Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Moms experiences with CF!

I dont know if this is the right place to post this but I need help. My son is going to Childrens hospital in 11 days. He has a awful sounding cough he has had since to months...

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Dry Salt Therapy

Has anyone taken their child to a Salt Room? I understand that Dry Salt Therapy can help relieve some symptoms of CF. In New York, you can check out www.BreatheEasyUSA.com for...

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new here

My name is Corrine and my 11 year old son has CF. He was diagnosed at 6 and I had to fight for it. He was going through coughing spells all the time and the doctor kept giving...

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new here

My name is Corrine and my 11 year old son has CF. He was diagnosed at 6 and I had to fight for it. He was going through coughing spells all the time and the doctor kept giving...

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Cystics fibosis

My newborn was born with a bowel obstruction and today we found out that the blood test came back on the border of having cystic fibrosis. What are the chances she may have CF?

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Not Classic CF

Hi my name is Maryanne. I have two children with "mild " forms of cystic fibrosis. I have not been able to find other children with similar conditions. Apparently most people...

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Cf mom of a picky eater

Hi everyone! I'm new & this is my first post ever! :) My almost 2 year old daughter has cystic fibrosis & she has been very healthy! Fortunately, we haven't had any...

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CF Treatment Schedule for Nursing babies

I have an almost six month old with CF. She has been exclusively breastfeeding and not really on a schedule for sleep or feeding and it's driving me crazy. I normally wouldn't...

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The Vest

Hi, I am wondering what are your experiences with the vest and did you see a huge inprovement from using it? Also did you have a hard time getting insurance to approve it? My...

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15 YR SON HAS PNEUMONIA

Does anyone have trouble with their CF Clinic? Mine is great, but ... when I feel very concerned and want his chest listened too, they say we don't do dr. visits, only the 3...

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