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My baby has been diagnosed with Nystagmus (eye flicking)

Cherie - posted on 01/20/2010 ( 3 moms have responded )

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My 4 month old son was diagnosed with Nystagmus at 8 weeks old. His eyes constantly flicker horizontally. He cant focus and isnt reaching some of his milestones. He will be having an MRI and ERG in the next few months to see what is causing it.

Have any other babies you know of been diagnosed with this and did it get any better with time? We are hoping it is just developmental. Im really worried :(

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Kelly - posted on 04/17/2013

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My daughter has the same thing wrong with her an her mri is in a could of hours I'm so scared its 300 in the morning and I'm just worried about what's gonna happen and everything.. She's had this for a little while she's 8 months old and has had it since she was like 3 months old

Cherie - posted on 01/30/2010

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Thanks for the info. Its a relief to know there are medications out there to help. Can you please let me know the name?

Darlene - posted on 01/30/2010

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My sister's husband's sister's daughter has this condition. She was also born with it. She actually got it beacuse her mother toke certain medications while she was pregnant, not all cause are due to that though. Their doctor initally treated her with botox injections in the ocular muscle but that only worked for 2 to 3 months. Unfortunately she is losing her vision slowly. Right now their daughter is 7 and she wears glasses that help keep her eye stable. She also holds her head in a funny position because of this issue. In March she is having surgery on the ocular muscle to help stablize her eyes. Right now they are trying a new medication for this condition, I don't have the name but I can get it for you if you would like. She has been taking it for 3 weeks and her condition is improving. She still needs glasses because her eyesight is bad but the shifting of her eyes has been getting less and less and the surgery might not be necessary. I hope they find a treatment that works for your son.

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