Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

Started by Courtney Van on 09/22/2016 in Cystic Fibrosis Moms

Last update on 09/22/2016 by Courtney Van

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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G85E

My son is six months old and has one mutation G85E and the other is unknown. We have bloodwork in at Johns Hopkins and so far they have not identified the other mutation, there...

Started by Kristina on 06/03/2014 in Cystic Fibrosis Moms

Last update on 08/29/2016 by Catequinn75

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day

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PTS

Hello, my youngest son has CF. I feel very uncomfortable posting this but feel I need to. Since Tristan's diagnosis I have had a constant panic attack amoung other symptoms....

Started by Luckylady3 on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Luckylady3

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Problems with weight gain....

Hi Everyone, I'm new to this so please bear with me. I have a 14mth old daughter with CF. She was diagnoised at 4 weeks from the heel prick test. (I'm in Australia so this is...

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Appetite...

Hi Anna's eating habits have always been a source of constant concern for us... she's never had a very big appetite and she's not really in an ideal position to be a fussy...

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Cf mom of a picky eater

Hi everyone! I'm new & this is my first post ever! :) My almost 2 year old daughter has cystic fibrosis & she has been very healthy! Fortunately, we haven't had any...

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CF Clinical Trials Matching

Hello all, I would like to invite you to check out genefo.com/cf (Note to administrator: Founded by Stanford geneticst Dr.Wilani, we are not involved in for-profit activities,...

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R117H/5t

Hi, My son has a confirmed diagnosis of CF, but the genes that they have identified are R117H and 5T polymorphism. I am not sure how they work and what I am in store for. From...

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