Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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CF or a fussy baby?

I have had three healthly girls, and now I have an daughters with CF. My daughters is now about 3 1/2 months and we had our first clinic last month. Yesterday she was extremely...

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question about cf symptoms and advice

hi im looking for some advise.. i have a 1year old boy who im concerned about.. 2 days after he was born he got pneumonia he was in hospital for 2/3 weeks while they got him...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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Not Classic CF

Hi my name is Maryanne. I have two children with "mild " forms of cystic fibrosis. I have not been able to find other children with similar conditions. Apparently most people...

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Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

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not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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PTS

Hello, my youngest son has CF. I feel very uncomfortable posting this but feel I need to. Since Tristan's diagnosis I have had a constant panic attack amoung other symptoms....

Started by Luckylady3 on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Luckylady3

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day