second cleft lip repair at age 5

Claire - posted on 01/24/2011 ( 14 moms have responded )

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hi im claire,my son is 5 and was born with a cleft lip,he had his first surgery at 3 months,only recently when we went to see his specialist dentist,she said that normally they do another op at 5 years,did nt realise that there would be anymore surgery,maybe i was told but forgot it was such along time ago,would like anyone who has been thorugh this already or know what it intails to reply please x x

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Karen - posted on 01/24/2011

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You'll have to talk to your plastic surgeon, but, I was told that the second surgery at that age (here they want to do it before they start kindergarden) is only for a 'touch-up" repair if things need to be done to make it look 'better'. My little guy is only 8 mths old and 4 mths passed his first surgery and I'm already talking about getting his lip fixed again. If you don't think there is a problem, I would worry about it, but it doesn't hurt to talk to the surgeon anyway.

Carrie - posted on 01/26/2011

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They told us that cleft babies sometime have a jaw bone that doesn't fuse together and they would xray at 3 years and if need be surgery at 5 or 6 and at that time they would do any needed touch ups. Hopeing we are good because surgerys are hard on the Heart!

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Angelique - posted on 10/05/2011

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@Karen Hi he had a reaction to the dissolvable stiches first time round which left a raised scar, so they did the other, I also asked for a antibiotic to make sure it wouldent happen again. his lip looks sooo much better but they did struggle to get the stickes out hes a bit of a drama queen they had to hold the poor child down and sent us out the room the second visit to get them out otherwise they would of had to put him out again was really tramatic for him. Jason only had a cleft lip but had a scar on his gum line and his one eye tooth only grew out around 2 years old when they did a exray they say his missing the big tooth altogether, so later on he will have to have that worted out with braces. Ya good luck when its your turn its really hard to keep them still after the second time, movies movies and more movies....

Karen - posted on 10/01/2011

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@Angelique, glad things are looking good. I'm surprised they have to take out the stitches instead of using disolvable ones. I'm not looking forward to the lip revisal surgery, good thing I have a couple of years to brace myself. He his soooo busy and is constantly climbing and falling that I don't know how I'll get him to settle down for a few weeks. He is also missing a tooth where his cleft was, has anyone experienced this and is it a big deal?

Rosemarie - posted on 09/29/2011

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Hi Claire, my son was born with a cleft lip, he had his first surgery at three months - he did well. We are also getting ready for his next surgery. This surgery will fix his gum and adjust his teeth - he has one extra tooth where the cleft was. His plastic surgeon is also goint to touch up his lip - everyone that sees him can't believe how great he looks...... I am 100 % positive that everything will work out.... My best friends daughter was born with a cleft lip and palate - and she had up to 3 surgeries and she looks wonderful - if you didn't know you wouldn't realize she had a cleft. She is 14 yrs old..... Surgeons today are incredible. Good Luck........

Angelique - posted on 09/26/2011

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Hi what a week Jason had his second lip repair my nerves are shot, the feeding food and liquids with a spoon, constant reminding he cant run talk too much go outside scream touch ect, thankgoodness they are taking the stiches out today. I sometimes wonder where the moms out there get the strength to go threw all of this. I landed up at the doc they thought I was having a heart attack at the age of 32 as my pannic attack was so bad. Thank goodness his lip line does look nicer hopefully the scar will be less than before. Sorry for conplaining or scaring other moms out there. Guess its worth it in the end.

Angelique - posted on 09/16/2011

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Hi Karen thaks for letting me know what age did they do the second lip repair and did they cut again or just do a surface repair.

Karen - posted on 09/15/2011

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@ angelique, I think it's easier to get the surgeries done when they are younger, good luck to you. When my little guy had his palate repair at 10 mths (he's now 15 mths) they decide to do another lip repair and it did look better. Good luck.

Angelique - posted on 09/13/2011

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Hi Went to see our plastic surgon Yeasterday and he is going to do a touch up on my sons lip he is 6 years old, he had his lip first done when he was 3 months old.The scary thing is he will cut the lip again to do the revision. Im feeling quite nervous just incase it looks worse and not better, have you found out whether your son needs further surgery? If so what will they do?

Riana - posted on 04/09/2011

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Hi Claire, was just wondering how you are doing and if they have decided on the surgery for your son yet? Let me know how it is going and how you are doing.

Claire - posted on 01/29/2011

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hes got a unilateral cleft lip,he had it pepaired at 3 months,we are due to have our 5 year check up soon,with the cleft team,and it was only when we went to the denist that she mentioned leaving some work that needs doing on his teeth until he had seen the cleft team as they would prob be doing some more surgey on him soon,so she could go in at the same time as him so they did nt have to put him to sleep twice,but i did nt realise that he would need anymore surgery and just wondered what it might entail x x

Riana - posted on 01/28/2011

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Claire, what type of cleft does your son have? what date is the surgery scheduled for?

My son has a complete unilateral cleft lip and palated, he had surgery at 5 months to repair the soft palate, and again at 9 months to repair the hardpalate and lip. He might need further surgery.Orthodontical surgery or repairs to the jaw bone will depend on how his teeth grow. They told of that plastic surgery would only be considered after he is about 12 and will depend on our and mostly his choice in terms of wether he wants it.

Either way, good luck with your upcoming surgery, it's never easy.

Claire - posted on 01/27/2011

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thanks for the reply carrie,yeah im hoping it not gonna be the case either,its not nice to see your kids going through any type of surgery,good luck with your child/ren x x

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