Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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4 yo having sweat test next week.

Good Morning, I am the mom of a 4 year old little boy. We recent have been seeing his pediatrician because of a couple episodes of rectal prolapse. It started in October...

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2yr old wont eat...

I have a two year old son who has CF. He was dx at birth. He has had multiple surguries (removal of meconioum ileus, Nissen, GT). They had put the GT in about a year ago. he has...

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3 week old getting tested for cf

hi moms, we just got the news that my LO's newborn screening came back with an abnormality for cf and is going in for a sweat test tomorrow, i was just wondering what is the...

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enzyme troubles

Hello everyone! My brother and sister in law are twins(2years old)with cf. Although they arent my kids I take care of them every day. I am their nanny. The reason for this post...

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Changes in pancreas sufficiency with age?

I have an 8 month old daughter with cf. She was diagnosed by a cvs during my pregnancy. After she was born they did a sweat test which was positive for cf. They stated her on...

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Hello

Does anyone respond here anymore

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Anyone have a 20 year old with CF?

I have a 23 yr old son with CF - diagnosed at 17 1/2. Has taken 5 years to get him to realize what living with this disease is all about. Still will not eat enough food and...

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Make-A-Wish

Have any of you been advised or used Make-A-Wish for your CF children? At my son's appointment yesterday the social worker told my husband that we are eligible for Make-A-Wish....

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