Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Enzymes

Hi Anna's always been so good with taking them (emptied and sprinkled onto a teaspoon with juice) but for the past couple of days has changed her mind, and no convincing will...

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Vitamin E

Hi, The supplier for Aqua E has stopped exporting to South Africa 'cos the required quantities are just too small. Argh! Does anyone know of any alternatives? What do y'all use...

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Nursery School/Playgroups

Hi Anna's almost 2 now and we're trying to find a nursery school for her. Of course, her health is most important, but I'm trying not to let it stifle any social development......

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new diagnosis

Hi we just found out before Easter that our 16 month old has CF im a bit scared as this is all new to me

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Potty training with CF

My son is 4 years old and is afraid to put underwear on. I thought at first it was just because he was scared of pooping in his pants but it seems that he can't control the...

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Enzymes

Hi Just wondering, how many Creon capsules do your children currently take per meal/milk? Caro

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Being a CF mom

This was written by another CF mom but I'm sure it's how most of us feel. It's the heartwrenching reality of being a parent of a child with CF. I loved it so had to share...

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Enzymes

Hi Just wondering, how many Creon capsules do your children currently take per meal/milk? Caro

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CF or a fussy baby?

I have had three healthly girls, and now I have an daughters with CF. My daughters is now about 3 1/2 months and we had our first clinic last month. Yesterday she was extremely...

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help :(

So, my 20 month old son is having a hard time gaining weight.. and they've mentioned the feeding tube.. and now my stomach is in knots about it... does anyone have any kids with...

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Height and Weight

My son is 19 months old. He wasn't diagnosed with CF until he was five months old. At that point, he weighed less than 10 pounds. Once he was diagnosed and we got him on...

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Sweat test ?

My son is getting this done in two weeks. He was born 4 weeks early has had chronic coughing and 3 episodes of pneumonia. He will be one at the end of the month. His lungs...

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CF Mommy here:)

Hi there. Just wanted to say hi. I am a Mommy to Four children ages 13, 9, 5 and 2 years old. Our last boy Phoenix was diagnosed with CF at 4 weeks after birth threw the infant...

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Merry Christmas

I will write this now, as i doubt I will get a chance beforehand. I want to wish all you special Mums a very Merry Christmas and a healthy/happy New Year!! Thank you for all...

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poor weight gain

hey cf mamas my daughter is almost 8 months now and is just over 10lbs she was born at 5lbs 13ounces. we have a very hard time getting her to gain weight. she also has a VSD...

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CF Baby girl

I love the fact we can all be there for each other! My angel is 16 months old and her name is Audre, we found out she had CF off her new born screening test... one of the most...

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Aussie families

How many members here are from the Great Down Under?? We are in WA. My CF son is 18m, he is the youngest of 4, however my daughter (4yrs) is currently being tested for CF too

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