Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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Not Classic CF

Hi my name is Maryanne. I have two children with "mild " forms of cystic fibrosis. I have not been able to find other children with similar conditions. Apparently most people...

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Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

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not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

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Moms experiences with CF!

I dont know if this is the right place to post this but I need help. My son is going to Childrens hospital in 11 days. He has a awful sounding cough he has had since to months...

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R117H/5t

Hi, My son has a confirmed diagnosis of CF, but the genes that they have identified are R117H and 5T polymorphism. I am not sure how they work and what I am in store for. From...

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G85E

My son is six months old and has one mutation G85E and the other is unknown. We have bloodwork in at Johns Hopkins and so far they have not identified the other mutation, there...

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Toddler & enzymes

Any suggestions on how to get your toddler to swallow open-capsuled enzymes? He is 22 months and is not ready to swallow them whole so we sprinkle them in food and/or hide them...

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The Vest

Hi, I am wondering what are your experiences with the vest and did you see a huge inprovement from using it? Also did you have a hard time getting insurance to approve it? My...

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Assistance

My friend is struggling to get assistance, Social Security, for her daughter, 8 years old and has Cystic Fibrosis; any advice would be appreciated greatly.

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