Bridget - posted on 05/31/2011 ( 17 moms have responded )
Im wondering if anyone has been through anything like this...it might be lengthy so I apologize in advance.
My daughter was born with only one functioning kidney. Major kidney problems run in my family and I am doing my best to keep her only kidney in good health and I just hope that she doesnt end up with some of the diseases that run in my family.
Recently she has been coming down with high fevers off and on. She has had a few fevers over 103, usually with no other symptoms other than acting run down. She also grabs the front of her diaper and says "hurts". She has been to the doctor and has been checked for infections and always comes up clean, so they say it must be a virus and sends her home. We had her in the ER for a fever over 105 a couple of weeks ago, while there they discovered she had dirty urine in her bladder, but there was no indication of a bladder infection or a urinary tract infection. I told them her whole history and they said they took that into account when making their diagnosis- basically they said it was cystitis. Just this week she came down with another fever above 103, this time with vomiting. She was complaining again that something hurt her. They did all sorts of test, blood tests, urine tests etc and again she was clean so they said it must be a virus.
She has seen 4 different doctors and the doctor in the ER. She has also seen a pediactric urologist and everything on the scans looks clear. I just feel uneasy, that there must be a more serious problem that is being missed by all of these tests. But after so many different doctors I am wondering if I am just being paranoid and she is coming down with normal kid illnesses. My next step is to take her to a nephrologist (kidney doctor) but have been told the tests will be the same.
I should also mention I am a stay at home Mom, so she is not being exposed to other kids in a daycare setting.
Has anyone experienced anything like this? Are these unexplained illnesses normal for kids her age?