This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.
I just found out I'm a CF carrier, my husband is getting tested Sept. 5. I was talking to my MIL and she said that she wasn't a carrier when she was pregnant with him. Does this...
Started by Katie on 08/29/2012 in Cystic Fibrosis Moms
Last update on 09/24/2012 by Chanele
I'm not a CF mom, but I could have been. My husband and I found out that we were both carriers. I was curious to whether or not anyone was offered the addition blood testing...
Started by Jennifer on 06/03/2009 in Cystic Fibrosis Moms
Last update on 08/31/2012 by Sierra
My 2 and half year old boy was just diagnosed with MILD CF. He has only experienced the GI side of thr problems (ex: greasy stools.) He has had no lung infections and has been...
Started by Ashley on 03/16/2012 in Cystic Fibrosis Moms
Last update on 08/29/2012 by Mike N Sharee
Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...
Started by Carolyn on 08/08/2012 in Cystic Fibrosis Moms
Last update on 08/08/2012 by Carolyn
my daughter in law was recently diagnosed with cf from bloodwork during routine prenatal testing. does anyone know what to expect for mother and baby?
Started by Mimmy on 04/26/2012 in Cystic Fibrosis Moms
Last update on 04/26/2012 by Mimmy
I am just wondering if any one out there is using a vest who has a "atypical, mild, or sweat neg" CF child. Our child is just 7 months old, she is not, has normal lung and...
Started by Laurie on 05/20/2009 in Cystic Fibrosis Moms
Last update on 01/28/2012 by CHRISTAL
My son is 8 weeks old we found out at 2 weeks he had CF. Right now he's been puking up every bottle so they had me put him on a pedialite diet. So my question is he usually has...
Started by Caroline on 11/17/2011 in Cystic Fibrosis Moms
Last update on 01/11/2012 by Caroline
I have 2 children with CF. A 3year5mnth old girl and a 1year4mnth old boy. The girl is doing ok where it comes to her development, bit behind on a few milestones,but she was...
Started by Elizmare on 10/24/2011 in Cystic Fibrosis Moms
Last update on 10/25/2011 by Deirdre