Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10
0

15 YR SON HAS PNEUMONIA

Does anyone have trouble with their CF Clinic? Mine is great, but ... when I feel very concerned and want his chest listened too, they say we don't do dr. visits, only the 3...

4

Possible CF diagnosis

Hi, My name is Elizabeth and my 15 year old son just left the ENT and the Dr floored me by asking if he has cf. I told him that he was tested as a baby due to multiple...

1

Can siblings have different cf mutations?

I have two children, My first son Isaac is 7 now and has had pneumonia over a dozen times, he tends to stay sick long and is very small (skinny) he constantly complains of...

7

Insurance problems

Anyone having problems with their insurance paying for meds and supplies? My 3 y-o has CF, epilepsy, a laryngeal cleft, aspiration, CLD, ect....she has a g-tube, on numerous...

0

4 yo having sweat test next week.

Good Morning, I am the mom of a 4 year old little boy. We recent have been seeing his pediatrician because of a couple episodes of rectal prolapse. It started in October...

5

2yr old wont eat...

I have a two year old son who has CF. He was dx at birth. He has had multiple surguries (removal of meconioum ileus, Nissen, GT). They had put the GT in about a year ago. he has...

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10