Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. CDH strikes 1 in every 2500 babies1, of all races, religious backgrounds, and financial status - no matter how well the prenatal care. Nearly 4 million babies are born in the United States each year. This means that approximately 1600 babies are born with CDH each year - in the U.S. alone! There are more babies born with CDH than with Cystic Fibrosis (1 in 3900) and it's almost as common as Spina Bifida (7 in 10,000) 2 - yet, you probably have never heard of it until it affected someone that you love. The cause of Congenital Diaphragmatic Hernia is not yet known. 50% of babies born with CDH do not survive and sometimes the remaining 50% have to overcome very difficult medical complications. Many CDH babies have minor lasting health problems such as feeding aversions, asthma, scoliosis, or short-term oxygen dependency. A small number have major lasting health problems such as ventilator dependency, brain damage, or hearing problems. Many patients have no long-lasting medical problems at all other than a scar from the CDH repair. CDH can occur alone or with other birth defects, and rarely, it occurs as part of a syndrome. Every CDH baby is different, there is no way to predict the outcome of any patient. Some babies with no diaphragm and little lung growth have survived, while some babies with full lungs do not. These children are very different, requiring different treatments, and varying amounts of medical support


Unexpected CDH

Our daughter was born at 40 wks 2 days gestational age. We were told that everything was completely normal during our ultrasound and labor went smoothly. Her APGARs were 7 and...


Success story with CDH

My little guy was born with CDH on July 8, 2009 at Women's Hospital in Vancouver. Luckily we knew that he had a CDH at 18weeks gestation so we had lots of time to prepare. I...


having another baby

Hey guys, I know a big question that every mother has on there mind after having a CDH baby is 'should I have another one'. My daughter, and first child, was a CDH baby and we...


Making people aware

My daughter was born with and survived a CDH. Although she was a severe case, and we nearly lost her a few times after birth, we were lucky in the fact that it was picked up...



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