Calley - posted on 02/09/2011 ( no moms have responded yet )
Evie recently had a stay in the hospital after having seizures brought on by high fever caused by a UTI and C. Diff. infections. We stayed 5 days in the hospital and then came home with a pharmacy of drugs.
Evie has feeding issues, only takes liquids by bottle, barely eats pureed food and absolutely fights us every bite. She has an Oral Aversion in other words. All of her medications were in liquid form but that still made her gag and throw up much of the medications. This entire experience brought up (again) the topic of G-Tubes (Buttons) for the use of passing her meds to her. We'd still work on feeding therapy and she'd still get her nutrition by mouth. But the hassle of pinning her down and basically doing a headlock to force meds down her throat so she may or may not vomit them up, would be gone.
This sounds like a blessing to me. Especially since the volumes of her meds will only increase with time and at a faster rate than she can handle. And in times of illness, she would have a back up plan for nutrition through the G-tube in case she couldn't handle it orally.
We are not enthused though about the thought of another surgery, nor another piece of medical equipment attached to her. My husband is very much against the whole thing, but we haven't really delved deep yet.
Please help. What are the pros and cons you've found with your child's G-tube/buttons?