Daily routines n hygene help :)

Rachel - posted on 11/25/2009 ( 2 moms have responded )

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would love anyone 2 tel me about there daily routine with there cf lovelys. my daughter who is 8yrs was only diagnosed jan of this year. docs have been good with the technical jargon but not the practial side. thankgoodness for sites like these.

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Rachel - posted on 01/01/2010

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Thankyou Sandra so much, thankfully from what you have told me, its just exactly what i do :) :). Katie also enjoys sport as she trains 3 times a week at TKD (tae kwon-do). Although she hasnt been there for the last month because of a cold and an ongoing fight with sphudomonis, i choose to keep her home when school broke up for xmas, she has been keeping fit on the wii fit which is fantastic for keeping an eye on her weight n BMI . Thankfully we got the news on the 29th Dec that her sputom was finaly clear after a years fight :). She is starting back TKD on monday n its back 2 school on wedensday. When its came to the meds n physio routine luckly katie took to it like a duck to water. I dont think any of us realise the amount we have to do because it comes second nature. We also live in a rural place in town, (Scotland) but its getting less rural as time goes on n they develope more round about, although we do still have a little wood that runs down the opposite side of the road that attracts lost of wildlife n fresh air :). Sandra you are a star n have put my mind at ease lol. please stay intouch or ad me as a friend id like that very much. Hope your having a wonderfull new year

Sandra - posted on 12/30/2009

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Rachel my daughter is 16 and has 100% lung capacity she plays lots of sport and high contact at that. She plays AFL aussie football and Touch Football and rides motorbikes so dirt is not the issue as long as they have plenty of soap and water cleaning themselves is not the problem. The main thing I have found is changing towels every 3 days to stop mould and other issues! Having there own cup to drink out of both at school and home. Teaching them not to share there food and drinks and using straws when out .We live 13kms out of Brisbane Australia but are still in a rural enviroment so have to be careful of cow dung etc. As for routine your daughter is now 8 she should be able to cope with physio then nebulisers and then breakfast of a morning . Lunch time eating lunch and then doing some running and excercise. After school playing with her friends then physio / nebs /meds before Dinner.School work always comes last and after Dinner when all is calm.to add to all this my daughter at 8 was doing gymnastics after school for 2 hours and then coming home to some physio. As for hygiene I dont know which country you are in and all the protocols are different in each country. In Australia we use chlorine for all mould and mildew and scrub. Cleaning nebulisers we use hot soapy water and let it air dry and once a month or more if necessary we boil our equipment and air dry on lint free paper. Tubes for nebs are rinsed out and hung to air dry and replaced every 3 months.The best advise I can give you is teach your daughter to WASH her hands in soapy water and keep washing them till she has finished singing Happy Birthday to herself then rinse them and use paper towel or air dry.Keep in touch I am a wealth of knowledge and have been through almost everything

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