My 5 WEEK OLD baby was TAKEN from my custody: THIS COULD HAPPEN TO YOU

Heather - posted on 09/19/2010 ( 37 moms have responded )

31

45

0

My 5 WEEK OLD beautiful BABY GIRL was taken away from her loving mother due to vitamin D deficiency (RICKETS) misdiagnosed as child abuse. Please visit the (Rickets an Epidemic) page on face book and "LIKE" the page. PLEASE HELP SPREAD THE WORD AND SAVE ANOTHER FAMILY FROM GOING THROUGH THIS DEVASTATION.

http://www.facebook.com/pages/Rickets-an...!/pages/Rickets-an-Epidemic/153700587976477

Read "MY STORY" under the discussion board.

On June 3, 2010 my five and a half week old daughter was introduced to the Child Protection Team in a hospital in a local hospital' by diagnosing her as being a victim of child abuse. I brought my new born daughter to the hospital, after she woke up screaming in pain when i moved her arm. Upon multiple x-rays we found out that she had a fracture in her right arm that had a transverse configuration, without any evidence of external injury (we later learned that a transverse configuration is a typical fracture morphology in a pathologically fragile bone). Not understanding how this could have happened to my daughter, my boyfriend and I had no explanation for the injury.

Apparently because of the injury and our inability to explain how it happened, the doctors at the hospital suspected child abuse and contacted Child Protection Services (not the actual name of the agency) who sent social workers to the hospital to interview us. After several hours of questioning, they transferred us to another hospital.where we were immediately admitted to the Child Protection Department. After further x-rays and bone scans the hospital found multiple micro fractures throughout my daughter’s body, and a slight bilateral subdural hematoma.

My daughter’s initial physical examination revealed an asymptomatic child. She did not have any lesions, rashes, bruises, no external swelling, not a mark on her. The hospital did not conduct a careful assessment of my daughter’s physical condition or of my clinical and social history. They assessed her vitamin D levels which were low-normal, but not mine; they did not question me about my nutrition during pregnancy or my delivery. They did not take into consideration that I called her pediatrician on two separate occasions with medical concerns; one being that she had severe clicking in her shoulders which we later learned is due to joint laxity, a symptom of Rickets or that she had broken blood vessels in her right eye. Also knowing that I was breast feeding, he told me to stop drinking milk "stating that humans are the only other mammal to drink other mammal milk, which is not right" and he felt that me drinking milk contributed to my daughters gas discomforts. The pediatrician's office told me these were "NORMAL" occurrence's and not indicative of a need for a medical work up. Both hospital's did not act in an unbiased and reflective manner or take into consideration the totality of evidence. Instead, without conducting a complete evaluation, they quickly diagnosed my daughter as a victim of inflicted injury.

On June 4th my five and a half week old daughter was taken out of my care and placed in the state foster care system. Upon being involved with the child protection agency, the State appointed my daughter an attorney. Attorney S, has become an angel for my daughter and to my family. Thankfully, Attorney S took her job seriously and set out to determine the truth of what happened to my daughter.

After interviewing me and my family and reading the transcripts of the initial interviews of my boyfriend and I written by the emergency social workers from the hospitals, Attorney S requested all of the x-rays, bone scans and medical reports from both hospitals.

Attorney S asked several doctors to look at the medical information and give their unbiased, expert opinions who refused to touch the case because the hospital in question is very reputable. Thankfully, she finally reached out to Dr. Patrick Barnes, a world-renowned neuroradiologist who agreed to look at my daughter’s case. He referred Atty S to Dr. David Ayoub a diagnostic Radiologist out of Chicago IL, to look at the xrays and bone scans specifically. After an initial review of the films, Dr. Ayoub proceeded to acquire every medical record in existence on my daughter including my prenatal records and ultrasounds, my daughter’s delivery and pediatric records and he had me fill out a medical questionnaire survey.

After careful and thorough review of ALL medical reports he saw that my daughter was suffering from a metabolic bone disease which he diagnosed as INFANTILE RICKETS in the state of healing, and that her bones were in a fragile state. He also stated that my daughters skull showed poor mineralization along the sutures and large areas or poor mineralization in the center portion of the skull plates. In addition the parietal skull was flattened.

As Dr. Ayoud was evaluating my daughters medical reports, he aksed Atty S to suggeste that I go see Dr. Michael Holick, a world renowned endocrinologist. Upon his full evaluation of me, Dr. Holick found me to be suffering from Osteomalacia, essentially the adult form of Rickets, and also possibly Elhers Danlos syndrome which is a genetic deficiency that cross ties to my daughters metabolic bone disease.

This process took two months to complete and now, because of the lack of follow through by multiple health care providers including the Doctors at the hospital, my daughter has been without one of the things most critical to her young development, a caring and loving mother. And I have been robbed of some of the most precious moments I could have had with her.

Because it took so long to get the proper diagnosis and after being in foster care for almost two months, the child protection agency then decided to place to my daughter with her biological father who abandoned us when I was 2 months pregnant. He had not seen or even asked about his daughter until he was contacted by the child protection agency on June 4th, almost six weeks after her birth.

It has now been 3 months since I have had my precious baby girl. Even with two outstanding doctor reports from two nationally distinguished doctors, the child protection team doesn't seem to care that my daughter was taken from her mother in error. Because the child protection agency is essentially a body of law in itself, they have no legal obligation to take this new medical information about my daughter and myself and do anything with it.

It would take pages to explain the twisted system that is child protection services but this system is set up in such a way that there actually isn't a forum to bring this new information up in front of a judge unless the whole case goes to a trial, which would be months away.

This child protection agency and all child protection agencies were set up to protect children, which I totally respect, but where are the laws set up to protect the children and families from these agencies? What do you do when the Doctors and the the child protection agencies are the ones responsible for Neglect or Abuse?

Still to this day neither the child protection agency, or my daughters biological father have taken my daughter to get looked at by a specialist, to make sure that she is getting what she needs to fix her deficiency. (Thankfully, Dr. Ayoub assures me that because she has been fed formula since she was removed from my custody, I exclusively breast-fed her for the first 5 weeks, another risk factor for rickets, she is most likely safe from further fractures.) I am not allowed to get any medical information about my daughter as her bio dad has temporary custody. He is only allowing me to see my now 4-month-old daughter one day a week, at a supervised visitation center. In what kind of world does any of this seem right?

I will get her back, it will just take some time. I just hope that other families and children can be saved by being made aware of this epidemic. Health care providers need to be educated on these issues. Most doctors are not taught to know what to look for when they are dealing with rickets or other metabolic bone diseases. And when Neonatal Ricktes are in the stages of healing the vitamin D and calcium levels are usually normal or high. That's why it's important to test, everything !!! They need to do their due diligence in ruling out EVERY medical possibility before making their diagnosis's. They need to help save families, not help break them up.

MOST HELPFUL POSTS

Carla - posted on 10/18/2010

4,287

83

120

I find these replies shocking and appalling! The proverb that absolute power corrupts absolutely certainly applies here.



Could I suggest that you women band together and bring your stories to the press? I don't know if the liberal press would report it, but maybe FOX would carry it. SOMETHING needs to be done to hold these 'I am Right' people accountable!



God bless, dears, I am praying for you all!

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

37 Comments

View replies by

Laura - posted on 10/30/2013

1

0

0

Heather where have you gone, my internet support group person! Hope you're ok, wherever you are. Your rickets page helped keep me going through the toughest time of my life and I'm very grateful to you for sharing your story to the world. You deserve innocence and justice xxx

Carla - posted on 02/08/2013

4,287

83

120

Sadly, Angela, you are correct, whether talking about England or America.

Angela - posted on 02/08/2013

2,433

9

321

While Child Protection is a very necessary and important public resource, remember that Social Workers serving a district where there is very little evidence of child abuse or neglect will still need to justify their salaries! That's why they will make a big deal out of next-to-nothing.

Long grass indeed! And these people are public servants. Our taxes pay their wages!

It's all about their activity in their job - being SEEN to be doing their job when they're paid from public money. Not very different to Police Officers. In the UK, years ago, we had a public information film on TV (always shown during commercial breaks) about crime prevention. A Policeman used to come onto the screen and say "We'd rather prevent a crime than catch the thief!" and my father used to say "That's a pack of lies! They're paid by their results. No-one can say how many crimes he/she has prevented but they know exactly how many thieves they've caught!"

Carla - posted on 02/08/2013

4,287

83

120

Well, thank God the children are safe. Government can skew numbers however they want, to make even a horror story sound successful ;)

Susan - posted on 02/07/2013

41

0

1

Oh, they never left. It was just a threat. When we threatened to call the local TV station, they bought us some organizational supplies and closed the case. Still, it was counted among their "success" stories.

Carla - posted on 02/07/2013

4,287

83

120

That's shameful, Susan! I doubt if long grass is a detriment to your children. I have seen so much REAL abuse, and when you report it, YOU are deemed the bad guy, not the poor person in question.

I hope your children are back with you now.

God bless, sweetheart

Susan - posted on 02/07/2013

41

0

1

CPS is way too powerful, Our kids were declared "neglected" a few years ago. The reason? Because my husband was too sick to mow the grass, so I had to do it.

That idiotic woman actually told me that when the man of the house is too disabled to mow the grass, the children were automatically deemed neglected.

Stupid people.

Carla - posted on 02/04/2013

4,287

83

120

Good Susan. I have been sober since 1984, but there are STILL times when I think " I need a drink". Tell him to keep at it, it's so very worth it.

God bless, hon

Susan - posted on 02/04/2013

10

0

1

Yes thank You Carla. I needed that reasurence of that promise. I pray to him every day, and so far everything is being done correctly by my Children for the safety of my Grandson. Though when I talked with a protential CPS Lawyer female today. She told me to trust the Court Appointed Public Defender who would do an Excellant Job. This is where I will have to trust in God Almighty with the 12 facets of his Law of [ Integrity, Persistance, Endurence, Self-Control, Mercy ( Jeseric is mastering beautifully as he is finishing this month of using this facet ), Joy, Peace, Faith, Goodness, Kindness, Patiance, and Charity ] I have found that when using all 12 of these Personality Traits of Gods, one a month, till all 12 are mastered then when you begin to use all 12 facets. All problems smoothly begin to get solves, but right now Jeseric is using as much of all 12 and he is getting things accomplished better, because he is taking like, and his freedoms, and sobriety far more seriously than if he didn't use all 12 of these facets that is eventually setting his Son Free into his custody with the approval of the CPS Courts.

Carla - posted on 02/03/2013

4,287

83

120

You're welcome, sweetheart. I know having grandchild trouble is just about the worst there is. But I also know God is in control, and will bring things into being that we never dreamed possible. We just have to believe, with all our heart, that He hears and answers.

Please keep in touch, God bless

Susan - posted on 02/02/2013

10

0

1

I just got the new pictures of my Grandson today, and wow is he beautiful, and perfect, along with lolo the Mother with my son Jes, who looks so happy when he is holding his Son. Thank You Carla, and everyone else who reads this prayer. I beleive that God hears all prayers, and is hearing ours each time We set new goals to take care of what the courts ask of us.

Carla - posted on 02/02/2013

4,287

83

120

Abba, Father, Susan and her children need a miracle! But what satan means for evil, You turn around for good. We pray, Holy Spirit, that You surround them with Your warm Comforter, and shelter them from the arrows flying their way. We pray favor in court, so that even without a proper attorney, justice will be served, and You will get the glory. We pray faith to stand, when their physical strength fails. We pray peace in the midst of this storm, knowing, without a shadow of a doubt, that when we serve the God of the Universe, He comes through for us. I pray a quiet serenity for Susan to model to her children, so they will see the benefits of serving You. Now we thank You, Lord, that we can come boldly to you, knowing Jesus is standing beside You telling You how all this pain feels, and to undertake. We have a High Priest that has gone through the pain we feel, and makes a superior Mediator before You. We are confident that You are with us, and will never leave us or forsake us. In Jesus' Name, amen

Susan - posted on 02/01/2013

10

0

1

Thank You Carla I could really use alot of prayers right now. Both the children went to the CPS meeting, then LOLO had a stomack pain, went to the same hospital, then CPS had them get UAed there too before they could go to the next meeting on Monday with the Courts, and they are not even giving us enough time to get a Lawyer or find one for ourselves. This is just crazy to say the least. Then there are LOLO's so called girlfriends, who say that she went up there 4 times to visit Lolo but Jes says Kindra didn't at all, not even once since she left to go home. So I trust the kids, and they are now coming home at 10:00 from the Bus Station from the Hospital right now. They are so tired, and Lolo is still in pain with the stomack pains, with no medicine.

Carla - posted on 02/01/2013

4,287

83

120

So sorry, Susan. As a grandmother myself, I can't imagine what you guys are going through. My prayers are with you!

God bless

Susan - posted on 01/31/2013

10

0

1

As a New Grandmother I feel so sorry for your situation. This should be a special time for you, and the Hospitals should be helpfull, not hurtfull to new mothers at a time like this. If Doctors had done this 100 years ago, they would be saying that they were heratics, and deomons of the Devil. Now a days doctors cans do no wrong, yet they are killing 674,000 people every year compared to guns according to the statics Board. I feel for your pain for my daughter has just lost custoday right now of her two day old son right in the hospital from CPS, and she is so distraught and in tears all the time, yet we are holding up our faith, courage, and fight with a CPS Guardian at Lidem. Pray for us. Please, and Thank You all

Carla - posted on 05/24/2012

4,287

83

120

@Sarah--honey, my heart aches for you!

Unfortunately, you need an attorney to help you. Our legal system only listens when we get an attorney we can't afford. I don't know if you have legal aid attorneys in your state, but I would look into it. If you can't get an attorney, talk to your church, your friends, family, the local TV stations, everyone, everywhere until your voice is heard.

Our prayers are with you, honey.

God bless

Sarah - posted on 05/24/2012

2

0

0

THIS IS EXACTLY TEH SAME AS ME WITH MY SON WHEN HE WAS 6 MONTHS OLD HE IS NOW THREE AND STILL IN CARE ALONG WITH HIS OLDER BROTHER AND YOUNGER SISTER WHO IS 2 IN JULY. I HAVE RAISED THIS ISSUE WITH SOCIAL AND THEY HAVE SAID THAT THIS IS NOT A REASON AND HIGHLY UNLIKELY SO NOW WHAT DO I DO?.

Min DANITA - posted on 12/01/2010

6

20

0

Very Very Sad I work as a foster Mother. If If any comfort to you. I only get babies and i love and nurture them very as if they are my own children. You child advocate should petition the court for more visitationns .asking for the right of the mother to bond with her child You shoud she her at least 2 a week if not 3 I live in Philadelphia. We favor reunification almost 95%. Whe haven't your child advocate petition the court to move the court date up. Go to the Media to put pressure on them and sue the hospitals.

Oluyemisi - posted on 11/25/2010

28

20

4

signed the petition and the Lord will make a way...
you are in my thoughts and Prayers...

To all the Mothers here, thanks always for the Prayers, love & support...
Pls let's continue and the Lord will continue to strenghten us... amen

Elizabeth - posted on 10/18/2010

212

3

24

Signed the petition. Let us know when you get her back because it will happen. God bless

Anne - posted on 10/17/2010

49

36

0

Heather,
Can you tell me how you made your fb page for ricketts?? I would love to do one for my son's disease so moms who have been in our circumstance can join together as well. Ironically, the hosp that called us in was Boston Childrens..they have quite a reputation for themselves! Unfortunately I didn't know that before I went and silly me, I just wanted my son to get better. Cleveland Hospital is another quick draw hosp like Boston...pass the word~

Anne - posted on 10/17/2010

49

36

0

Heather, my heart broke for you as I read this. I too lived your nightmare and it took me almost 16 months to get my kids back. My son has a life threatening disease and through malpractice ended up septic in the ICU, they called DSS (children's division of social services) and because of their power and clout didn't take much for them to get my children taken away. During that 16 months my son received no care and was touted as 'cured' by DSS in court (despite medical opinoins to the contrary) but their paid off 'experts' said my son never had this disease and I made it up period. BUt the hospital that blew me into CPS Disagreed with CPS experts! It was a mess, but I quickly realized the truth had no place in the CPS system. These individuals make up their minds and do what they want when they want because they know they can and no one stops them. You can't sue them because as long as they are acting out of the best interest of the child, their actions are legal. When I was finally acquited and got my kids home, we took my son for a complete eval by experts in his disease and found that he had lost vision in one eye, hearing in another, had heart damage, high blood pressure, bacterial intestinal overgrowth and the list goes on. Now my son has permanent damage from their actions and they have dimished his quality of life. Now if we as parents did that we would be charged with child abuse, but CPS they can just walk away without so much as an apology..no in fact they were so angry they lost that the DA filed criminal charges and guess what?? The judge threw it out as they was NO evidence and he himself called this a witch hunt. Now they are appealing the decision. Because ya, that many judges are wrong and they are infallible. This isn't about doing right, is about careers, elections, and public image and they took this to the papers and lost miserably now they are desperate to be right. A church member of mine just took a 7 yr plea deal for a felony b/c he placed a rectal thermometer in too far and EVERY expert agreed it was a thermometer there was no evidence of any sexual intent purely a thermometer -- he is an uneducated, learning diabled father with limited understanding and no parenthood experience who thought he was doing the right thing by taking her temp rectally because it was higher than 102 orally. He needs parenting classes and supervision but not jail. Another mom was accused of munchausen by proxy (CPS's favorite b.c they don't have to really prove anything with this theory) it was proven she did nothing wrong, but 7 months later she still doesn't have her kids b/c CPS says no. They have too much power and it needs to be stopped. My advice for getting through this: GOD. My faith grew stronger than ever through this, I knew the truth, God knew the truth, those who love me know the truth, and it is HIS truth that set me free. No necessarily MY truth, but HIS. Stay close to his word, I lived in psalm and job. I am here whenever you need to talk, yell or scream. It so is hard to understand unless you have lived it. God bless all those on here offering their love and support, it is hard to believe that CPS would do such horrific things, such unlawful things here in America.My husband is a soldier and he is so frustrated knowing this is not the America he is fighting for. I am praying for me, that God leads me to peace in this. It has only been about 3 months now since they have been out of our lives completely, because they don't just say oops, go home, oh now its another 12 - 14 months of superivsion and crap to make them happy, and if not, then they go back to the judge saying you are uncooperative, not doing what you should, etc...and stay in your life forever, unless you have a judge that finally says this mom did nothing, get out of her life. UGH!! I hear more and more of these stories and it make me want to band together to make a difference for the children, protecting them from DSS' abuse! God be with you, and know He is her father and He is holding your daughter close, I remember holding that close to me all through the darkest of days. Do you have an attorney?? And if you have the law guardian (your daughters lawyer) on your side that is a HUGE benefit, I know our was critical to our outcome.

Shannon - posted on 10/09/2010

215

78

15

Hey Heather, I was in a similar situation but my son had acid reflux and ate like horse but didn't gain any weight and they said it was my fault for not feeing him and I took him to a childrens hospital and not even 5 minutes in to the doctor looking at him he spewed all over the place and that was all it took for the doctor to know what it was and since medication he has been fine. but the damage had been done by social service and so sometimes they help kids and some times they play by their own rules and make things worse. The agency that took my boy was called a snatch and crap agency and it's bad I was told that by another agency how scary is that. I was lucky I got my son back and everyone knows that it wasn't my fault and yet it will haunt me for the rest of my life if my kid gets sick for what ever readon are they going to say it's my fault living in fear is no way to live. I would love to adopt but unfortunitly it makes it very hard when social services has made it imposible. so I am basiclly cursed for live

Jennifer - posted on 10/09/2010

5

9

0

sorry dear will be praying for you my God will give you the strength to go through it and surely as my lord liveth you must come out stronger,hold unto the word of God

Judith - posted on 09/28/2010

28

17

0

I pray that God will be your stregth and your help in these trying times. I pray that your daughter will heal and that you'll both be joined together very very soon.
God is on your side and YOU WILL HAVE THE VICTORY.
Stay blessed.

Evelyn - posted on 09/24/2010

16

11

3

Omg, i'm sooo sorry to hear that. That is horrible that you got your beautiful baby girl tooken away because of an error the hospital made. I will prey for you and your daughter and hopefully you will one day get your beautiful angel back!

Lizzette - posted on 09/22/2010

6

10

0

This is so heart breaking!! I am so sorry you and your baby are going thru this... I will have you and your baby in my prayers.. I hope you get custody of your baby soon.. God bless you and your little angel, and please keep us posted!!

Alisha - posted on 09/22/2010

84

13

14

God bless and I will be praying for you to regain custody of your baby girl!

Heather - posted on 09/21/2010

31

45

0

THANK YOU SO VERY MUCH FOR YOUR PRAYES . Supporters to my RICKETS AN EPIDEMIC page on face book have started a petition so that laws and regulations can be changed to stop this tragic situtaion from happening to other families. I would greatly appreciate your support in signing this petition and passing it along to everyone you know. GOD BLESS
http://www.ipetitions.com/petition/ricke...

Jill - posted on 09/20/2010

572

18

71

wow... that is heartbreaking...i will pray for you and your baby girl that you will be joined together soon...please keep us posted

Carla - posted on 09/19/2010

4,287

83

120

Honey, I will be praying for you. This is tragic, yet I have heard of CPS taking children because their mother is breast feeding them, and other ridiculous reasons. They truly are a law unto themselves. God bless you.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms