Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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Not Classic CF

Hi my name is Maryanne. I have two children with "mild " forms of cystic fibrosis. I have not been able to find other children with similar conditions. Apparently most people...

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Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

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not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

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Moms experiences with CF!

I dont know if this is the right place to post this but I need help. My son is going to Childrens hospital in 11 days. He has a awful sounding cough he has had since to months...

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Toddler & enzymes

Any suggestions on how to get your toddler to swallow open-capsuled enzymes? He is 22 months and is not ready to swallow them whole so we sprinkle them in food and/or hide them...

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The Vest

Hi, I am wondering what are your experiences with the vest and did you see a huge inprovement from using it? Also did you have a hard time getting insurance to approve it? My...

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CF Clinical Trials Matching

Hello all, I would like to invite you to check out genefo.com/cf (Note to administrator: Founded by Stanford geneticst Dr.Wilani, we are not involved in for-profit activities,...

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day

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PTS

Hello, my youngest son has CF. I feel very uncomfortable posting this but feel I need to. Since Tristan's diagnosis I have had a constant panic attack amoung other symptoms....

Started by Luckylady3 on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Luckylady3

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day