This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.
I have a 13yr old daughter with crms. She has both lung issues and pancreatic issues. She has just started vest treatments about a month ago. The past few days she has been...
Started by Cassandra on 12/19/2012 in Cystic Fibrosis Moms
Last update on 01/16/2013 by Cassandra
My son is 3 1/2 months old w/ cf. I'm just wondering if there are any moms out there who could tell me how many times a day their baby feeds. I'm breast feeding him. He feeds...
Started by Natalie on 10/10/2012 in Cystic Fibrosis Moms
Last update on 11/28/2012 by GB
My daughter has been in a out of hospital over the past 2 months. The doctors have been treating her with chest infections and now asthma. I am worried that it is something more...
Started by Gemma on 10/14/2012 in Cystic Fibrosis Moms
Last update on 11/05/2012 by Teresa
Hi ladies, I have a 10,7,3,5month old! My 3 year old is from a different father and he is deceased. He was p.n.g descent and skinny, as are all his family. My son is 3 and...
Started by Skye on 10/23/2012 in Cystic Fibrosis Moms
Last update on 10/29/2012 by Chanele
Has anybody been on a trip to Disney world threw make wish foundation stay at give kids the world village we leave November1 thur .7
Started by Robin on 10/17/2012 in Cystic Fibrosis Moms
Last update on 10/17/2012 by Robin
We just recieved conformation that my 3 year old son has the DD F508 mutations. He mainly struggles with digestive problems, he is on enzymes and previcit. We have been very...
Started by Ashley on 05/31/2012 in Cystic Fibrosis Moms
Last update on 10/15/2012 by Belinda
Today for some odd reason I realized how much Cystic Fibrosis has impacted our lives and my own. As a SAHM I have been feeling a little lonely and isolated. Besides the fact...
Started by Stephanie on 09/14/2011 in Cystic Fibrosis Moms
Last update on 10/09/2012 by Natalie
I would be happy to share or just listen. also I am having some issues with my son if anyone has a child in their twenties that could give me some insight that would be great.
Started by Tonya on 09/13/2012 in Cystic Fibrosis Moms
Last update on 10/01/2012 by Tammy
I just found out I'm a CF carrier, my husband is getting tested Sept. 5. I was talking to my MIL and she said that she wasn't a carrier when she was pregnant with him. Does this...
Started by Katie on 08/29/2012 in Cystic Fibrosis Moms
Last update on 09/24/2012 by Chanele
I'm not a CF mom, but I could have been. My husband and I found out that we were both carriers. I was curious to whether or not anyone was offered the addition blood testing...
Started by Jennifer on 06/03/2009 in Cystic Fibrosis Moms
Last update on 08/31/2012 by Sierra
My 2 and half year old boy was just diagnosed with MILD CF. He has only experienced the GI side of thr problems (ex: greasy stools.) He has had no lung infections and has been...
Started by Ashley on 03/16/2012 in Cystic Fibrosis Moms
Last update on 08/29/2012 by User
Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...
Started by Carolyn on 08/08/2012 in Cystic Fibrosis Moms
Last update on 08/08/2012 by Carolyn