My daughter was diagnosed with nephrotic syndrome aged 4. She was terribly swollen as is a side effect and was put on steroids which r just horrid. she has had many meds and many stays in hospital. many children can grow out of this horrible condition but for Lauren her kidneys are now too scarred to heal and eventually a transplant will be necessary. she now has FSGS, which is basically a follow on from the nephrotic syndrome except its not curable. I have not met many mums with children with this condition so anyone experiencing this, please feel free to come and chat!