Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Can siblings have different cf mutations?

I have two children, My first son Isaac is 7 now and has had pneumonia over a dozen times, he tends to stay sick long and is very small (skinny) he constantly complains of...

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Insurance problems

Anyone having problems with their insurance paying for meds and supplies? My 3 y-o has CF, epilepsy, a laryngeal cleft, aspiration, CLD, ect....she has a g-tube, on numerous...

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4 yo having sweat test next week.

Good Morning, I am the mom of a 4 year old little boy. We recent have been seeing his pediatrician because of a couple episodes of rectal prolapse. It started in October...

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2yr old wont eat...

I have a two year old son who has CF. He was dx at birth. He has had multiple surguries (removal of meconioum ileus, Nissen, GT). They had put the GT in about a year ago. he has...

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3 week old getting tested for cf

hi moms, we just got the news that my LO's newborn screening came back with an abnormality for cf and is going in for a sweat test tomorrow, i was just wondering what is the...

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enzyme troubles

Hello everyone! My brother and sister in law are twins(2years old)with cf. Although they arent my kids I take care of them every day. I am their nanny. The reason for this post...

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Changes in pancreas sufficiency with age?

I have an 8 month old daughter with cf. She was diagnosed by a cvs during my pregnancy. After she was born they did a sweat test which was positive for cf. They stated her on...

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Hello

Does anyone respond here anymore

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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PTS

Hello, my youngest son has CF. I feel very uncomfortable posting this but feel I need to. Since Tristan's diagnosis I have had a constant panic attack amoung other symptoms....

Started by Luckylady3 on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Luckylady3

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day