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Crohn's Disease.....

Kimberly - posted on 08/27/2009 ( 2 moms have responded )

Hello! My name is Kimberly and I have Crohn's Disease. I was diagnosed in January of 2007. I fell sick with this and the doctor's where I lived at that time had thought that I just had an Eating Disorder and told me that I could not diagnose myself, well I did..Your right I didn't know what it was at the time but It just came to my mind and I looked it up in my Medical Dictionary and the symptoms that I was having was what I read.. I lost my Daughter due to this she was taking care of me instead of me taking care of her... When I went into the hospital in January a surgeon came to see me and by looks of my ex-rays she said it just looked like my bowel was twisted... Surgery came and I said to her can you check me for Crohn's and she said that they will check for everything... Well a One and a Half hour surgery turned into 4, by then my sister's were both getting worried... She had to stop what she was doing to get to where she wanted to go cause it was so bad that she could barley get to my Appendix. I ended up with a Colostomy bag for Eight months and man at the point that I'm at now with all this I wish I wouldn't have had it reversed... It gets to me sometimes that I just even want to wake up in the morning the only thing that keeps me going is my Beautiful Daughter Rebecca...

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Dorothy - posted on 10/21/2009

Hey there,

I am here if you want to talk. I have Crohn's Disease. I was diagnosed with mine in 1994. I had a recent surgery in July of this year and I am now on the mend. I can tell you that it is a debilitating disease. Especially when the dr comes in and tells you that you have to be on a liquid diet. I had to go to the counselor to help me with sorting that one out. I lost about 20 lbs this bout and believe me people look at me as though I am anorexic. I am difficult for the dr. I have a heart problem and allergies to sulfa. Which means that they can only treat me with cortisteroids and they have to be careful with that. I can tell you that if you watch your diet that will help my dr tells me that a low residual diet is good for me. Low fiber. Chicken and fish works the best as they are easier to tolerate. Try to steer clear of as much stress as you can. Stress will aggrivate it and make it worse.

Dot Green

Dawndi - posted on 09/29/2009

Hey sweetie!

I am so sorry for what you are going through. Although we both have Crohn's & I also have colitis, are journey's are different, but my pain and suffering have been the same. My daughter is 10 and my son is 8. I have been Ill for the last 9 years. I got so sick last year and ended up in the hospital with an infection in my colon called C.Diff. I had never heard of it. The doctor's kept giving me antibiotics and eventually it cleaned out all of my good bacteria. I had to take another antibiotic called vancomycin, which is 900.00 per week! Luckily my insurance covered it. Anyway, I was always sleeping, feeling ill. My daughter was taking care of me and watching her little brother. The role reversal is hard to swallow, but I also believe it is a learning lesson. Our daughters are strong, they will know how to care for ill people because of their experiences, they will be sensitive to others whom are ill. Where as now, others do not understand the pain..not just physical, the emotional effects it takes on us.

It will get better.

I am here for you.

Dawndi Ehrlich