Cystic Fibrosis Moms

This groups is for moms of children that live with Cystic Fibrosis and the other side effects of CF. Also for moms or grandma's w/CF or that help take care of a CF child. Even if you have raised your CF child you have the experience. PLEASE join. We need you.

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Anyone have a 20 year old with CF?

I have a 23 yr old son with CF - diagnosed at 17 1/2. Has taken 5 years to get him to realize what living with this disease is all about. Still will not eat enough food and...

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Make-A-Wish

Have any of you been advised or used Make-A-Wish for your CF children? At my son's appointment yesterday the social worker told my husband that we are eligible for Make-A-Wish....

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I have a 20 year old son with cf..

I would be happy to share or just listen. also I am having some issues with my son if anyone has a child in their twenties that could give me some insight that would be great.

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Cystic Fibrosis Moms

Hello all, I joined a moms groups here. I looked @ all there groups. there was a groups for cancer and autism well there wasn't one for CF. So I said we need one. So here we...

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Scandishake Alternatives...

Hi all! We're struggling to get our monthly supply of Anna's Scandishake (supply is not great in South Africa!), and was wondering if any moms had some alternative drink recipe...

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Daycare and CF

Moms, I could use some help. I have a 6month old (diagnosed at 10 days with CF) and we have him in daycare. We can't afford for me to stay home and there are multiple factors...

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Dry and Red Cheeks

What are other CF moms using to moisturized? My daughters skin is always try and salty the last couple of days. I have been Aquaphor for the last couple of months, and it is not...

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1yr old with cf

Two days ago I was told my just turned 1yr old daughter had a borderline postivie sweat test. Well we have been seeing doctors for two months to figure out what her mucusy foul...

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where people from

hi my 8 year old has cf we are in the uk (lincolnshire) and was just wondering where people are from in the country as i see and read a lot on cf and sometimes it doesnt make...

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Sweating

My 6 month old has CF and he sweats so bad so I'm wondering what I should do this summer I just dont want him to over heat so those that have battled the heat with you CF child...

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

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Thoughts on pulse ox for child's CF?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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cf loss

Has anyone lost their child from c.f.? I lost my 18 year old daughter in March and I can't seem to find anyone to talk to about it.

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PTS

Hello, my youngest son has CF. I feel very uncomfortable posting this but feel I need to. Since Tristan's diagnosis I have had a constant panic attack amoung other symptoms....

Started by Luckylady3 on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Luckylady3

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Cf life

I want to tell a story that I hope can touch many hearts and give hope to those who can relate to my struggle. To other mothers who know what it feels like to have their hearts...

Started by Recoveryprincess2day on 06/13/2016 in Cystic Fibrosis Moms

Last update on 06/13/2016 by Recoveryprincess2day