Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Anyone have a 20 year old with CF?

I have a 23 yr old son with CF - diagnosed at 17 1/2. Has taken 5 years to get him to realize what living with this disease is all about. Still will not eat enough food and...

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Make-A-Wish

Have any of you been advised or used Make-A-Wish for your CF children? At my son's appointment yesterday the social worker told my husband that we are eligible for Make-A-Wish....

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I have a 20 year old son with cf..

I would be happy to share or just listen. also I am having some issues with my son if anyone has a child in their twenties that could give me some insight that would be great.

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Cystic Fibrosis Moms

Hello all, I joined a moms groups here. I looked @ all there groups. there was a groups for cancer and autism well there wasn't one for CF. So I said we need one. So here we...

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Scandishake Alternatives...

Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...

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Daycare and CF

Moms, I could use some help. I have a 6month old (diagnosed at 10 days with CF) and we have him in daycare. We can't afford for me to stay home and there are multiple factors...

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Dry and Red Cheeks

What are other CF moms using to moisturized? My daughters skin is always try and salty the last couple of days. I have been Aquaphor for the last couple of months, and it is not...

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1yr old with cf

Two days ago I was told my just turned 1yr old daughter had a borderline postivie sweat test. Well we have been seeing doctors for two months to figure out what her mucusy foul...

11

where people from

hi my 8 year old has cf we are in the uk (lincolnshire) and was just wondering where people are from in the country as i see and read a lot on cf and sometimes it doesnt make...

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question about cf symptoms and advice

hi im looking for some advise.. i have a 1year old boy who im concerned about.. 2 days after he was born he got pneumonia he was in hospital for 2/3 weeks while they got him...

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question about cf symptoms and advice

hi im looking for some advise.. i have a 1year old boy who im concerned about.. 2 days after he was born he got pneumonia he was in hospital for 2/3 weeks while they got him...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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New to cf

my daughter was diagnosed at 4wks through heel prick screening, it seems like every time I think I have the drug regime down something else is added, today it was thickner for...

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not salty "tasting"

My son possibility of having CF. he's 9 months old and has had RSV at 3 weeks, repeated bronchitis , reoccurring pneumonia, repeated upper respiratory infections, repeated sinus...

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Scared mom of a CF daughter

3 months ago my baby girl was born, so "heathy" and perfect and three weeks after we found out she has CF. We were and still are shock especially that her dad had extensive...