Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Hello

Does anyone respond here anymore

17

Anyone have a 20 year old with CF?

I have a 23 yr old son with CF - diagnosed at 17 1/2. Has taken 5 years to get him to realize what living with this disease is all about. Still will not eat enough food and...

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Make-A-Wish

Have any of you been advised or used Make-A-Wish for your CF children? At my son's appointment yesterday the social worker told my husband that we are eligible for Make-A-Wish....

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I have a 20 year old son with cf..

I would be happy to share or just listen. also I am having some issues with my son if anyone has a child in their twenties that could give me some insight that would be great.

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Cystic Fibrosis Moms

Hello all, I joined a moms groups here. I looked @ all there groups. there was a groups for cancer and autism well there wasn't one for CF. So I said we need one. So here we...

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Scandishake Alternatives...

Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...

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Daycare and CF

Moms, I could use some help. I have a 6month old (diagnosed at 10 days with CF) and we have him in daycare. We can't afford for me to stay home and there are multiple factors...

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Dry and Red Cheeks

What are other CF moms using to moisturized? My daughters skin is always try and salty the last couple of days. I have been Aquaphor for the last couple of months, and it is not...

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1yr old with cf

Two days ago I was told my just turned 1yr old daughter had a borderline postivie sweat test. Well we have been seeing doctors for two months to figure out what her mucusy foul...

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