Jamie - posted on 01/20/2010 ( 27 moms have responded )
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I have multiple sclerosis... and an eight year old daughter (and husband) who is very supportive, but it's hard to tell her 'Mom needs help' or, 'Mom can't do that'. I just found this and thought I'd see what it was all about. :-)
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Shannintipton - posted on 05/09/2011
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Yeah, my system is so slow I dont know if I can handle this. I may have to sign off. Maybe I will see you tomorrow. I am really sorry. I know we keep missing each other but maybe there are some others out there. So go have some fun and I will talk to you later. Bye for now. {:+)
Jamie - posted on 05/09/2011
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Ah geeze, I just heard some good ones, but I forgot them. :-\ Maybe that's a joke... ;-)
Shannintipton - posted on 05/09/2011
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I am having a couple of bad days but much better now. thanks. Have you found any jokes? We are always looking to laugh.
Shannintipton - posted on 05/09/2011
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Jamie, Sorry I seem to be having computer problems. My husband is backing up the system so it is going real slow. I dont know if I will be able to talk with you now.
Jamie - posted on 05/09/2011
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Good... I keep looking for chat, is the chat on CoM?? How are you doing? :-)
Shannintipton - posted on 05/09/2011
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Oh Good Jamie
How are you doing?
Jamie - posted on 05/09/2011
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yes... :-)
Jamie - posted on 05/09/2011
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I need to add more, now that I'm out of the e-mail frenzy mode between Cody's sleeping and happy play by himself (in my view! lol).
I had Cody 6 months ago (Thursday, actually :-)), induced with an epidural and 3 days in the hospital while they made sure I was mostly mobile (I have a power chair at home... WHY don't they help you get an accessible vehicle if you get a chair, oh, wait, you can't leave your house, ever, if you need a pwr chair...). I'd already been using the chr and sometimes my walker at home during the last trimester, and went to strictly chr once I was home... my hips would audibly pop when I walked! Plus, my whole hope of transferring him around the house in the car seat/stroller combo I'd gotten was NOT gonna happen. I did the 'mom thing' solely for the first 3 months, and then started realizing that I'd already lost, so, I got a PT coming to my house with the sole goal of getting me going again and able to get out with Cody so I could join an exercise program somewhere. I think this is my last wk of PT here, and I got Cody out to a ms meeting on my own Saturday, supervised, and helped very minimally! I've even used the stroller in the house, like I'd originally planned, once a day during the last 2 weeks. Still don't trust myself walking with him, but I'm getting stronger all the time. Babies' are the best PT and OT out there. LOL (well, not really, I still have my exercises I have to do everyday rofl)
Shannintipton - posted on 05/09/2011
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Hi Jamie,
Are you there? {:+)
Shannintipton - posted on 05/09/2011
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Hi ladies,
I am so glad you are both here. I think it is amazing that you guys were able to give birth at all. My birth was a C-section because of my brain injury, they didnt want me to blow my head off. LOL. I am sorry I didnt respond when you were on line. Rough day today. I try to stay active on-line daily. P. S. dont forget about some jokes. We love to laugh. Feel free to check out another post I have. I will have to look it up. It has some joke on from some of the ladies I have met here on CoM. I will get back to you with post just in case you want to take a look. {:+)
Jamie - posted on 05/09/2011
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Hi Gemma! First off, ms is degenerative, but not to the muscles (well, other than most msers quit being as active and get out of shape! lol), but to the nerves and therfore brain, creating balance and coordination issues, plus fatigue, which is why we slow down so much usually.
Carrying Cody, my hips desided to rebel and were locking or just plain letting go. A physical therapist I say said 'the pregnancy comprimised my ms', or vice versa - hips tried to spread for birth and spacicity wanted them together.
Delivery went amazingly well b/c I had an epidural. They induced me and Cody was born a half hour later!! I think the PT I'd been doing helped my body last though.
Gemma - posted on 05/09/2011
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MS is a degenerative disease that slowly eats at teh musle tissue. but there are a lot of similarities between MS and CP since they are neuromuscular disorders.
Gemma - posted on 05/09/2011
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CP is cerebral palsy were we have lost a certain amount of oxygen to the brain and it affects our muscles. it shouldnt change once the damage is done.
Shannintipton - posted on 05/07/2011
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Hi Gemma, So glad you stopped by. I have a question. Sorry for being stupid, but I dont know what CPER is. Could explain a little more about that please. {:+)
Gemma - posted on 05/07/2011
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sorry it has taken me a while to join in. took me a while to find you and i get online maybe once a week to chat with family back home. having a little difficulty uploading my latest photos of the kids for facebook today. don't know why.
must apologizse for some spelling errors as I am writing english ona european keyboard.
so a bit about me- I am a canadian /swiss ( got my swiss citizenship about a couple years ago now. ) I am a high functioning cper with some hearing speech issues ( which is what most people around here think I have.) I am a mom of two- a four and a half year old girl and a one year old boy. since having my second I am noticing I am having more difficulty with some of my muscles ( probably wear and tear)on my left side. my dr and midwives all agreed csection was the safest option as we didn't trust how my muscles would react to natural childbirth. had preterm labour for three months - baby was perfectly happy and snuggled in there- and I had contraction every five minutes for tha length of time with the meds to help ease contractions getting stronger each month. grr. with ms how did it affect carying the little one jamie? I ask as I do know that while ms is a gradual disease itis similar to CP in many ways. but still even the midwives weren't totally sure about having a mom with cp
Shannintipton - posted on 04/12/2011
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Has it been a long time sense anybody has responded to you? I dont know what I am doing. I am just winging it. It seemed to me that nobody one being an admin for a little while. Is that true. Because I hope I didnt step on anybody or squeeze them out or anything.
shannin
Shannintipton - posted on 04/12/2011
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That part sounds cool. I just sit here with my dictionary looking up every other words so people dont realize what bad speller I am.{:+)
shannin tipton
Jamie - posted on 04/12/2011
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I'm on here probably way too much! LOL Mostly when Cody is napping or sometimes when he's laying on the floor batting at his 'gym'. VERY addicting... especially if you rarely get to go out and interact with people. Not too difficult, but I don;t 'key' anymore b/c my fingers don't feel or work right, and I would be lost if my computer didn't spell check my miss typing! :-)
Shannintipton - posted on 04/12/2011
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I spend way too much time. But it is addicting. Like right now I should be getting my son ready for football. He is eight.
Shannintipton - posted on 04/12/2011
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Jamie,
How much time to spend on the computer and is it difficult?
Jamie - posted on 04/12/2011
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I don't mind questions, lol, heck, I started a blog. MS is a de myelinating CNS disease that affects everyone differently. For me, it's my balance and some cognitive issues, for the most part.
Shannintipton - posted on 04/12/2011
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Hi Jamie,
I so glad you are still active on CoM. It must be really hard for you. I have no idea what MS is or about. I hope you dont mind if I ask questions to better understand. But if is too difficult I understand. But if you want to chat I am here for that too. {:+)
shannin tipton
Jamie - posted on 04/12/2011
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Yeah, a lot of my symptoms are invisible...and I'm working my butt off trying to reduce the visible problems like my walking issues... don't think I'll get to where I don't need the chair to get the baby around though. My girl (almost 10) has been pretty good, but she remembers me before the ms hit and sometimes gets resentful. Things are going surprisingly WELL with the baby, who's 5 months old today.
Shannintipton - posted on 04/12/2011
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Hello All
My name is shannin tipton and I am disabled too. You may have noticed that the activity on this board has dwindled a little bit. I hope to change that.
I have one boy. He is eight. One girl and she is four. I had brain surgery in 1993. I call it my an invisible disability because I look normal (whatever that may be) but trust me, I am disabled. My thought process is all mixed up and migraines and things like that. I cant wait to talk with all of you and hear about your stories. thanks{:+)
shannin tipton
Gen - posted on 04/12/2010
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Kid's know their parents limits and except it as normal. My son was 15 mo old when I became disabled and I had three kids after my accident none of them ask y I can't do things nor have they ever complained. My eldest is now 15 and he is very helpful to not only me but to other people he sees in need.
Ninette - posted on 04/07/2010
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once I lerf tiitin god's hands it was fine. luckily I havea very smart and helpful daughter. she knows exactly why mommy can't do some things as Im usually very honest with her so she always knows how I'm feeling and is always looking to help whenever I allow her to.
Jamie - posted on 03/28/2010
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And now I found out that I'm pregnant with our second child... am I crazy for thinking I can have more kids?!
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