Am I the only mom who has a son with a cleft lip and ADHD

Angelique - posted on 09/10/2011 ( 2 moms have responded )

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My son was born with a cleft lip we did not know until he was born, when he was 4 we found out that he has ADHD, then at 6 he has eye problems is there anyother moms with the same outthere?

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Jake - posted on 01/18/2014

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I am a 62 year old male with CLCP. While I always thought I probably had ADHD, I was just diagnosed this year. Then I wondered if there was a relationship between cleft palate and ADHD. From what I read, apparently there is. While always considered smart, I was hyperactive, and disruptive. I earned a BS and Masters degrees. My report cards are filled with ‘plays too much in class’, too many toys’, doesn’t pay attention’, needs to calm down’. However my 'outspokenness' has always been a hinderance in advancing my professional life. I moved a lot, quit jobs on impulse, and personal relationships were difficult. Sometimes I wondered if I ever had a thought that I didn't vocalize. But, despite all this, I am single, support myself, have a few good friends and am general fairly content. But my younger days were often filled with dissatisfaction. Maybe I have mellowed with age. Back then, I was always searching, wanting to find better ways to do things, unsatisfied with the status quo of everything. But now, not so much. The inability to hold my tongue at work is still problematic at times. But learning to understand myself is certainly a great help. 1-17-14

Barbara Johnson - posted on 08/31/2012

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You are not alone. I have a son who is now 15 and was born with a cleft lip and palate and has ADHD. We choose not to medicate him when he was first diagnosed in 3rd grade. In hind sight, I wish we had started medication. He is now being evaluated for medication becuse his freshman year of high school was so tramatic for him and me. He was suspended 3 times. and this summer his lying is out of hand. Both the suspension reasons and the lying are due to impulse control which Matthew has none. We had our son in theraphy all summer trying to learn better decision making skills and his therapist is recomending medication. Is there a connection between cleft and ADHD - I don't know. Matthew has also had eye issues (eye that drifted) and had to wear an eye patch when he was younger (at home only) and wore glasses up until this last year - all to retrain the brain to keep the eye straight. Matthew was adopted from Russia when he was 4 so the eye problem came from sitting in a crib, rocking and staring at the bars. I have two other adopted girls and they both have the same eye drift. Hope some of my ramblings are informative. Barbara

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