Sandy - posted on 01/31/2010 ( 2 moms have responded )
Hi all, I just wanted to drop you all a line to say hello. I am not very active on the Cystic Fibrosis Moms. I am sorry for that but you know life is busy. I created this group for you all so you could ask each other questions and get support. You are welscome to send me private messages if you need to.
-A little about me. I am a wife and a mom of 2. Cassi is 11-1/2 nCF. Collin is 7-1/2. He was diagnosed (dx) with CF @ 16 months old after 10 months of me fighting and going to several drs to figure out whats wrong. Then @ 4-1/2 after telling the drs something is wrong he was dx'ed with Cirrhosis of the liver.
Collins lungs are in great shape there is no mucus. He does grow Pseudomonas A and Staph A sometimes. His main problems is sinuses. When he gets sick its sinus problems. He is 90% with growth.
I want every one to feel welcomed here. All I ask is to be kind and sinsative to peoples feelings.