My son is asthmatic and recently was diagnosed with a heart and respiratory murmur

Alison - posted on 08/13/2010 ( 9 moms have responded )

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My son is 8 years old and back in June he wasn't feeling very well so I kept him off school but with in 10 minutes he was so ill I rang 999. He was very confused, struggling to breathe, clammy, grey in color and had a convulsion which I thought was down to the fact that he also had a temp. Well the paramedic took one look at him and said hospital for him mum he is really ill and needs urgent attention. When we got to the hospital he had already had a nebuliser and was on oxygen. They took blood and did loads of tests. It came back that he was in hypoglycemic shock and was close to going into a coma so they gave him glucose and that brought his blood sugar levels up. But they admitted him for observation. They did nothing else and the next morning he was discharged for me to have to take him back 4 hours later. They kept him in over night again and the next morning the doctor decided to do a ECG as she could hear a grade 2 heart murmur and a grade 3 respiratory murmur. The respiratory murmur is the air-valve not closing properly so air is getting through when it shouldn't be.

The thing I am wondering is could the heart and respiratory murmur be a side effect of the asthma. He was born in distress and was given the diagnoses of asthma at only 8 months because he was in and out of hospital with what they said to start of with was infant respiratory distress and chest infection after chest infection. We are awaiting for him to go back into hospital for more test. He has had a 24 hour heart trace and a Echo which we are still waiting for the results from. And he is also booked in for a MRI scan, Camera down the throat to get a better image of his air-way valve, EEG and admittance for a 1-3 day supervised fasting to monitor his blood sugar levels and then once they are as low as they can safely let them go they are going to take more bloods for testing and then feed him and monitor his blood sugar levels while feeding him.

Thank you for taking the time to read this and I really appreciate any advice or info anyone can give

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Sara - posted on 11/28/2010

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I was told by all of my daughter docters that vitamin d and fish oil were helpful for kids with asthma. The Omega's in the fish oil help control the inflamation in the body, boost the immune system and help with brain development and function. They can also help mimimize the long term side effects of Advair. The Vitamin D is also really important for kids with Asthma quite oftem they end up with low levels becasue they are just not getting out enough. April is also bang on about getting rid of chemicals from your house. Surprisingly enough dryer sheets are one of the biggest offenders for asthmatics they blow irritants all through your house dryer ball work just as well, are cheaper in the long run and won't irritate the airways.
Good luck and I hope things have gotten easier

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April - posted on 10/18/2010

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Allison, there is so much research coming out with the direct link of Vitamin D deficiency and a link to asthma. The next time your son has blook work done, I would have them check his vitamin D levels.
http://www.webmd.com/asthma/news/2010091...
I would also highly, highly recommend that you remove ALL caustic chemicals out of your home. Bleach, Windex, Lime A Way, 409, etc and only use natural plant based cleaning products. Even when you are not using your cleaning products they are releasing chemicals into your home, it's called outgassing. Formaldehyde is especially dangerous and causes lung irritation. Beauty products, even Johnson and Johnson baby shampoo contains formaldehyde, shocking I know. It's a chemical called Q-15 that is used as a preservatitve.
http://safecosmetics.org/article.php?id=...
Again, I can not stress the importance of using safe, natural products in your home, especially when dealing with a child that has asthma. I am happy to share more info with you and how I went green for my family without it being overwhelming or expensive. Good luck and I hope your son is doing much better!

Alison - posted on 09/23/2010

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Sorry Evelyn jsut come back on after dealin with loads of hassle.

Ryan was admitted back into hospital again and the stupid consuntlant said he was suffering with migraines. I went back to the GP and he checked hi over. Changed his asthma treatment as he felt the pains and issue with hsi heart could be somethign to do with it going into spasm and so far we are know 3 weeks gone since his last episode with his heart. The GP can hear an intake murmur but sadly this can not be treated while he is still growing so we have to live with his heart intaking to much blood and not out-taking enough. Once has finished growing they can do surgery to fix the issue

Alison - posted on 08/23/2010

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Thanks Evelyn. Doctors where full yesterday so got to ring this morning at 8:30 to get him an appointment for today. He still isn't his normal self but is not longer looking grey which is a good thing. But even though he isn't his normal hyper self yet he has had another 3 episodes with pain and pins 'n' needles on his left side of his body so something isn't functioning right

Evelyn - posted on 08/22/2010

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Alison, that a great idea. You need another specialist to check your son. Good luck!

Alison - posted on 08/21/2010

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Doctors really drive me up the wall sometimes. My osn was admited to hospital with really bad chest, shoulder, arm and neck pains on Thursday and spent hours at the hospital Wednesday with the same thing. He could hardly breathe and was changing color and even though I had also treated it as his asthma the inhaler didn't work so I now it was down to his heart condition that is coursing the murmur. Well aparently 4 other doctors and 2 GP's are telling lies about him havin a heart condition that is th underlying course of the heart and respiratoryu murmur and what they are hearing are normal noises. His echo and ECH apparently are normal and yet the 16 hours he spent on a monitor that keeped going crazy and setting the alarm off because his heart was either to low or to high or his o2 sats was low is nothing. And the fact that my child who is normally hyperactive and never sitting still is 100% healthy even though he is lifeless and extremely tired is normal. Sorry doctor but my son is not normal he is seriously ill.

Sorry abkiut this post and rant just needed to get out somewhere. Going ot see ourfab GP on Monday and get him referrred to a different hospital and under a completely new consultant

Alison - posted on 08/17/2010

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Thank you Evelyn will take a look at that link. My son has had loads of tests in the past as he used to be a very sicky child but now we are taking extra precortions to make sure he doesn't get infections and stuff. He has had his immunity tested and that came back low. He is going away on a school residential trip in November and will be taking steriods and anti-bios with him as a back up precaution

Evelyn - posted on 08/16/2010

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Alison, I am recently new at circle of moms. I don't have much advise, but I do recomend that you check out this link and research, as perhaps your child's condition might be due to a bacteria in his lungs. I had a situation with my children for over a year they would cough at night and while exercising. The situation was getting worse regardles of all medications the pulmologist was prescribing them. Because I realized that my sons were not getting better, I went to a second opinion (Immunologist/Allergist) He said that my children might have a bacteria called micoplasma in their lungs causing the cough and other asthma symptoms. It turns out that three days after taking the antibiotics my son's were cured. No more cough! Anyways, the bacteria causes problems in the heart in addition to the respiratory problems. I strongly recommed you do some research and wish you a lot of luck with your son. Best wishes, Evelyn

http://www.asthmastory.com/meds/

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