Children with cleft lip/palate

This is for mom's with children who have a cleft lip/palate. Here we can discuss our concerns and ask questions.

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Bone Graft

Hello Everybody Just wanted to know if anyone has had a bone graft surgery done for their son or daughter. My son is 8 and he is going to have Bone Graft surgery for his...

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second cleft lip repair at age 5

hi im claire,my son is 5 and was born with a cleft lip,he had his first surgery at 3 months,only recently when we went to see his specialist dentist,she said that normally they...

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Kinda Nervous

So my son is 4 months he was born with cleft lip and clefft pallet! he already had his first surgery at 2 months, my husband is military so we then moved to hawaii and tomorrow...

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Blessings in disguise

Being the mom of a cleft child has changed my life forever - mostly for the better. I see so many depressing subjects on here so for once I would love to know what is your...

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Pre-surgery questions???

My daughter is 5 months old. We did not discover her cleft palate until the day she was born. We met with the Cranio-Facial team at our children's hospital, and they had her do...

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Need help with feeding my baby!

My little man is now 7 mths old. I am trying to feed him food (his pediatrition wants him to be on 3 meals a day by the time he is 9 mths old). I'm not sure if I'm feeding him...

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A MOTHERS CRY FOR HELP

I am a single mom, I have a child that has a complete cleft lip and cleft palate. She had been in rolled in the CRS program in Phoenix St. Joe's hospital. . CRS( Children's...

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hi

Hi my name is Krystena Houk. I am 17 years old, I have no kids but i thought that if i got on here i would find a penpal that has a cleft lip and pallet just like me. I was...

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Hearing Issues any advice?

My son was born with a unilateral Cleft lip/palate. He has undergone 13 surgeries the last of which was on Aug 12th for the Bone Matrix protein(Instead of Bone Graph),He is six...

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Surgery Date

We have our surgery date, June 21. The dr. is hoping it is the one and only for now. I would like to hear your experiences, good or bad and any advice for before and after...

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