Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Looking for advice on Cf and Short Gut

Anyone out there have a kiddo with CF and Short Gut Syndrome??? My daughter is 4 yrs. old and she is so picky with what she eats I'm running out of ideas We have used...

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Do any sweat negs out there use a vest?

I am just wondering if any one out there is using a vest who has a "atypical, mild, or sweat neg" CF child. Our child is just 7 months old, she is not, has normal lung and...

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I'm new to CF and have a question

My son is 8 weeks old we found out at 2 weeks he had CF. Right now he's been puking up every bottle so they had me put him on a pedialite diet. So my question is he usually has...

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Recipes

Hi I'm putting together a newsletter for our local CF clinic and thought I might get some inspiration here... Does anyone have any super-awesome recipes for their kids, high in...

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Developmental delays and CF?

I have 2 children with CF. A 3year5mnth old girl and a 1year4mnth old boy. The girl is doing ok where it comes to her development, bit behind on a few milestones,but she was...

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New Member

Hi Everyone, I just joined today...My almost 18 month old was diagnosed with CF last month after many many months of her being sick not gaining weight ect....Celiac runs in the...

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Greetings!

Hello every1! I have 4 chidren, the two youngest ones have CF! (3years old and 11months old) Glad to join this group! Strengh to all of you!

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Pseudomonas

Hi I understand that pseudomonas is 'inevitable' in CF patients, but we were hoping that Anna would hold out a bit longer 'til catching it. We got 'the phonecall' from the doc...

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Appetite...

Hi Anna's eating habits have always been a source of constant concern for us... she's never had a very big appetite and she's not really in an ideal position to be a fussy...

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Problems with weight gain....

Hi Everyone, I'm new to this so please bear with me. I have a 14mth old daughter with CF. She was diagnoised at 4 weeks from the heel prick test. (I'm in Australia so this is...

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how do you explain?

Hello everyone! its been a while since i left anything on here, but its been a year now since my son was diagnosed! Basically wanted to ask how you all cope with certain...

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Enzymes

Hi Anna's always been so good with taking them (emptied and sprinkled onto a teaspoon with juice) but for the past couple of days has changed her mind, and no convincing will...

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Vitamin E

Hi, The supplier for Aqua E has stopped exporting to South Africa 'cos the required quantities are just too small. Argh! Does anyone know of any alternatives? What do y'all use...

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Nursery School/Playgroups

Hi Anna's almost 2 now and we're trying to find a nursery school for her. Of course, her health is most important, but I'm trying not to let it stifle any social development......

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new diagnosis

Hi we just found out before Easter that our 16 month old has CF im a bit scared as this is all new to me

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Potty training with CF

My son is 4 years old and is afraid to put underwear on. I thought at first it was just because he was scared of pooping in his pants but it seems that he can't control the...

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Enzymes

Hi Just wondering, how many Creon capsules do your children currently take per meal/milk? Caro

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