Maryanne - posted on 02/18/2009 ( 49 moms have responded )
Hi my name is Maryanne. I have two children with "mild " forms of cystic fibrosis. I have not been able to find other children with similar conditions. Apparently most people with this type of Cf are diagnosed in their teens and twenties, but because of newborn screening (in my state, since 1999)cases are being diagnosed in infancy. I spend a lot of time struggling to figure out if issues with their health are cf related or not. It's been tough to get information that's definative. So...if there is anyone out there that can share info/experiences I would be grateful! Thanks you!