 02/04/2010

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I feel ya I was a single mom and only had a few freinds no family around, at 6 months old my son went in for his first hospital stay and had 14 of them with a few other er visits! They told me he had asthma after his 3 hopital stay which he always goes into severe respitory distress they tried all kinds of med that never work. They said he had reflux and added previcid to his list of meds. They did all kinds of test ph test, colonoscopy, endoscopy, and eventually a bronchoscopy that is when they found that he had brochialmalacia and that is why the meds never worked. The only thing that helps is time and that it did we have been doing real good this last year and am hoping to start wheening him off meds soon! He unfortuanally had to take so many inhaled and oral steroids it stunted his growth he is 3 and is the size of a 18 month old. I just hope he will be ok now and will start growing once he is off all the meds.

Kate - posted on 01/06/2010

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I had to take my son in when his asthma got really bad one night and, luckily, he wasn't really bad, but bad enough! He only used to get his asthma when he got a cold, but when he got the cold, it got bad quickly. He is now in the steriod inhaler once in morning and once in evening and that's helped brilliantly. It just takes trial and error to see what's best for your child so she hopefully doesn't have to go to hospital.

Michelle - posted on 12/30/2009

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Like most things in life it is hard but you gradually get used to the hospitalizations as part of normal life. We keep a backpack packed full of games,toys, puzzles,A suit of clothes each and loose change in the car at all times so if and when we have a hospital stay we are prepared. The hospital we stay at is small (10 patient rooms total ) and we know all the nurses by name. They cater to kids wants and desire so for my kids the oxygen hose and IV suck but they get spoiled like you would not believe. You have to create a relationship with your nurses and hospital personnel as over the years they become like family.

Amanda - posted on 05/06/2009

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My daughter first had an admission when she was just 9 days old her oxygen level had dropped to 85% and her temp was slightly elevated/ the Dr's did everything they knew to do at the time to try to explain what had happend/ the did blood culture/ spinal tap/ 48 hr IV antiboitics/ and and 48 hr oxygen/ every test the did was negative/ no Dr. at the time was able to give me and my husband a DX. So at the age of 9mo here we go again with wheezing they put her on breathing treatments. My husband got out of the military we moved for NM to GA I took her to a new Dr. the 2nd time he ever saw her at about 18mo of age he said she has asthma. He put her on her maintaince meds. She has been in the hospital just 2 times since/ once after I took her to the zoo/ we tried to treat it at home for one week with no relief/ the other time was when we had no idea that our gas heater had a leak. Although we have had numerous trips to the ER once I can remeber the waitress put us in smoking vs the nonsmoking that we requested we left before we finished eating with her wheezing went straight to the ER.. As your child gets older you will find what triggers his/her problem and learn how to adjust your life to accomadate them. Believe me it does get eaiser/ or it has for me.

Katrina - posted on 04/23/2009

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Hi both my children have asthma,
my 4yr old daughter isn't as bad as my 9yr old son. My son has always suffered with his chest from day one but the doctors put it down to croop, but after his 3rd birthday he had his first attack and he was rushed into hospital where he had to stay for 3 days. it is very heart breaking because you don't no yourself what is happening but the best way to handle it is to be carm. The doctors told me he would grow out of it by time he get to the age of 7
Hes been hospitalized 6 times though out his life and the last one he had was the worst one hes ever had.
So just remember stay carm for her sake.

Lucy - posted on 04/08/2009

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Hi all, my daughter has had about 9 hospital admissions in 3 years!! This morning she is wheezy as just getting over a viiral infection and doctors told me ot could bring on a viral induced wheeze. She is on the brown pump 2 puffs morning and night and singulair granules which i think its a wonderful medicine... x

Dana - posted on 03/31/2009

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My son had a nagging cough from 8 months on and our pediatrician kept saying "kids get colds and coughs"  I noticed that none of the other kids in the neighborhood seemed to react as badly to colds as my son did, but I wanted to trust my pediatrician.  We took him the the emergency room several times and even had to call an ambulance once, it was very scary.  Fortunately, our pediatrician went on maternity leave and we saw a new doctor when my son was sick - the first appointment with the new doctor and she said, "so your son has asthma and this is what we're going to do about it!"  After that we saw an asthma and allergy specialist and got my son on a preventitive inhaler (Flovent) and he hasn't had any issues in 6 months!



Moral of the story, maybe it's time to switch doctors. . . if you child is ending up in the hospital then their asthma is not well controlled and you need to look at more preventitive measures.



Good Luck!

Briandra - posted on 03/30/2009

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Quoting Sherri:



Quoting Hayley:

was just wondering if any1 else has a child with asthma and how u cope with hospital admissions. just want 2 know im not the only 1 with this problem as its heart breaking seeing my littl girl not being able 2 breath properly.







I have a 15 month old baby girl with asthma. She has luckliy not had to be hospitalized but, we have a large variety of meds we have to give her at home. I am a nurse so I think we have been able to manage at home with our physician's help. I think a good pediatrician helps or if asthma is severe you may need a pediatric pulmonologist to get it under control. We were constantly at md office the first year of her life. She was at daycare then. I have switched my hours at work and took her out of daycare. I have a individual who watches her only a few days a week for 3-4 hours and she is not around a lot of other small children. I think this has helped immensely. Keep asking your doctor questions. It also has helped us to keep house fairly clean, dust free and keep our child away from pets, cigarette and other smoke and any other allergy inducing things. Good Luck and God Bless. Sherri 






i totally agree with her advice! my dr. recommends i dont have her around any small children except the ones i cant help like her brother...kids carry germs even if arnt sick, we practice good handwashing and i try to keep house clean. i never have her around cigarrette smoke, and everytime she would stay at my mothers who has a cat her asthma would act up...my daughter also has been on so many meds ; albuterol, pulmocort, zyrtec, cingulair, flonase, of course the steroid when she gets sick and antibiotic,and a couple times he put her on another breathing treatment which made 3 so it seemed like all we were doing was her treatments and we never missed them at night i always woke her up, so i agree its the way you manage it. you just need a good dr, and pulmonologist to get it under control and keep away from allergens as much as possible

Briandra - posted on 03/30/2009

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yea i know exactly what u mean! my daughter was born 5 wks early and had some lung problems as she got older and kept getting viral infections everytime she would get bronchitis and would weeze and really struggle to breath, she would retract and that was so scary for me...she was finally diagnosed with asthma and refered to pulmonologist, she has been admitted 3 times and to er several and many many dr.s appts.  she is 21/2 now and her asthma seems to be getting better...shes been so sick in the hospital before that she was there for up to a week and they just kept giving her treatments and they were even giving her epi which worried me but it worked...her oxygen levels would get down real low and shed need oxygen...nothing more miserable for a little one or us than having to deal with that..i didnt realize it was so commom for little ones to have asthma...they recently took my daughters tonsils and adnoids out, after that her asthma and all improved...i wouldnt suggest geting that done at such a young age she was only 2, she had many complications with such a simple surgery...was hospitalized with that also...good luck with it, my best advice is to just keep her as healthy as possible and stay strong for her if it does...

Dena - posted on 03/30/2009

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Wow.....I had a hard time with the pediatrician. She kept saying that my son's weezing was just a chest cold, then when he had an attack during a baseball game next door to the hospital we went to the er the second we walked in the door & they saw that I had a child that was having problems breathing they got us in before everyone else & got him started on treatments. I have had to wait in the er waiting rooms before for other things such as broken bones but never for an asthma attack

Sherri - posted on 03/29/2009

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Quoting Hayley:

was just wondering if any1 else has a child with asthma and how u cope with hospital admissions. just want 2 know im not the only 1 with this problem as its heart breaking seeing my littl girl not being able 2 breath properly.




I have a 15 month old baby girl with asthma. She has luckliy not had to be hospitalized but, we have a large variety of meds we have to give her at home. I am a nurse so I think we have been able to manage at home with our physician's help. I think a good pediatrician helps or if asthma is severe you may need a pediatric pulmonologist to get it under control. We were constantly at md office the first year of her life. She was at daycare then. I have switched my hours at work and took her out of daycare. I have a individual who watches her only a few days a week for 3-4 hours and she is not around a lot of other small children. I think this has helped immensely. Keep asking your doctor questions. It also has helped us to keep house fairly clean, dust free and keep our child away from pets, cigarette and other smoke and any other allergy inducing things. Good Luck and God Bless. Sherri 

Terry - posted on 03/29/2009

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How old is she? I have my son who has suffered with asthma and allergies since day one.



 

Dawn - posted on 03/27/2009

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i know exactly how u feel......my son was 2 when he was first hospitalised, its so awful nobody understands unless they've been through it. i didnt even know it was asthma until i took him to hospital, his pulse was so slow he nearly died, it just came on so sudden! the doctors kept telling me it was hayfever!!!!!!!



The best thing you can do is stay calm ( iknow its difficult) if your child knows you are stressed then they will become stressed too thus makin it worse for your little girl, you need to be calm and reassuring.



the doctors have now given him a preventer (brown inhaler) which he takes twice a day, and touch wood hes not had an attack for 4 months

Jeanette - posted on 03/26/2009

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my son is 14 months old and has asthma... we only had to go to the hospital once, the day he was finally diagnosed at 9 months old... I hear u, its heart wrenching to see them struggle for breath, evening hearing the wheezing and having a hard time with normal play... my sons asthma is not that bad now he is on inhalers, except for when he gets a simple cold, flares his asthma to about its worse..... Hoping it is something he will grow out of, at least not get any worse...

Laurie - posted on 03/26/2009

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yeh i hear you.my 11 yr old just had an attack a couple of days ago. he has had asthma since he was real young about three i think it was.you need a good allergist so you wont have to go to the hospital.

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