Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

  1. 1
  2. ...
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10
3

I have a 20 year old son with cf..

I would be happy to share or just listen. also I am having some issues with my son if anyone has a child in their twenties that could give me some insight that would be great.

43

Cystic Fibrosis Moms

Hello all, I joined a moms groups here. I looked @ all there groups. there was a groups for cancer and autism well there wasn't one for CF. So I said we need one. So here we...

0

Scandishake Alternatives...

Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...

2

Daycare and CF

Moms, I could use some help. I have a 6month old (diagnosed at 10 days with CF) and we have him in daycare. We can't afford for me to stay home and there are multiple factors...

1

Dry and Red Cheeks

What are other CF moms using to moisturized? My daughters skin is always try and salty the last couple of days. I have been Aquaphor for the last couple of months, and it is not...

0

1yr old with cf

Two days ago I was told my just turned 1yr old daughter had a borderline postivie sweat test. Well we have been seeing doctors for two months to figure out what her mucusy foul...

11

where people from

hi my 8 year old has cf we are in the uk (lincolnshire) and was just wondering where people are from in the country as i see and read a lot on cf and sometimes it doesnt make...

0

Sweating

My 6 month old has CF and he sweats so bad so I'm wondering what I should do this summer I just dont want him to over heat so those that have battled the heat with you CF child...

0

Looking for advice on Cf and Short Gut

Anyone out there have a kiddo with CF and Short Gut Syndrome??? My daughter is 4 yrs. old and she is so picky with what she eats I'm running out of ideas We have used...

12

Do any sweat negs out there use a vest?

I am just wondering if any one out there is using a vest who has a "atypical, mild, or sweat neg" CF child. Our child is just 7 months old, she is not, has normal lung and...

2

I'm new to CF and have a question

My son is 8 weeks old we found out at 2 weeks he had CF. Right now he's been puking up every bottle so they had me put him on a pedialite diet. So my question is he usually has...

0

Recipes

Hi I'm putting together a newsletter for our local CF clinic and thought I might get some inspiration here... Does anyone have any super-awesome recipes for their kids, high in...

1

Developmental delays and CF?

I have 2 children with CF. A 3year5mnth old girl and a 1year4mnth old boy. The girl is doing ok where it comes to her development, bit behind on a few milestones,but she was...

  1. 1
  2. ...
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10