Allison - posted on 01/19/2012 ( 26 moms have responded )
I do realize some people will read this and find it heartless but please think on this because i look at it a different way. so we all have read about the little girl in PA who was denied surgery. but a year ago medicaid/medicare was under attack because it boots minors off it when they turn twenty, they can reapply as adults but there is a lapse in coverage during that time, ok so back to the story
a mother on a NPR program whos daughter was severly disabled both physically and mentally. its a truly sad story. this poor girl who now would be twenty one, has never breathed on her own, crawled, eaten, chewed, swallowed, and according to her neurologist (did i spell that right?) had a single cognitive thought. the poor girl is kept alive entirely by machines. she has no way to communicate. according to the dr (parents signed the waiver letting him discuss the case) the mother disagreed of course but the neurologist along with some kind of therapist said that no there was no communication.
she is kept alive entirely by machines there is no hope for her at all. she has never ever and will never ever be able to do anything at all not even dream.
so my question that i want every ones opinions on please with out emotion but with empathy, is what these parents doing right? keeping a person, a child alive who is unable to actually live or have the ability to appreciate thier lives right? is it fair to the child or possibly any sibilings? or are these parents trying to protect themselves from the inevitable heartbreak that comes with loosing a child.
i just wonder isnt it a really thin line on how ethical keeping these people alive is? i understand why they are doing it but shouldnt the child be put first? they arent keeping these kids alive for the child they are keeping them alive for themselves. these kids dont have a good shot at life.