Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10
0

15 YR SON HAS PNEUMONIA

Does anyone have trouble with their CF Clinic? Mine is great, but ... when I feel very concerned and want his chest listened too, they say we don't do dr. visits, only the 3...

4

Possible CF diagnosis

Hi, My name is Elizabeth and my 15 year old son just left the ENT and the Dr floored me by asking if he has cf. I told him that he was tested as a baby due to multiple...

1

Can siblings have different cf mutations?

I have two children, My first son Isaac is 7 now and has had pneumonia over a dozen times, he tends to stay sick long and is very small (skinny) he constantly complains of...

7

Insurance problems

Anyone having problems with their insurance paying for meds and supplies? My 3 y-o has CF, epilepsy, a laryngeal cleft, aspiration, CLD, ect....she has a g-tube, on numerous...

0

4 yo having sweat test next week.

Good Morning, I am the mom of a 4 year old little boy. We recent have been seeing his pediatrician because of a couple episodes of rectal prolapse. It started in October...

5

2yr old wont eat...

I have a two year old son who has CF. He was dx at birth. He has had multiple surguries (removal of meconioum ileus, Nissen, GT). They had put the GT in about a year ago. he has...

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10
0

Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

0

Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

0

not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

0

not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

0

G85E

My son is six months old and has one mutation G85E and the other is unknown. We have bloodwork in at Johns Hopkins and so far they have not identified the other mutation, there...

0

Dry Salt Therapy

Has anyone taken their child to a Salt Room? I understand that Dry Salt Therapy can help relieve some symptoms of CF. In New York, you can check out www.BreatheEasyUSA.com for...

1

Cf mom of a picky eater

Hi everyone! I'm new & this is my first post ever! :) My almost 2 year old daughter has cystic fibrosis & she has been very healthy! Fortunately, we haven't had any...

1

Moms experiences with CF!

I dont know if this is the right place to post this but I need help. My son is going to Childrens hospital in 11 days. He has a awful sounding cough he has had since to months...

2

Toddler & enzymes

Any suggestions on how to get your toddler to swallow open-capsuled enzymes? He is 22 months and is not ready to swallow them whole so we sprinkle them in food and/or hide them...

4

Possible CF diagnosis

Hi, My name is Elizabeth and my 15 year old son just left the ENT and the Dr floored me by asking if he has cf. I told him that he was tested as a baby due to multiple...