Zoe Louise - posted on 08/04/2010 ( 8 moms have responded )
hi everyone! since im usually the one reading and replying to the odd post i thought i would write my own post!
Just a few questions really my baby boy is 5 months and diagnosed at 6 weeks old! i was wondering if any of u ever felt abandoned by the team of specialists after so long? its just i feel myself being a new mum is hard anyway and then having to get used to giving medicines and all the physio is extremely hard i think that now they feel i know what i'm doing i never hear from them and when i call because i'm confused about something they take forever to get back to me!i think im still farely new to all of this and i will have questions it would just be nice to have a call to say hi how are you getting on or something! i always have to ring them to get the results from the cough swabs and when i ask them a question like for example he was coughing in his sleep and throughout the day a lot plus being quite sick so i asked if that was how it was going to be or does it mean maybe he has caught bacteria again they never know how to answer me other than he may like the sound of his cough???? what at 3 in the morning whilst he is asleep??? i don't think so! and just treat him like a normal baby well i do to a certain extent but u can't ignore the fact that he has cf i just thought the whole process was supposed to be about preventing them from getting poorly not waiting for it to happen! i just feel there is no support out there for us young mums! i'm feeling like a nag when i call them now and i rarely call as it is! i am usually pretty positive about everything but i'm just feeling alone at the moment! did or does anyone else feel like this?? xxx