Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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New Member

Hi Everyone, I just joined today...My almost 18 month old was diagnosed with CF last month after many many months of her being sick not gaining weight ect....Celiac runs in the...

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Greetings!

Hello every1! I have 4 chidren, the two youngest ones have CF! (3years old and 11months old) Glad to join this group! Strengh to all of you!

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Pseudomonas

Hi I understand that pseudomonas is 'inevitable' in CF patients, but we were hoping that Anna would hold out a bit longer 'til catching it. We got 'the phonecall' from the doc...

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Appetite...

Hi Anna's eating habits have always been a source of constant concern for us... she's never had a very big appetite and she's not really in an ideal position to be a fussy...

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Problems with weight gain....

Hi Everyone, I'm new to this so please bear with me. I have a 14mth old daughter with CF. She was diagnoised at 4 weeks from the heel prick test. (I'm in Australia so this is...

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how do you explain?

Hello everyone! its been a while since i left anything on here, but its been a year now since my son was diagnosed! Basically wanted to ask how you all cope with certain...

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Enzymes

Hi Anna's always been so good with taking them (emptied and sprinkled onto a teaspoon with juice) but for the past couple of days has changed her mind, and no convincing will...

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Vitamin E

Hi, The supplier for Aqua E has stopped exporting to South Africa 'cos the required quantities are just too small. Argh! Does anyone know of any alternatives? What do y'all use...

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Nursery School/Playgroups

Hi Anna's almost 2 now and we're trying to find a nursery school for her. Of course, her health is most important, but I'm trying not to let it stifle any social development......

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new diagnosis

Hi we just found out before Easter that our 16 month old has CF im a bit scared as this is all new to me

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Potty training with CF

My son is 4 years old and is afraid to put underwear on. I thought at first it was just because he was scared of pooping in his pants but it seems that he can't control the...

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Enzymes

Hi Just wondering, how many Creon capsules do your children currently take per meal/milk? Caro

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Being a CF mom

This was written by another CF mom but I'm sure it's how most of us feel. It's the heartwrenching reality of being a parent of a child with CF. I loved it so had to share...

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Enzymes

Hi Just wondering, how many Creon capsules do your children currently take per meal/milk? Caro

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CF or a fussy baby?

I have had three healthly girls, and now I have an daughters with CF. My daughters is now about 3 1/2 months and we had our first clinic last month. Yesterday she was extremely...

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help :(

So, my 20 month old son is having a hard time gaining weight.. and they've mentioned the feeding tube.. and now my stomach is in knots about it... does anyone have any kids with...

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Height and Weight

My son is 19 months old. He wasn't diagnosed with CF until he was five months old. At that point, he weighed less than 10 pounds. Once he was diagnosed and we got him on...

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