Children with cleft lip/palate

This is for mom's with children who have a cleft lip/palate. Here we can discuss our concerns and ask questions.

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. 7
1

is she frustrated?

My daughter was born with a cleft lip and soft palate cleft. I looked at her when she was born and said to the midwife she has a cleft everything went from there. Now she is 18...

3

Twin with Cleft Lip and Palate

Does anyone in this network also have twins with Cleft and Palate. I have a ULCP and a BLCP. They will be getting their Palates repaired here on Dec 9th, at the same times, has...

5

New mom in Oshawa!

Hey I had my baby girl in November 2008 and she was born with a bilateral cleft lip and palate among other complications such as an imperforated anus and congenital heart...

1

Bone Graft

Hello Everybody Just wanted to know if anyone has had a bone graft surgery done for their son or daughter. My son is 8 and he is going to have Bone Graft surgery for his...

14

second cleft lip repair at age 5

hi im claire,my son is 5 and was born with a cleft lip,he had his first surgery at 3 months,only recently when we went to see his specialist dentist,she said that normally they...

2

Kinda Nervous

So my son is 4 months he was born with cleft lip and clefft pallet! he already had his first surgery at 2 months, my husband is military so we then moved to hawaii and tomorrow...

4

Blessings in disguise

Being the mom of a cleft child has changed my life forever - mostly for the better. I see so many depressing subjects on here so for once I would love to know what is your...

3

Pre-surgery questions???

My daughter is 5 months old. We did not discover her cleft palate until the day she was born. We met with the Cranio-Facial team at our children's hospital, and they had her do...

3

Need help with feeding my baby!

My little man is now 7 mths old. I am trying to feed him food (his pediatrition wants him to be on 3 meals a day by the time he is 9 mths old). I'm not sure if I'm feeding him...

4

A MOTHERS CRY FOR HELP

I am a single mom, I have a child that has a complete cleft lip and cleft palate. She had been in rolled in the CRS program in Phoenix St. Joe's hospital. . CRS( Children's...

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. 7
0

Microform cleft lip

Hi this is great to know this is here. I have a healthy beautiful 2 month old son and he was born with the tiniest microform cleft there is a tiny notch and scar- hardly...

2

Advice for grandmother?

My daughter is pregnant and was told the baby may have a cleft lip or palate. I want to be supportive but I don't want to make her more anxious. Do you have any advice for me...