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Heather - posted on 05/28/2011
You may want to check out www.cod.org www.rarechromo.org www.ncbi.nlm.nih.gov/omim to see if there are any connections to people there with your daughter's specific deletion or maybe at least more information for you. I'm 22 weeks pregnant and our son was just diagnosed with a C17p12 deletion. We haven't seen the Genetic Counselor yet and have no idea what this means. We can't find any information on it and have no idea what his prognosis may be...We can't find anything from any of the rare chromo sites or even google searches! Very frustrating and isolating! Wishing you all the best with your beautiful daughter.