Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 11
2

Toddler & enzymes

Any suggestions on how to get your toddler to swallow open-capsuled enzymes? He is 22 months and is not ready to swallow them whole so we sprinkle them in food and/or hide them...

16

The Vest

Hi, I am wondering what are your experiences with the vest and did you see a huge inprovement from using it? Also did you have a hard time getting insurance to approve it? My...

21

Assistance

My friend is struggling to get assistance, Social Security, for her daughter, 8 years old and has Cystic Fibrosis; any advice would be appreciated greatly.

0

Dry Salt Therapy

Has anyone taken their child to a Salt Room? I understand that Dry Salt Therapy can help relieve some symptoms of CF. In New York, you can check out www.BreatheEasyUSA.com for...

0

new here

My name is Corrine and my 11 year old son has CF. He was diagnosed at 6 and I had to fight for it. He was going through coughing spells all the time and the doctor kept giving...

0

new here

My name is Corrine and my 11 year old son has CF. He was diagnosed at 6 and I had to fight for it. He was going through coughing spells all the time and the doctor kept giving...

4

Cystics fibosis

My newborn was born with a bowel obstruction and today we found out that the blood test came back on the border of having cystic fibrosis. What are the chances she may have CF?

1

Cf mom of a picky eater

Hi everyone! I'm new & this is my first post ever! :) My almost 2 year old daughter has cystic fibrosis & she has been very healthy! Fortunately, we haven't had any...

0

CF Treatment Schedule for Nursing babies

I have an almost six month old with CF. She has been exclusively breastfeeding and not really on a schedule for sleep or feeding and it's driving me crazy. I normally wouldn't...

0

15 YR SON HAS PNEUMONIA

Does anyone have trouble with their CF Clinic? Mine is great, but ... when I feel very concerned and want his chest listened too, they say we don't do dr. visits, only the 3...

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 11