Children with chronic kidney disease

My daughter was diagnosed with nephrotic syndrome aged 4. She was terribly swollen as is a side effect and was put on steroids which r just horrid. she has had many meds and many stays in hospital. many children can grow out of this horrible condition but for Lauren her kidneys are now too scarred to heal and eventually a transplant will be necessary. she now has FSGS, which is basically a follow on from the nephrotic syndrome except its not curable. I have not met many mums with children with this condition so anyone experiencing this, please feel free to come and chat!

1

CKD

Hello, I am just wanting to meet other moms and get advice about kids with CKD. My husband has medullary sponge kidney and we just had our 9-year-old tested yesterday and he...

1

WHICH HOSPITAL

MY SON IS COOMING TO THE END OF HIS TRANSPLANTED KIDNEYS LIFE SO IS GOING BACK ON THE TRANSPLANT LIST CURRENTLY WE ARE UNDER THE EVELINA CHILDRENS HOSPITAL IN LONDON, BUT I HAVE...

0

Hello, From Missouri

My name is Amanda. I am almost 32 and live in Mid-west Missouri. I am newly married to a wonderfull man (Brent). I have 3 children of my own, 4 step-children, and 1...

1

Introduction

Hi all, my DD is 10 months and we found out at our 20 week scan she had a muticystic dysplastic kidney (mcdk) and when she was 2 days old had a renal ultra sound and this showed...

2

My story...

My daughter started with Nephrotic Syndrome at 15 months after an MMR vaccination. She progressed to FSGS. She was on peritoneal dialysis at age 3, then she was put on...

1

Similar situation

I have a 1 and 1/2 year old son named Micah who is currently on dialysis nightly. We are awaiting a transplant as soon as he is 22 pounds, getting scared he is 20lb 13oz now....