Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Cystic Fibrosis Moms

Hello all, I joined a moms groups here. I looked @ all there groups. there was a groups for cancer and autism well there wasn't one for CF. So I said we need one. So here we...

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Scandishake Alternatives...

Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...

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Daycare and CF

Moms, I could use some help. I have a 6month old (diagnosed at 10 days with CF) and we have him in daycare. We can't afford for me to stay home and there are multiple factors...

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Dry and Red Cheeks

What are other CF moms using to moisturized? My daughters skin is always try and salty the last couple of days. I have been Aquaphor for the last couple of months, and it is not...

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1yr old with cf

Two days ago I was told my just turned 1yr old daughter had a borderline postivie sweat test. Well we have been seeing doctors for two months to figure out what her mucusy foul...

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where people from

hi my 8 year old has cf we are in the uk (lincolnshire) and was just wondering where people are from in the country as i see and read a lot on cf and sometimes it doesnt make...

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Sweating

My 6 month old has CF and he sweats so bad so I'm wondering what I should do this summer I just dont want him to over heat so those that have battled the heat with you CF child...

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Looking for advice on Cf and Short Gut

Anyone out there have a kiddo with CF and Short Gut Syndrome??? My daughter is 4 yrs. old and she is so picky with what she eats I'm running out of ideas We have used...

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Do any sweat negs out there use a vest?

I am just wondering if any one out there is using a vest who has a "atypical, mild, or sweat neg" CF child. Our child is just 7 months old, she is not, has normal lung and...

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I'm new to CF and have a question

My son is 8 weeks old we found out at 2 weeks he had CF. Right now he's been puking up every bottle so they had me put him on a pedialite diet. So my question is he usually has...

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Recipes

Hi I'm putting together a newsletter for our local CF clinic and thought I might get some inspiration here... Does anyone have any super-awesome recipes for their kids, high in...

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Developmental delays and CF?

I have 2 children with CF. A 3year5mnth old girl and a 1year4mnth old boy. The girl is doing ok where it comes to her development, bit behind on a few milestones,but she was...

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New Member

Hi Everyone, I just joined today...My almost 18 month old was diagnosed with CF last month after many many months of her being sick not gaining weight ect....Celiac runs in the...

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Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

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Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...

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not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

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not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

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G85E

My son is six months old and has one mutation G85E and the other is unknown. We have bloodwork in at Johns Hopkins and so far they have not identified the other mutation, there...

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Dry Salt Therapy

Has anyone taken their child to a Salt Room? I understand that Dry Salt Therapy can help relieve some symptoms of CF. In New York, you can check out www.BreatheEasyUSA.com for...

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Cf mom of a picky eater

Hi everyone! I'm new & this is my first post ever! :) My almost 2 year old daughter has cystic fibrosis & she has been very healthy! Fortunately, we haven't had any...

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Moms experiences with CF!

I dont know if this is the right place to post this but I need help. My son is going to Childrens hospital in 11 days. He has a awful sounding cough he has had since to months...

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Toddler & enzymes

Any suggestions on how to get your toddler to swallow open-capsuled enzymes? He is 22 months and is not ready to swallow them whole so we sprinkle them in food and/or hide them...

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Possible CF diagnosis

Hi, My name is Elizabeth and my 15 year old son just left the ENT and the Dr floored me by asking if he has cf. I told him that he was tested as a baby due to multiple...