Dealing with my special needs baby, in a positive and graceful manner, when I just want to cry and worry!

Marsha - posted on 01/31/2009 ( 3 moms have responded )

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Hi, I am just joining tonight and would love any christian advice with dealing with the challenge of my sweet baby girl who was born with so many issues. We were very surprised when Ellie, my 17mos. old, was born with a rt. facial palsy, hearing loss, and other issues . I am so thankful for her and so glad she is here, but I tend to get bogged down, worry and fight depression. I don't want to focus on all that she can't do, but I do. I constantly compare her to healthy babies her age, and am so sad at times because she still can't even have complete head control, walk, talk or even eat on her own. I don't want to be this way, I know it is not christian and not good for my other healthy kids to see mommy down, or talking negative. Any advice? I pray, stay in the word daily and yet I still fail...leading to me feeling guilty and the cycle continues.... Thank you for your prayers! I know God has a special plan, but it is so challenging to see your baby suffer. SHe is so strong, but I am not, and I have to be. Thank you ,

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Heather - posted on 02/02/2009

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I'm so glad that I could help you. Please feel free to contact me anytime you want. I will continue to pray for you and Ellie.



Heather



 



Jeremiah 29:12&13 - Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart.

Marsha - posted on 02/01/2009

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Thank you so much, Heather. I love the journal idea. You would think I would have thought of that being a teacher, duh! I will take all your advice and I so appreciate you telling me your story. I, too, went through a divorce prior to having Ellie. She is from my second marriage, so I understand what you went through. ( He apparently was cheating our entire marriage. You give me such hope because I know how hard that was to go through, and how much tougher it is going through this with my baby. I can't imagine going through all of that at the same time! Wow, you are truly an inspiration.

Ellie is also deaf at this point, and already has little hearing aids.

I look forward to speaking with you in the future???

May God continue to bless you,

Love and Prayers,

Marsha

Heather - posted on 02/01/2009

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My son was born with Cancer, and lost his right eye. He went through 3 years of chemo, radiation and lazer surgeries to get rid of the tumors in his left eye so he could have at least some vision. This was also accompanied by hearing loss. He is now cancer free and in speach therapy because his hearing loss was so bad he doesn't speak well. God is good. He was always there for me when I needed him. While he was going through all of this my husband left me for another woman, I guess you could say it wasn't the best 3 years of my life. But I'm through it now. There are so many scriptures that helped me through it, I can share some of them with you, but I think the biggest thing was my prayer time with God. He filled me with such a peace that I never thought was possible, it was like my world was crumbling around me, but God was holding me in his hand and reassuring me that it was for the best. I am now remarried and love my life, I don't know what God is doing in your life, but I assure you he has a plan, and it will turn out better then you ever could imagin!



Philippians 4:13 - I can do everything through him who gives me strength.



2 Chronicles 20:12 - ...We do not know what to do, but our eyes are upon you.



2 Corinthians 12:9&10 - But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." ThereforeI will boast all the more gladly about my weakness so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.



Isaiah 9:2 - The people walking in the darknes have seen a great light; on those living in the land of the shadow of death a light has dawned.



I bought a cheap notebook at wal-mart and started writing uplifting scriptures in it, and I carry it with me always, then I whenever I get down they are right there to lift me up. I also posted some around my house and in my car for when I am home. Here are some other ones that you should look up if you want:



Isaiah 25:8, 2 Corinthians 4:16-18, 1 Thessalonians 5:16-18, James 1:22, Isaiah 41:10, Philippians 4:4-7, 2 Timothy 2:11-13, Isaiah 26:3&4, and Job 2:10. These are just some of the ones from my notebook. Just remember that God loves you, and you are not going through this alone. He knows the final outcome.