Chromosome Deletion

Chromosome deletions networking group for parents of children with chromosome deletions. My son has a very rare deletions. For three years we have been doing the run around, so i know as a parent of a special needs child how frustrating it is. I as well as you hope to post info and questions in hopes to find helpfully info from other parents. To deal with issues we are having and cant find resolutions for these issues.Or just help full information. I am sure that there are many parents that are also new to all of this. I hope that tey can find guildance along the way. Thanks for checking us out looking fw to meeting you.

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2p16.3 deletion

my son has a 2p16.3 deletion. Im looking for parents who are going though the same

Started by Emmylou on 04/06/2013 in Chromosome Deletion

Last update on 09/12/2014 by February

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20P13 DELETION ??

any other mamas with a child who has a 20p13 deletion ? I dont know much about it now.. waiting to see the genetecist.

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Chromosome Deletion?

I am new to this whole thing my son is 7 weeks old and 3 weeks ago he was diagnosed with 4p- chromosome deletion and I was wondering what your childrens deletions are? does any...

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2p11.2p13 deletion

Hi, I'm 8 months pregnant and I found out a few months ago that my daughter has this rare deletion. From what I was told , she would be the 8th case in the world. I'm very...

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2p11.2p13 deletion

Hi, I'm 8 months pregnant and I found out a few months ago that my daughter has this rare deletion. From what I was told , she would be the 8th case in the world. I'm very...

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So complicated!!

My son is 4 and has a microdeletion of 2 and a duplication of 7 and also a deletion of 7. The doctors say they haven't seen the same in any other child so don't have many ideas...

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new to the community son has 8p23 deletion

My son is 16 months old and has 8p23 deletion. He has low muscle tone,hypertensia (delayed milestones), and high palette in the roof of his mouth which causes him to not be able...

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Partial deletion of Chromsome 9

I have a 14 year old daughter with partial deletion of chromosome 9. Apparently this is very rare. I have found some info on the disorder and read as people described there...

Started by Chrystal on 04/25/2013 in Chromosome Deletion

Last update on 04/25/2013 by Chrystal