Epilepsy Support

This group is for mothers dealing with epilepsy whether they have epilepsy or someone else close to them does.

1

my daughter and phenytoin

I need some help, I'm beginning to lose all hope. My 8 yr old daughter was first diagnosed with epilepsy when she was 2 yrs old. She was put on Trileptal which was helping at...

Started by Tamara on 01/04/2016 in Epilepsy Support

Last update on 01/04/2016 by Lauren

1

Topomax Effects

I was happy to find circle of moms while searching around for info on Topomax. I hope you won't mind my post. I noticed that some on the site have their children on Topomax....

Started by Vicki on 06/26/2013 in Epilepsy Support

Last update on 09/03/2015 by Jen

1

Side effects of Keppra

My 10 year old has recently being diagnosed with Focal seizures, with no family history, she is having difficulty coming to terms with 'being different' - from being a smart...

Started by Loretto on 11/25/2014 in Epilepsy Support

Last update on 09/03/2015 by Jen

0

Zonisamide for child with generalized epilepsy?

Has anyone had experience with Zonisamide? My 10 year old has been on depakote, kepra, depakene, ethosuximide and lamictal. Lamictal worked well but she had an allergic reaction...

Started by Andria on 04/14/2015 in Epilepsy Support

Last update on 04/14/2015 by Andria

1

Older Teens being diagnosed?

How many of us are out there with Teens and Young Adults having their first Grand Mal? Our son was just shy of his 18th when he had his first...luckily he was home and Dad & I...

Started by Debby on 06/28/2011 in Epilepsy Support

Last update on 07/01/2014 by Shauna

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8th ANNUAL TIFFANIE PARKINS MEMORIAL FUN DAY

TIFFANIE PARKINS MEMORIAL FUN DAY 8th ANNUAL BASEBALL TOURNAMENT JUNE 16, 2012 @ 9 AM - 3 PM (raindate - June 17th) ANNE HATHAWAY PARK STRATFORD, ONTARIO Tiffanie Parkins was...

Started by Tracey on 05/31/2012 in Epilepsy Support

Last update on 05/31/2012 by Tracey

1

Absence Seizures in 19 month old?

My 19 month old has started having absence seizures, or that is what her pediatrician said. We are waiting on an appointment with a pediatric neurologist. I am very scared. This...

Started by Ashley on 06/16/2011 in Epilepsy Support

Last update on 04/14/2012 by Latisha

0

Which treatment route to choose?

My daughter is eight years old. She had seizures between age one and three. When the seizures went into remission, the doctors said it may come back at adrenarche (6-8) or...

Started by Rachel on 04/05/2012 in Epilepsy Support

Last update on 04/05/2012 by Rachel

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New generic for Keppra RX released!

Those of us making the co-pays for this have been waiting! http://www.epilepsyfoundation.org/news/New-Generic-Versions-of-Keppra-XR.cfm

Started by Debby on 10/05/2011 in Epilepsy Support

Last update on 10/05/2011 by Debby

0

Any MRA experiences

Our son is being sent for an MRA, obviously there was something noticed on his last MRI. Don't know what they are looking for, but understand the possibilities. Anybody traveled...

Started by Debby on 08/31/2011 in Epilepsy Support

Last update on 08/31/2011 by Debby

1

Yale Study for Childhood Absence Epilepsy

My daughter Joelle (6) and I just spent the weekend at New Haven, CT participating in a study with Hal Blumenfeld, MD "Why are patients with absence seizures absent?" A...

Started by Cindy on 08/10/2010 in Epilepsy Support

Last update on 08/10/2010 by Cindy

0

Question

I have a community called Moms With Epilepsy & had asked this question, but since I only set it up a couple days ago I thought I'd post it here as well. I am an epileptic mom...

Started by Megan on 12/28/2009 in Epilepsy Support

Last update on 12/28/2009 by Megan

2

Welcome

Nice to meet everyone. I would love to hear your connection with epilepsy and what type of support you need. My connection is that both my husband and I have epilepsy. I...

Started by Holly on 03/13/2009 in Epilepsy Support

Last update on 07/24/2009 by Holly